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> hi everyone,

> Just thougt I would introduce myself. My name is jennie I am

married

> to alan and we live in uk. We have 2 kids Finlay who is 3.5yrs and

> is autisitc and Stefan 2yrs who is awaitng dx for autism. Sure

we'll

> have lots to talk about.

> jennie

Hi Jennie!! Nice to meet you!! I'm Alison (Ali) ,mum to Lyndsey ,6,

(NT) and ,4 ,(awaiting dx) .We are going to see the community

autism team tomorrow(Monday) . We live in Glasgow ,where abouts in

the UK are you??

Ali

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Hi Jennie I am Chris. Mom of four, married to almost 9 years now.

looking forward to getting to know you!

&

Parents of:

Sully (AS) 10\94

Chenoa (NT) 6\96

Trevayne (PDDNOS) 3\98

set (Awaiting DX, Significant Speech Delay) 12\99

I'M THANKFUL FOR LAUGHTER, JOY AND THE HIGH SPIRITED GLEE THAT FILLS MY HEART TO

OVERFLOWING (SIGH).

-EEYORE

hi

hi everyone,

Just thougt I would introduce myself. My name is jennie I am married

to alan and we live in uk. We have 2 kids Finlay who is 3.5yrs and

is autisitc and Stefan 2yrs who is awaitng dx for autism. Sure we'll

have lots to talk about.

jennie

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Hi Jennie,

Welcome. I'm Mimi, married to for nine years and

a sahm to Hannah, 7 1/2 (NT) and

, 5 1/2 (PDD).

We live in New York, on Long Island. I look forward to

getting to know you!

Mimi

--- stefanoscar2000 wrote:

> hi everyone,

> Just thougt I would introduce myself. My name is

> jennie I am married

> to alan and we live in uk. We have 2 kids Finlay who

> is 3.5yrs and

> is autisitc and Stefan 2yrs who is awaitng dx for

> autism. Sure we'll

> have lots to talk about.

> jennie

>

>

__________________________________________________

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Guest guest

Nice to meet you, Jennie! I am Tamara, married to

Terry, and we have four kids. Ages 17 to 1 year. Our

four year old daughter, Ebony, is autistic, bipolar,

and ADHD. I look forward to talking to you soon.

Join in any time.

Tamara

--- stefanoscar2000 wrote:

> hi everyone,

> Just thougt I would introduce myself. My name is

> jennie I am married

> to alan and we live in uk. We have 2 kids Finlay who

> is 3.5yrs and

> is autisitc and Stefan 2yrs who is awaitng dx for

> autism. Sure we'll

> have lots to talk about.

> jennie

>

>

=====

Tamara

mom to :

Ebony, 4 yrs -- asd, ADHD, bi-polar

, 1 year

wife to:

Terry, love of my life

__________________________________________________

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Guest guest

Hi Jennie,

I'm Tuna (aka Louise) married to Doug and SAHM to (7, ASD) and

(3, NT).

We're in Alberta.

Welcome to the list, I'm sure you'll like it here.

Tuna :)

hi

hi everyone,

Just thougt I would introduce myself. My name is jennie I am married

to alan and we live in uk. We have 2 kids Finlay who is 3.5yrs and

is autisitc and Stefan 2yrs who is awaitng dx for autism. Sure we'll

have lots to talk about.

jennie

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Guest guest

Nice to meet you. I am Jacquie H*(so not to be confused with out

group leader Jacquie). Married to Jeff, we live in Northern

California. We have 2 boys and 1 baby due in july. Greggory is yrs

and HF autistic and Alec is 4 yrs autistic, BiPolar, and adhd.

Jacquie H

> hi everyone,

> Just thougt I would introduce myself. My name is jennie I am

married

> to alan and we live in uk. We have 2 kids Finlay who is 3.5yrs and

> is autisitc and Stefan 2yrs who is awaitng dx for autism. Sure

we'll

> have lots to talk about.

> jennie

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Guest guest

> hi everyone,

> Just thougt I would introduce myself. My name is jennie I am

married

> to alan and we live in uk. We have 2 kids Finlay who is 3.5yrs and

> is autisitc and Stefan 2yrs who is awaitng dx for autism. Sure

we'll

> have lots to talk about.

> jennie

Welcome Jennie. I am n, s mom. We live in Germany.

is 8 and a hand full right now.

Take care.

n

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Guest guest

Welcome Jennie!

I'm behind in reading and posting, but just wanted to say " Hello! "

Penny

hi

hi everyone,

Just thougt I would introduce myself. My name is jennie I am married

to alan and we live in uk. We have 2 kids Finlay who is 3.5yrs and

is autisitc and Stefan 2yrs who is awaitng dx for autism. Sure we'll

have lots to talk about.

jennie

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  • 4 months later...

Kia,

Glad to hear your not unsubscribing!

Wanda

On Tue, 3 Sep 2002 22:25:20 EDT kiakids921@... writes:

> Hi everyone, I am not going to unsubscribe. I am just so defeated

> cause I

> don't have the money for the TR. I want so much after the ordeal

> that I went

> through last month is to get this done and over with. I can't take

> to much

> more of this honest I can't. Kia

>

>

>

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Kia

i'm glad that you aren't leaving the group. It will

happen and the $ will come.

--- kiakids921@... wrote:

> Hi everyone, I am not going to unsubscribe. I am

> just so defeated cause I

> don't have the money for the TR. I want so much

> after the ordeal that I went

> through last month is to get this done and over

> with. I can't take to much

> more of this honest I can't. Kia

>

>

> [Non-text portions of this message have been

> removed]

>

>

__________________________________________________

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Hi, Kia.

I am so glad you are staying. :-) WE ALL would have really missed you if you

left. Hang there sweetie.

Lot's of Love,

Donna Lay - Florida

---------------------------------

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  • 5 years later...

PROKARIN?

Subject: Hi

I would first like to express my thanks at being a part of the group. A little

about me. I was diagnosed with MS in July 2005. I was going through a separation

and divorce at the time and had just started a new career and new job as an ER

nurse.

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Kerri,

I feel for you and hug you .....:-)

As you I was diagnosed and had no symptoms. I knew nothing about MS, and my

doctor knew even less. She had the balls to call me in the evening and

advise me that I had MS from the MRI that I had done a week or so before.

When I asked her what this meant she had no idea.

So I did some reading. I will suggest that you read the books my Montel

. They are informative as well as inpsiring.

Being as I never did have an attack prior to being diagnosed, I had no idea

what to expect and the docs that I was seeing could also not tell me what to

look for.

On the night of my 41st birthday I had my first attack. I thought that it

was just a nasty head ache, but I soon learned that it was not. The pain

was so intense that it felt like someone had a needle stuck through my eye

to the back of my head. It hurt so much that I was moaning and groaning in

my sleep. When I finally got out of bed, I threw-up from the pain. It was

nasty. I even then thought nothing of it. I still thought that it was

head ache. I took a couple of Tylenol and hit the sofa to try and fall back

asleep as I did not wanna keep my spouse up all night....when he got up to

go to work in the morning I realized that I had fallen asleep through the

night. The pain was gone but I was not feeling too good. I then noticed

that my face, lips and tongue were numb. Yep I had an attack. I went to

the Emergency and sat there for 6 hours. Then I met a wonderful doctor who

specializes in MS patients. He put me on Prednizone...4 doses (one dose for

4 consecutive days) by intervenous. I seemed to bounce back quite quickly

but did notice that I had some very dizzy spells. We call them MS Moments

in our house.

I was then on the road to recovery until July, when I had another attack. I

was walking through walmart on a sunday afternoon and knew that something

was going on because I was having issues with my right leg, and sure enough

I was having another attack. This one effected the whole right side of my

body, but this time there was no headache like the time before. My gate was

gone. As I was on holidays I rested a lot and decided to not go to the

lake. Instead I stayed home and rested and rested. There were days that I

did not get out of bed to do anything. Once again my doc put me on

Prednizone. I love that stuff as it sure helps in getting me back on my

feet. When I was sick in July I was having serious issues walking and had

fallen a few times, so I needed the aid of a cane. I hate the damn thing

but it does help some times.

I have found that when I consume products with Nutri sweet or Splenda that

it does effect how I feel. So I avaoid them all together. It is better to

have a glass of nomal coke or pepsi. The only symptoms that I have today is

the left side of my torso and leg are hypersensitive. Being as I did not

feel well enough to shower in the mornings as I thought I would fall over, I

figure I am doing ok. I KNOW that stress plays a big part of it. A HUGE

part. I think that the reason I had my attack in July is because I bought a

new car, and was freaked out to have payments....crazy huh?????

As times goes on you are going to have to rely on your hubby for support. I

know my hubby drinks too much also so I can relate. I grew up with

alcoholics an I prefer not to drink to a stupor. My grandfather died in an

accident because of it so I hate it.

My thought is always: I have MS, but it don't got me!!!!!!!! (Think

postitive and good things will come of it!!)

As I am new to this group also I thought that I might lend a bit of history

and advice to you.

1. Eat healthy. It is not always easy and I wish I could always practice

what I preach.

2. If you are over weight loose some weight...and again with this I wish I

could and would practice what I preach.

3. Have YOU time...even if it is in bed reading. Save some time out of

each day for you.

4. Meditate: Trust me it does the body good.

5. Take care of yourself, cuz no one else will. Your body is your temple

and treat it as such. Lather some lotion on yourself after a nice warm

bath, you deserve it!!!!!

6. No matter how bad it gets, you will get better.

7. If you need someone to dump on ......send me an email....:-)

Hope that all of this helps.........................my birthday is less than

a month away so I am wondering what to expect this year!!!

Your friend with MS,

Hi

I would first like to express my thanks at being a part of the group. A

little about me. I was diagnosed with MS in July 2005. I was going through a

separation and divorce at the time and had just started a new career and new

job as an ER nurse. I wasn't sure how this diagnosis would affect me. I was

immediately put on Rebif injections and thankfully have not has a relapse

since I got out of the hospital. I was always an active person, and I still

am. I think that is one of my problems, I don't know when to stop. Luckily I

learned and at least changed my job. I quit working in the ER and went to

work for a home health agency. I am now a case manager and work in the

office except for the one weekend every other month I have to work on call

and go out. I haven't been sick as much since. The first year when I was in

the ER I had bronchitis 9 times and pneumonia 5, strep 3 and viral gastritis

once, and that was from October to January.

I have since gotten remarried, I was talking to someone when I went into the

hospital and our first face to face meeting was in the hospital when he came

to see me. I guess what is hardest for me is I have lived in a little bit of

denial. I know I have MS but I haven't taken it as seriously as I should

have. I am 35 and feel fine except for getting dizzy going up stairs. And

now I am a little scared. I feel ok but I am worried because my husband is

an alcoholic and I wonder what is going to happen when he kills his liver or

what will happen the day I have a relapse and pass out at home and he can't

do anything because he is passed out.

Again I want to thank everyone for the warm welcomes and wishes. And I want

to return those warm wishes.

Kerri

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  • 4 weeks later...

Amit,

My understanding is that brown rice and quinoa are OK. Also, if you are

able to buy wheat and gluten free bread where you live. It doesn't

taste very good though.

Check out the Multiple Sclerosis Resource Center website and links to

the Best Bet Diet, which will go into more detail.

Here is a link to it:

http://www.ms-diet.net/msdiet/faq/index.php#nonglutenlist

>

> HI EVERYONE

> I AM ON LDN 4.5 MG .

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  • 4 months later...
Guest guest

SORRY! I too have MS but it doesn't have me! Here is a Web site that I go to

which is good for all of us  in the world of Multiple Sclerosis --

www.patientslikeme.com ...  there are a number of people suffering also to

communicate our problems with  at this site, they love to hear from everybody

about MS and you don't have to be able to type correctly, everybody in the Web

site has MS so spelling and typing aren't on the top of our lists. Please pass

it on to other sufferers and their caregivers, it is free and the more the

better!

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