Guest guest Posted October 16, 2001 Report Share Posted October 16, 2001 Hi Kristi, I'm not Li, but... I did take Lupron (4 injections worth) prior to my myomectomy on 10/4. The smaller fibroids shrunk to a more manageable size (they were about 13 cm to start with and shrunk to 7.1 x 6.5 cm and 10.8 x 11 cm). My big one, 18 cm was not affected by the Lupron at all. The doctor said that sometimes they get too big for the Lupron to have any real significant impact. He had no trouble removing all of the fibroids and is confident that he removed all of it. My fibroids were all subserosal. I went in today because I've been running a low grade fever non- stop. It hasn't gone over 100 since Saturday but today was up to 99.9. The doctor did some tests but said that my incision is healing fine and all looks normal. He said that it doesn't surprise him that I'm running a low grade fever due to the size of my fibroids. What also surprised me was that he said I can start trying to get pregnant in 6 more weeks -- that is about 8 weeks. He also said I can start having sex again in 2 more weeks, but I told him that I would tell my husband that he said 4 more weeks (I was just joking around, but I don't really want to think about sex just yet)! If you want a baby, I definitely would go with a myomectomy and not UAE. UAE does not have any studies on succesful pregnancy rates as far as I know. I have done a lot of research and was very confident with the myomectomy decision. Best of luck! > > Hi, Glad you are doing so well post-myo! > > > > I am at 3 weeks today, and said early yesterday as I > > was gallivanting around > > that I was 93% back to normal. Well, by 9 PM I was > > back at 50% for a few > > hours. Way over did it. > > > > I was perfectly good for a week or so, but take it > > easier than you think! > > > > Remember how nervous you were? (Me too!) Well, > > tell more so others with > > surgery planned can feel better. > > > > If there are folks who have had UAE vs. abdominal > > Myos, it would be > > interesting to compare experiences. > > > > > > Gay Courter > > gay@g... > > > > > > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 16, 2001 Report Share Posted October 16, 2001 I also want a baby in the future and that is why I chose myo. I believe myo is safter and more predicatible than UAE. I also do not feel like to leave anything in my body. Of cause myo is more invasive, but there is really no prefect soltion for the treatment of fibroid. You just have to make the best decision according to your situation. I did not use lupron because I did not think it gave any added advantage using it! -Li > > Hi, Glad you are doing so well post-myo! > > > > I am at 3 weeks today, and said early yesterday as I > > was gallivanting around > > that I was 93% back to normal. Well, by 9 PM I was > > back at 50% for a few > > hours. Way over did it. > > > > I was perfectly good for a week or so, but take it > > easier than you think! > > > > Remember how nervous you were? (Me too!) Well, > > tell more so others with > > surgery planned can feel better. > > > > If there are folks who have had UAE vs. abdominal > > Myos, it would be > > interesting to compare experiences. > > > > > > Gay Courter > > gay@g... > > > > > > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 17, 2001 Report Share Posted October 17, 2001 So your Dr. did not say that he HAD to shrink the fibroid w/ Lupron? My Dr. said the surgery will go better if they shrink it. There will be less bleeding and less complications. I guess also less damage to my uterus. It does make sense but I don't want to take Lupron either. I need to find out from her tonight if I have anymore smaller fibroids. I had an ultrasound and MRI so I am thinking they should be able to tell me this information. --- lizhang20@... wrote: > I also want a baby in the future and that is why I > chose myo. I > believe myo is safter and more predicatible than > UAE. I also do not > feel like to leave anything in my body. Of cause > myo is more > invasive, but there is really no prefect soltion for > the treatment of > fibroid. You just have to make the best decision > according to your > situation. > > I did not use lupron because I did not think it gave > any added > advantage using it! > > -Li > > > > Hi, Glad you are doing so well post-myo! > > > > > > I am at 3 weeks today, and said early yesterday > as I > > > was gallivanting around > > > that I was 93% back to normal. Well, by 9 PM I > was > > > back at 50% for a few > > > hours. Way over did it. > > > > > > I was perfectly good for a week or so, but take > it > > > easier than you think! > > > > > > Remember how nervous you were? (Me too!) Well, > > > tell more so others with > > > surgery planned can feel better. > > > > > > If there are folks who have had UAE vs. > abdominal > > > Myos, it would be > > > interesting to compare experiences. > > > > > > > > > Gay Courter > > > gay@g... > > > > > > > > > > > > __________________________________________________ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 17, 2001 Report Share Posted October 17, 2001 Yes, he did! I was actually astonished and he explained how very tiny the sac is at the beginning of a pregnancy in relation to the size of the uterus. He's a fertility specialist / reproductive endocrinologist so I'm sure he knows what he's talking about. Still, I'll feel more comfortable letting my body heal for 6 months or so. Plus I need to mentally prepare myself to go back in and basically have another myomectomy again (c-section). I guess the fever is common. I was just a little worried since I've had one non-stop for almost two weeks now (two weeks tomorrow). I am feeling a lot more mobile now. > > > Hi, Glad you are doing so well post-myo! > > > > > > I am at 3 weeks today, and said early yesterday as I > > > was gallivanting around > > > that I was 93% back to normal. Well, by 9 PM I was > > > back at 50% for a few > > > hours. Way over did it. > > > > > > I was perfectly good for a week or so, but take it > > > easier than you think! > > > > > > Remember how nervous you were? (Me too!) Well, > > > tell more so others with > > > surgery planned can feel better. > > > > > > If there are folks who have had UAE vs. abdominal > > > Myos, it would be > > > interesting to compare experiences. > > > > > > > > > Gay Courter > > > gay@g... > > > > > > > > > > > > __________________________________________________ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 17, 2001 Report Share Posted October 17, 2001 If you ever visit Dr. Berger's INCIID web site, he also tells his patients 8 weeks. Maybe it just depends on the surgeon and their suturing techniques. > > > > Hi, Glad you are doing so well post-myo! > > > > > > > > I am at 3 weeks today, and said early > > yesterday as I > > > > was gallivanting around > > > > that I was 93% back to normal. Well, by 9 PM > > I was > > > > back at 50% for a few > > > > hours. Way over did it. > > > > > > > > I was perfectly good for a week or so, but > > take it > > > > easier than you think! > > > > > > > > Remember how nervous you were? (Me too!) > > Well, > > > > tell more so others with > > > > surgery planned can feel better. > > > > > > > > If there are folks who have had UAE vs. > > abdominal > > > > Myos, it would be > > > > interesting to compare experiences. > > > > > > > > > > > > Gay Courter > > > > gay@g... > > > > > > > > > > > > > > > > > > > __________________________________________________ > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 17, 2001 Report Share Posted October 17, 2001 Hi Kristi, His main reason for me taking the Lupron was to reduce blood loss during surgery. I have pictures of my fibroids and two appear to be white because the Lupron did their job on them and cut off their blood supply. The big one is red because the Lupron could not do it's magic on it due to its size. I did bank two units of my blood and I did need them both transfused back in me due to the big one (18 cm). The doctor said that one caused a tremendous amount of blood loss. He also said that my previous OBGYN never should have let them get so big and never should have prescribed bc pills for me. Anyway, I'm glad that the Lupron worked on two of the three fibroids, otherwise I would have required additional blood from the general population and I only wanted my blood back. I had some side effects from the injections, but nothing intolerable. I had one night the first month where I woke up drenched in sweat. I had about 6 hot flashes, 12 hot flushes, some headaches (usually two weeks after the injection I noticed my symptoms to increase). The worst side effect was insomnia for me. I am in CA but I'm sure you'll find some great surgeons out in your area. I would start out looking for reproductive endocrinologists and go from there. Check out this list I found in Pennsylvania for you. You should check them out even if it says their specialty is IVF or other assisted reproductive technologies because that's what my doctor's bio says and does not mention he is a highly skilled myomectomy surgeon. http://www.inciid.org/pennsylvania.html I'm sure you will find a skilled surgeon and this will be behind you soon. Someone on this board said that the worrying is the worst part of the entire ordeal and that is so true. When you find the surgeon for you, just be confident with your decision and trust that they will do the right thing. Best of luck! Let me know if you have any other questions. > > > > Hi, Glad you are doing so well post-myo! > > > > > > > > I am at 3 weeks today, and said early yesterday > > as I > > > > was gallivanting around > > > > that I was 93% back to normal. Well, by 9 PM I > > was > > > > back at 50% for a few > > > > hours. Way over did it. > > > > > > > > I was perfectly good for a week or so, but take > > it > > > > easier than you think! > > > > > > > > Remember how nervous you were? (Me too!) Well, > > > > tell more so others with > > > > surgery planned can feel better. > > > > > > > > If there are folks who have had UAE vs. > > abdominal > > > > Myos, it would be > > > > interesting to compare experiences. > > > > > > > > > > > > Gay Courter > > > > gay@g... > > > > > > > > > > > > > > > > > __________________________________________________ > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 17, 2001 Report Share Posted October 17, 2001 Unfortunately, sometime the doctors will not be able to know if you have tiny ones. I had MRI too. But the two tiny ones: 1 and 0.5 cms were not showing up in the MRI for some reasons. BTW, I do not have much bleeding during the surgery or any complications. I really think the side effects caused by lupron is weighed more than what it actually worths. A lot of times it will not shrink your fibroid that much any way. For a surgery like this size of fibroid is not going to make that much difference. -Li > > > > Hi, Glad you are doing so well post-myo! > > > > > > > > I am at 3 weeks today, and said early yesterday > > as I > > > > was gallivanting around > > > > that I was 93% back to normal. Well, by 9 PM I > > was > > > > back at 50% for a few > > > > hours. Way over did it. > > > > > > > > I was perfectly good for a week or so, but take > > it > > > > easier than you think! > > > > > > > > Remember how nervous you were? (Me too!) Well, > > > > tell more so others with > > > > surgery planned can feel better. > > > > > > > > If there are folks who have had UAE vs. > > abdominal > > > > Myos, it would be > > > > interesting to compare experiences. > > > > > > > > > > > > Gay Courter > > > > gay@g... > > > > > > > > > > > > > > > > > __________________________________________________ > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 17, 2001 Report Share Posted October 17, 2001 are you completely knocked out when they do the myomectomy? Not awake like w/ c section right? --- samanthap1970@... wrote: > Yes, he did! I was actually astonished and he > explained how very > tiny the sac is at the beginning of a pregnancy in > relation to the > size of the uterus. He's a fertility specialist / > reproductive > endocrinologist so I'm sure he knows what he's > talking about. Still, > I'll feel more comfortable letting my body heal for > 6 months or so. > Plus I need to mentally prepare myself to go back in > and basically > have another myomectomy again (c-section). > > I guess the fever is common. I was just a little > worried since I've > had one non-stop for almost two weeks now (two weeks > tomorrow). I am > feeling a lot more mobile now. > > > > > > Hi, Glad you are doing so well post-myo! > > > > > > > > I am at 3 weeks today, and said early > yesterday as I > > > > was gallivanting around > > > > that I was 93% back to normal. Well, by 9 > PM I was > > > > back at 50% for a few > > > > hours. Way over did it. > > > > > > > > I was perfectly good for a week or so, but > take it > > > > easier than you think! > > > > > > > > Remember how nervous you were? (Me too!) > Well, > > > > tell more so others with > > > > surgery planned can feel better. > > > > > > > > If there are folks who have had UAE vs. > abdominal > > > > Myos, it would be > > > > interesting to compare experiences. > > > > > > > > > > > > Gay Courter > > > > gay@g... > > > > > > > > > > > > > > > > > > __________________________________________________ > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 17, 2001 Report Share Posted October 17, 2001 Hi Kristi I took the 3 month Lupron shot on Aug 27th I had my 1st side effect experience about 3 weeks later I started experiencing hot flashes. They weren't that bad. Just happy to have my period stop Re: Re: For LI > Hi : > > Thank you so much for your input. Had you had any > side effects from the Lupron shots? I am not sure > exactly how many fibroids I have. I have only been > told about ONE big one... 11cm. Which compared to > your 18cm seems small now. Are you in PA by any > chance? I am trying to find a surgeon I feel > comfortable enough w/ to let him/her remove the > fibroid(s) now instead of shrinking them and dealing > w/ Lupron for 6 months. I want it out NOW! I am not > sure where subsersol fibroids are located? I will > have to find a chart on the net. I have an > intramural one which as you probably know means it's > in the wall. I hate that! I was hoping it would not > be in the wall. My uterus is 19in instead of 8 like > it should be. I am glad to hear all went well w/ your > myo. I am also glad that he said you can start to get > pregnant so soon. I am so worried about having a > baby. Nothing else matters right now. It's consuming > me. My husband said he is fine w/ it either way... he > is 1 in a million! You're funny about sex. My desire > right now is pretty pathetic so I am hoping that does > improve. I am doing the Lupron and as you know... no > birth control pills are allowed. I am not a condom > lover by any means!! ha! Well it was nice chatting w/ > you and if you are from PA, please let me know who > your dr. is. > > Thanks, Kristi > > > --- samanthap1970@... wrote: > > Hi Kristi, > > > > I'm not Li, but... I did take Lupron (4 injections > > worth) prior to > > my myomectomy on 10/4. The smaller fibroids shrunk > > to a more > > manageable size (they were about 13 cm to start with > > and shrunk to > > 7.1 x 6.5 cm and 10.8 x 11 cm). My big one, 18 cm > > was not affected > > by the Lupron at all. The doctor said that > > sometimes they get too > > big for the Lupron to have any real significant > > impact. He had no > > trouble removing all of the fibroids and is > > confident that he removed > > all of it. My fibroids were all subserosal. > > > > I went in today because I've been running a low > > grade fever non- > > stop. It hasn't gone over 100 since Saturday but > > today was up to > > 99.9. The doctor did some tests but said that my > > incision is healing > > fine and all looks normal. He said that it doesn't > > surprise him that > > I'm running a low grade fever due to the size of my > > fibroids. What > > also surprised me was that he said I can start > > trying to get pregnant > > in 6 more weeks -- that is about 8 weeks. He also > > said I can start > > having sex again in 2 more weeks, but I told him > > that I would tell my > > husband that he said 4 more weeks (I was just joking > > around, but I > > don't really want to think about sex just yet)! > > > > If you want a baby, I definitely would go with a > > myomectomy and not > > UAE. UAE does not have any studies on succesful > > pregnancy rates as > > far as I know. I have done a lot of research and > > was very confident > > with the myomectomy decision. > > > > Best of luck! > > > > > > > > > > Hi, Glad you are doing so well post-myo! > > > > > > > > I am at 3 weeks today, and said early yesterday > > as I > > > > was gallivanting around > > > > that I was 93% back to normal. Well, by 9 PM I > > was > > > > back at 50% for a few > > > > hours. Way over did it. > > > > > > > > I was perfectly good for a week or so, but take > > it > > > > easier than you think! > > > > > > > > Remember how nervous you were? (Me too!) Well, > > > > tell more so others with > > > > surgery planned can feel better. > > > > > > > > If there are folks who have had UAE vs. > > abdominal > > > > Myos, it would be > > > > interesting to compare experiences. > > > > > > > > > > > > Gay Courter > > > > gay@g... > > > > > > > > > > > > > > > > > __________________________________________________ > > > Quote Link to comment Share on other sites More sharing options...
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