Re: Debgena

[Guest guest]

Hi Deb,

How are you? I read your post about the neuroma and think that is part

of what is happening with my leg. When my doc severed the sural nerve

just below mid calf he buried it in the muscle and every now and then it

causes severe spasms and gets really irritated. Maybe it is that the

nerve gets irritated and then the spasms start, either way it is very

painful. My doc said he could go in and bury the nerve in the bone and

this wouldn't happen but it's not that bad yet to warrant yet another

surgery. I am really hoping the new doc I am seeing will be able to

help me. He doesn't view me as a psycho and gives me the feeling that he

really believes me. There is a glimmer of hope in all this after all! I

will be sure to let you know what is happening and which meds he

prescribes for what, etc. I am looking forward to getting rid of these

headaches and feeling better overall. I know that just getting back into

my own place will help a lot. Take care, Debbie/DJ

________________________________________________________________

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[Guest guest]

Thanks for the thought of me at this time. I am not doing OK but I am still here. is doing OK as far as I know. She had a BIG Christmas with her kids this morning. I will be OK as long as I am surpose to be here. Until then I will sleep. I hope you and yours are all doing OK and had a BIG Christmas.I sure hope your pain is low and will go down more everyday. Love to you Debgena and take good care of yourself.You are worth a million to all on this list and to your family I'm sure. Always love yourself and may God look after you and yours. Thanks for writing and thinking of me at this time. your friend cookie

CookieHi Cookie, I don't know why you are in my thoughts so much right now. Is everything okay with you. Stupid question, but you know what I mean. I wish you and a Happy Holiday!! Hugs and a pain free minute, (((((((((__Deb____)))))))))))))

[Guest guest]

Talking about making you think and putting the WHOLE story in a nut shell.

Some body sure did all this. Thank you so much Debgena. I guess this got

more of my attention than anything in a long time. Thank you again for

sending this though. Hope you are having a low pain day. Take care. love

to you your friend cookie

Mystery Flu, This was sent to me by a Good Friend ,

It'll make you think

I Hope Everyone finds something it this, Kinda Hits Home.

Gentle Hugs!!!!

LiL in Penna

The day is over, you are driving home. You tune in your radio.

You hear a little blurb about a little village in India where some

villagers have died suddenly, strangely, of a flu that has never

been seen before. Its not influenza, but three of four people

are dead, and its kind of interesting, and they are sending some

doctors over there to investigate it.

You don't think much about it, but on Sunday, coming home from

church, you hear another radio spot. Only they say its not three

villagers, its 30,000 villagers in the back hills of this particular

area of India, and it's on TV that night. CNN runs a little blurb;

people are heading there from the disease center in Atlanta because

this disease strain has never been seen before.

By Monday morning when you get up, its the lead story. For its not

just India; its Pakistan, Afghanistan, Iran and before you know it,

you're hearing this story everywhere and they have coined it " the

mystery flu. "

The President has made some comment that he and everyone are praying

and hoping that all will go well over there. But everyone is wondering,

How are we going to contain it? That's when the President of France

makes an announcement that shocks Europe. He is closing their borders.

No flights from India, Pakistan or any of the countries where this thing

has been seen.

And that's why that night you are watching a little bit of CNN before

going to bed. Your jaw hits your chest when a weeping woman is translated

from a French news program into English; There's a man lying in a hospital

in Paris dying of the mystery flu.

It has come to Europe. Panic strikes. As best they can tell, once you get it

you have it for a week before you know it. Then you have four days of

unbelievable symptoms. And then you die.

Britain closes its borders, but its too late. South Hampton, Liverpool,

North Hampton and its Tuesday morning when the President of the United

States makes the following announcement: " Due to a national security risk,

all flights to and from Europe and Asia have been canceled. If your loved

ones are overseas, I'm sorry. They cannot come back until we find a cure

for this thing. "

Within four days our nation has been plunged into an unbelievable fear.

People are talking about " What if it comes to this country " ? And preachers

on Tuesday are saying Its the scourge of God. It's Wednesday night and you

are at a church prayer meeting when somebody runs in from the parking lot

and says, " Turn on a radio, turn on a radio! "

And while the church listens to a little transistor radio with a microphone

stuck up to it, the announcement is made.

Two women are lying in a Long Island hospital dying from the mystery flu.

Within hours it seems, this thing just sweeps across the country. People are

working around the clock trying to find an antidote. Nothing is working.

California, Oregon, Arizona, Florida, Massachusetts. It's as though it's

just sweeping in from the borders.

And then all of a sudden the news comes out.

The code has been broken. A cure can be found. A vaccine can be made. Its

going to take the blood of somebody who hasn't been infected and so, sure

enough, all through the Midwest, through all those channels of emergency

broadcasting, everyone is asked to do one simple thing: Go to your downtown

hospital and have your blood type taken. That's all we ask of you.

When you hear the sirens go off in your neighborhood, please make your way

quickly, quietly and safely, to the hospitals.

Sure enough, when you and your family get down there late on that Friday

night, there is a long line and they've got nurses and doctors coming out

and

pricking fingers and taking blood and putting labels on it. Your wife and

your

kids are out there, and they take your blood type and they say, " Wait here

in

the parking lot and if we call your name you can be dismissed and go home. "

You stand around, scared, with your neighbors, wondering what in the world

is going on and if this is the end of the world. Suddenly a young man comes

running out of the hospital screaming. He's yelling a name and waving a

clipboard.

What? He yells it again! And your son tugs on your jacket and says, " Daddy,

that's me. " Before you know it, they have grabbed your boy. " Wait a minute.

Hold on! "

And they say, " Its okay, his blood is clean. His blood is pure. We want to

make sure he doesn't have the disease. We think he has got the right type. "

Five tense minutes later, out come the doctors and nurses crying and hugging

one another - some are even laughing. Its the first time you have seen

anybody

laugh in a week, and an old doctor walks up to you and says, " Thank you sir.

Your

son's blood type is perfect. It's clean, it is pure, and we can make the

vaccine. "

As the word begins to spread all across that parking lot full of folks,

people

are screaming and praying and laughing and crying. But then the gray-haired

doctor pulls you and your wife aside and says, " May we see you for a moment?

We

didn't realize that the donor would be a minor and we need.....we need you

to

sign a

consent form. "

You begin to sign and then you see that the number of pints of blood to be

taken is

empty. " H-h-h-ow many pints? " you ask.

And that is when the old doctor's smile fades. We had no idea it would be a

little child. We weren't prepared. We need it all! "

" But- but... I don't understand. He's my only son! "

We are talking about the world here. Please sign. We... we need it all! "

" But can't you give him a transfusion? "

" If we had clean blood we would. Please, will you please sign? "

In numb silence, you do. Then they say, " Would you like to have moment with

him

before we begin? "

Could you walk back? Could you walk back to that room where he sits on a

table

saying, " Daddy? Mommy? What's going on? "

Could you take his hands and say, " Son, your mommy and I love you and we

would

never ever let anything happen to you that didn't just have to be.

Do you understand that? "

And when that old doctor comes back in and says, " I'm sorry, we've got to

get

started. People all over the world are dying. "

Could you leave? Could you walk out while he is saying, " Dad? Mom? Dad?

Why... why have you forsaken me? "

And then next week, when they have the ceremony to honor your son, and some

folks

sleep through it, and some folks don't even bother to come because they have

better

things to do, and some folks come with a pretentious smile and just pretend

to care.

Would you want to jump up and say, " EXCUSE ME! MY SON DIED FOR YOU!

DON'T YOU EVEN CARE? DOES IT MEAN NOTHING TO YOU? "

I wonder, is that what God wants to say? " MY SON DIED FOR YOU! DOES IT MEAN

NOTHING? DON'T YOU KNOW HOW MUCH I CARE? "

Father, seeing it from Your eyes should break our hearts. Maybe now we can

begin to comprehend the great love You have for us. So that's the gospel in

a nutshell. Now you can either spread the gospel...or delete it.

[Guest guest]

Thanks for just being you Debgena. Hope this finds you with a low pain day.

We will make it some how. Hum your friend cookie

Re: ( I WILL) (I will to)

>

>

[Guest guest]

I know, I don't return mail very well at times.I just go up and down,like

everyone else.I wish I did retain,that was wishful thinking.I do take

Carbamazepine Ta now, instead of Neurontin.I don't know if it helps or not.

I can't seem to be able to tell what helps and what doesn't,except Methadone

and oxycodone.I have never heard of Ridalin. If you do decide to take it, I

hope it helps you.Abut Jo, I have and never will be jealous of Jo, I am

proud of her in so many ways.No, I did not know she walked for Aids,but I do

think that is great and a wonderful project to walk for.Jo is one of those

few good and loving people I are proud to know.As you are

Debgena.- - - - -,this took so long in getting back to you.I just don't get

on here much anymore.I really don't know why.I think it may be,because I

have to deal with it and if I exnore things then you know how you can

say,It's not really happening.I know that is not a good sign, but it is

where I am at right now.Please continually to take care of yourself and

remember I love you. your friend cookie

Re: Re: Cookie

In a message dated 6/5/01 4:11:34 AM Eastern Daylight Time, dogs2@...

writes:

>

> to be able to live without meds. Times I have, but now has not been one of

> those times.I have had alot of pressures in my life,things I can change,

> just haven't yet.I know, I know, I will in time.I am so glad you can read

> and fell like you retain again.

>

Cookie,

Please you are no less a person because you take more meds than someone

else.

You sound like me! I hate not being in control.

Jo IS lucky all she needs to take is the pain meds. I still take the

neurontin, that is what makes me unable to retain what I read.

I guess since it is the only difference between what Jo and I take for meds.

It has to be the culprit.

I was thinking about starting some ridalin. I wonder, does anyone have any

documentation that it helps with RSD pain and other symptoms? I thought I

read it somewhere......

Just because you have to take something other than pain meds. Don't be

jealous of Jo. She is stubborn. I still love her though! She just walked the

aids walk, did you know that? I am proud of her yet I want to ring her neck

sometimes! LOL

Something else you said was.......Things I need to change or except, I

haven't--yet--and the things I do not want to change seems to be making me

change any way..........

This sounds like a backwards serenity prayer.

Ask to be granted the power to accept the things you cannot change and the

courage to change the things you can, because you have the wisdom to know

the

difference.

Please, you and I have been friends for a long time and you know this list

is

to rant and rave! Don't EVER feel like we will moan and call you a pain in

the neck. So keep it coming gf.

It sucks Cookie, but J. Fox said something last night

" if it hurts, the good news is your alive'

Just don't beat yourself up because you take one more pill than someone else

does.

Hugs and a pain free minute,

Deb

Debgena@...

" Hope is a thing with feathers that perches in the soul "

Listowner rsd-crps

Deb Genatossio

Massachusetts Charter Director and

Planning Director for American Society for RSD/CRPS (ASRSD/CRPS)

PO Box 1397, Abingdon, MD 21009

Toll Free Hotline: 1-866-OUR-PAIN

Main Office: (office hours: Mon, Wed, Fri 10 AM to 3PM)

online membership: ASRSD_CRPS

http://www.americansocietyforrsd-crps.org

http://americansocietyforrsd-crps.org/societypages/handbook.html

[Guest guest]

I am so sorry to hear about your rearender.I hope they don't find any

fractures or any damange of any sort, that is all you need. I have been off

here for so long,but I do still read sometimes. I am doing better with my

right hand and arm but other problems as usually with RSD.This monster is

determine to kill me BUT I will not let it.(HA)I am a fighter like you,and

others here, this monster only thinks it's in charge.It just doesn't know

who it is dealing with.(LOL)We are 1 big group that knows how to

FIGHT!!!!!!!!!I have about decided it is the devil,but we have GOD on our

side, and we together as a BIG loving group and along with GOD will

WIN!!!!!!!!!I know this is only words to say,but,hang in there and be

tuff.RSD has already showed how tuff of a lady you can be.The rest is baby

steps for us.Even though at times it sure doesn't feel like baby steps,does

it?Well, just stopped in to say hi and hope you feel better real soon.

your friend cookie

[Guest guest]

If it helps any of you in any way, my boyfriend told me that they will be

calling most if the people who have already served and been discharged before

they form a draft. He isn't too happy knowing he may have to go to war, but

my dad said they doubtfully will go through all the reserves.

[Guest guest]

Deb,

this is (cookie roommate) My oldest son just turn 18 on May 9th (4

months later this happens). He had to go to the post office and send in the

draft card before he could enroll in college. I have been a basket case. I

think sending my baby off to fight a war would be one of the hardest things

I could ever do. Makes you look back and really feel for all the mothers

that have gone before us.

Re: New Stars In The Sky

I fear for my son

he will soon be of age to defend our wonderful country

I am afraid, for all the mothers who have

a son old enough to fight

and show that we will band together

so he can see the Stars in the Sky with his children

Hugs and a pain free minute,

Deb

Deb Genatossio (Debgena@...)

National Planning Director for ASRSD/CRPS

American Society for RSD-CRPS Assistance Center

PO Box 1397, Abingdon, MD 21009

Toll Free Hotline: 1-866-OUR-PAIN

Main Office:

online membership: ASRSD_CRPS@ yahoogroups.com

http://www.americansocietyforrsd-crps.org

Listowner RSD-CRPS

Massachusetts Charter Director ASRSD_CRPS

[Guest guest]

The college my son enrolled in said it was mandatory to register for the

draft before he would be admitted. Maybe it was just this college or this

state, but it was before the disaster.

>Oh , I too am a basket case Hun.

>Is it something that was mandatory prior to this disaster to send in your

>draft card?

>

>Hugs and a pain free minute,

>Deb

>Debgena@...

>

> " Hope is a thing with feathers that perches in the soul

>and sings the tune without words and never stops at all "

> Dickinson

>Listowner rsd-crps

>

>

>

>Deborah Genatossio

>Massachusetts Charter Director and

>Planning Director for American Society for RSD/CRPS (ASRSD/CRPS)

>PO Box 1397, Abingdon, MD 21009

>Toll Free Hotline: 1-866-OUR-PAIN

>Main Office: (office hours: Mon, Wed, Fri 10 AM to 3PM)

>online membership: ASRSD_CRPS

>http://www.americansocietyforrsd-crps.org

>http://americansocietyforrsd-crps.org/societypages/handbook.html

>

>

>

[Guest guest]

The college my son enrolled in said it was mandatory to register for the

draft before he would be admitted. Maybe it was just this college or this

state, but it was before the disaster.

>Oh , I too am a basket case Hun.

>Is it something that was mandatory prior to this disaster to send in your

>draft card?

>

>Hugs and a pain free minute,

>Deb

>Debgena@...

>

> " Hope is a thing with feathers that perches in the soul

>and sings the tune without words and never stops at all "

> Dickinson

>Listowner rsd-crps

>

>

>

>Deborah Genatossio

>Massachusetts Charter Director and

>Planning Director for American Society for RSD/CRPS (ASRSD/CRPS)

>PO Box 1397, Abingdon, MD 21009

>Toll Free Hotline: 1-866-OUR-PAIN

>Main Office: (office hours: Mon, Wed, Fri 10 AM to 3PM)

>online membership: ASRSD_CRPS

>http://www.americansocietyforrsd-crps.org

>http://americansocietyforrsd-crps.org/societypages/handbook.html

>

>

>

[Guest guest]

No it is the law & I think it's a federal one too. When you turn 18 you are

suppose to register. I know both of my kids did it at the high school they

were attending when they turned 18.

Rene'e

Re: debgena

> The college my son enrolled in said it was mandatory to register for the

> draft before he would be admitted. Maybe it was just this college or this

> state, but it was before the disaster.

>

>

>

> >Oh , I too am a basket case Hun.

> >Is it something that was mandatory prior to this disaster to send in your

> >draft card?

> >

> >Hugs and a pain free minute,

> >Deb

> >Debgena@...

> >

> > " Hope is a thing with feathers that perches in the soul

> >and sings the tune without words and never stops at all "

> > Dickinson

> >Listowner rsd-crps

> >

> >

> >

> >Deborah Genatossio

> >Massachusetts Charter Director and

> >Planning Director for American Society for RSD/CRPS (ASRSD/CRPS)

> >PO Box 1397, Abingdon, MD 21009

> >Toll Free Hotline: 1-866-OUR-PAIN

> >Main Office: (office hours: Mon, Wed, Fri 10 AM to 3PM)

> >online membership: ASRSD_CRPS

> >http://www.americansocietyforrsd-crps.org

> >http://americansocietyforrsd-crps.org/societypages/handbook.html

> >

> >

> >

[Guest guest]

No it is the law & I think it's a federal one too. When you turn 18 you are

suppose to register. I know both of my kids did it at the high school they

were attending when they turned 18.

Rene'e

Re: debgena

> The college my son enrolled in said it was mandatory to register for the

> draft before he would be admitted. Maybe it was just this college or this

> state, but it was before the disaster.

>

>

>

> >Oh , I too am a basket case Hun.

> >Is it something that was mandatory prior to this disaster to send in your

> >draft card?

> >

> >Hugs and a pain free minute,

> >Deb

> >Debgena@...

> >

> > " Hope is a thing with feathers that perches in the soul

> >and sings the tune without words and never stops at all "

> > Dickinson

> >Listowner rsd-crps

> >

> >

> >

> >Deborah Genatossio

> >Massachusetts Charter Director and

> >Planning Director for American Society for RSD/CRPS (ASRSD/CRPS)

> >PO Box 1397, Abingdon, MD 21009

> >Toll Free Hotline: 1-866-OUR-PAIN

> >Main Office: (office hours: Mon, Wed, Fri 10 AM to 3PM)

> >online membership: ASRSD_CRPS

> >http://www.americansocietyforrsd-crps.org

> >http://americansocietyforrsd-crps.org/societypages/handbook.html

> >

> >

> >