THE LIST

[Guest guest]

Research in the Year 2000!

I am going to be away from late tonight until late Wed PM.

I am copying this message to the Vulvar disorders list

I am wondering about doing something that we had not done before at Wasser which

is to do a population survey, not of our own patients, but of the world of

patients with vulvar disorders

My thought would be to work with involved members of this List to develop a

questionnaire that we could put onto the Wasser Pain Management Centre Web Site

(Not in Operation yet, but being worked upon by Manijeh) that would be a survey

I have copied you on Sandi's questionnaire.

We would need to add things such as validation etc and we need to get some

estimation of diagnosis.

Jane, many of the members of the site jumped positively at your concept of

validation as being important

They are not big on abuse having a major role.

They have come to distrust doctors and to rely on their instincts and each other

and what they can learn so you are joining a community with history

Many have seen our funding proposal and Manijeh's questionnaire

My suggestion is that you consider joining the List for a while and listen and

then participate in discussions. www.onelist.com

the vulvar disorderscommunity

I have been harping at them for a while so it would be refreshing for them to

have four interested professional women on their list who actaully know

something rather than me who knows either nothing or everything it seems

(Typical male physician)

So as usual I am not certain how it all will all work out but I think something

good will happen here for everyone

And, oh by the way, the women of this List are quite frank in their discussions

Allan