Guest guest Posted April 20, 2000 Report Share Posted April 20, 2000 , My vision has become double,blurred and things bounce off the page when reading. It is all intermittant. I had been taking salt tabs and they caused fluid on corneas. Now that it's resolved it continues although not as horrible. I'm having surgery and will let you know if it improves after. Good luck! Amy > >To: <chiariegroups> >Subject: Eye problems >Date: Thu, 20 Apr 2000 05:26:28 -0700 > >Sometimes when I wake up from sleeping, I have one eye that does not want >to >focus clearly for a few hours. I also have a hard time getting my eyes to >coordinate when looking sideways at things in the peripheral area of >vision. > >Has anyone experienced similar things? > > > > > > >_________ >NOTE: NCC refers to posts with No Chiari Content >Unsubscribe Yourself: chiari-unsubscribeegroups >Technical Help: chiari-owneregroups >WACMA Home: www.pressenter.com/~wacma >WACMA List: www.eGroups.com/group/chiari > > ______________________________________________________ Get Your Private, Free Email at http://www.hotmail.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 20, 2000 Report Share Posted April 20, 2000 , My vision has become double,blurred and things bounce off the page when reading. It is all intermittant. I had been taking salt tabs and they caused fluid on corneas. Now that it's resolved it continues although not as horrible. I'm having surgery and will let you know if it improves after. Good luck! Amy > >To: <chiariegroups> >Subject: Eye problems >Date: Thu, 20 Apr 2000 05:26:28 -0700 > >Sometimes when I wake up from sleeping, I have one eye that does not want >to >focus clearly for a few hours. I also have a hard time getting my eyes to >coordinate when looking sideways at things in the peripheral area of >vision. > >Has anyone experienced similar things? > > > > > > >_________ >NOTE: NCC refers to posts with No Chiari Content >Unsubscribe Yourself: chiari-unsubscribeegroups >Technical Help: chiari-owneregroups >WACMA Home: www.pressenter.com/~wacma >WACMA List: www.eGroups.com/group/chiari > > ______________________________________________________ Get Your Private, Free Email at http://www.hotmail.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 26, 2000 Report Share Posted April 26, 2000 Amy wrote: and things bounce off the page when reading This happens to me all the time and one of the reasons I can no longer work - in an office. Some days I cannot read a thing others I can read perhaps one page letter or a small article in the newspaper. But that is it for me, then I getlight headed and dizzy. I wear glasses , when I wake up in the morning and look from the dark bedroom into the hall that is lighter - the door is ajar - in my blurred vision I can see the door moving. Sometimes one eye is worse than the other. Anyone else experience this? What is the cause of it?? Carol - Canada not dx. MRI May 17 Eye problems >>Date: Thu, 20 Apr 2000 05:26:28 -0700 >> >>Sometimes when I wake up from sleeping, I have one eye that does not want >>to >>focus clearly for a few hours. I also have a hard time getting my eyes to >>coordinate when looking sideways at things in the peripheral area of >>vision. >> >>Has anyone experienced similar things? >> >> >> >> >> >> >>_________ >>NOTE: NCC refers to posts with No Chiari Content >>Unsubscribe Yourself: chiari-unsubscribeegroups >>Technical Help: chiari-owneregroups >>WACMA Home: www.pressenter.com/~wacma >>WACMA List: www.eGroups.com/group/chiari >> >> > >______________________________________________________ >Get Your Private, Free Email at http://www.hotmail.com > > > >_________ >NOTE: NCC refers to posts with No Chiari Content >Unsubscribe Yourself: chiari-unsubscribeegroups >Technical Help: chiari-owneregroups >WACMA Home: www.pressenter.com/~wacma >WACMA List: www.eGroups.com/group/chiari > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 26, 2000 Report Share Posted April 26, 2000 Amy wrote: and things bounce off the page when reading This happens to me all the time and one of the reasons I can no longer work - in an office. Some days I cannot read a thing others I can read perhaps one page letter or a small article in the newspaper. But that is it for me, then I getlight headed and dizzy. I wear glasses , when I wake up in the morning and look from the dark bedroom into the hall that is lighter - the door is ajar - in my blurred vision I can see the door moving. Sometimes one eye is worse than the other. Anyone else experience this? What is the cause of it?? Carol - Canada not dx. MRI May 17 Eye problems >>Date: Thu, 20 Apr 2000 05:26:28 -0700 >> >>Sometimes when I wake up from sleeping, I have one eye that does not want >>to >>focus clearly for a few hours. I also have a hard time getting my eyes to >>coordinate when looking sideways at things in the peripheral area of >>vision. >> >>Has anyone experienced similar things? >> >> >> >> >> >> >>_________ >>NOTE: NCC refers to posts with No Chiari Content >>Unsubscribe Yourself: chiari-unsubscribeegroups >>Technical Help: chiari-owneregroups >>WACMA Home: www.pressenter.com/~wacma >>WACMA List: www.eGroups.com/group/chiari >> >> > >______________________________________________________ >Get Your Private, Free Email at http://www.hotmail.com > > > >_________ >NOTE: NCC refers to posts with No Chiari Content >Unsubscribe Yourself: chiari-unsubscribeegroups >Technical Help: chiari-owneregroups >WACMA Home: www.pressenter.com/~wacma >WACMA List: www.eGroups.com/group/chiari > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 26, 2000 Report Share Posted April 26, 2000 Amy wrote: and things bounce off the page when reading This happens to me all the time and one of the reasons I can no longer work - in an office. Some days I cannot read a thing others I can read perhaps one page letter or a small article in the newspaper. But that is it for me, then I getlight headed and dizzy. I wear glasses , when I wake up in the morning and look from the dark bedroom into the hall that is lighter - the door is ajar - in my blurred vision I can see the door moving. Sometimes one eye is worse than the other. Anyone else experience this? What is the cause of it?? Carol - Canada not dx. MRI May 17 Eye problems >>Date: Thu, 20 Apr 2000 05:26:28 -0700 >> >>Sometimes when I wake up from sleeping, I have one eye that does not want >>to >>focus clearly for a few hours. I also have a hard time getting my eyes to >>coordinate when looking sideways at things in the peripheral area of >>vision. >> >>Has anyone experienced similar things? >> >> >> >> >> >> >>_________ >>NOTE: NCC refers to posts with No Chiari Content >>Unsubscribe Yourself: chiari-unsubscribeegroups >>Technical Help: chiari-owneregroups >>WACMA Home: www.pressenter.com/~wacma >>WACMA List: www.eGroups.com/group/chiari >> >> > >______________________________________________________ >Get Your Private, Free Email at http://www.hotmail.com > > > >_________ >NOTE: NCC refers to posts with No Chiari Content >Unsubscribe Yourself: chiari-unsubscribeegroups >Technical Help: chiari-owneregroups >WACMA Home: www.pressenter.com/~wacma >WACMA List: www.eGroups.com/group/chiari > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 26, 2000 Report Share Posted April 26, 2000 Amy wrote: things bounce off the page when reading I have this most of the time. And one of the reasons I had to stop working. On a good day I can read a page or small article in newspaper.(Although what I read never stays with me - I wonder why I read sometimes) Other days I cannot read anything it makes me lightheaded and dizzy. I wear glasses and when I wake up in the morning and look from the darken bedroom into the light hallway -the door is ajar- In my blurred vision the door is moving back and forth. Sometimes one eye is worse than the other. Has anyone experienced this? What causesboth problems? Carol - Canada not dx. MRI May17 Eye problems >>Date: Thu, 20 Apr 2000 05:26:28 -0700 >> >>Sometimes when I wake up from sleeping, I have one eye that does not want >>to >>focus clearly for a few hours. I also have a hard time getting my eyes to >>coordinate when looking sideways at things in the peripheral area of >>vision. >> >>Has anyone experienced similar things? >> >> >> >> >> >> >>_________ >>NOTE: NCC refers to posts with No Chiari Content >>Unsubscribe Yourself: chiari-unsubscribeegroups >>Technical Help: chiari-owneregroups >>WACMA Home: www.pressenter.com/~wacma >>WACMA List: www.eGroups.com/group/chiari >> >> > >______________________________________________________ >Get Your Private, Free Email at http://www.hotmail.com > > > >_________ >NOTE: NCC refers to posts with No Chiari Content >Unsubscribe Yourself: chiari-unsubscribeegroups >Technical Help: chiari-owneregroups >WACMA Home: www.pressenter.com/~wacma >WACMA List: www.eGroups.com/group/chiari > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 26, 2000 Report Share Posted April 26, 2000 Amy wrote: things bounce off the page when reading I have this most of the time. And one of the reasons I had to stop working. On a good day I can read a page or small article in newspaper.(Although what I read never stays with me - I wonder why I read sometimes) Other days I cannot read anything it makes me lightheaded and dizzy. I wear glasses and when I wake up in the morning and look from the darken bedroom into the light hallway -the door is ajar- In my blurred vision the door is moving back and forth. Sometimes one eye is worse than the other. Has anyone experienced this? What causesboth problems? Carol - Canada not dx. MRI May17 Eye problems >>Date: Thu, 20 Apr 2000 05:26:28 -0700 >> >>Sometimes when I wake up from sleeping, I have one eye that does not want >>to >>focus clearly for a few hours. I also have a hard time getting my eyes to >>coordinate when looking sideways at things in the peripheral area of >>vision. >> >>Has anyone experienced similar things? >> >> >> >> >> >> >>_________ >>NOTE: NCC refers to posts with No Chiari Content >>Unsubscribe Yourself: chiari-unsubscribeegroups >>Technical Help: chiari-owneregroups >>WACMA Home: www.pressenter.com/~wacma >>WACMA List: www.eGroups.com/group/chiari >> >> > >______________________________________________________ >Get Your Private, Free Email at http://www.hotmail.com > > > >_________ >NOTE: NCC refers to posts with No Chiari Content >Unsubscribe Yourself: chiari-unsubscribeegroups >Technical Help: chiari-owneregroups >WACMA Home: www.pressenter.com/~wacma >WACMA List: www.eGroups.com/group/chiari > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 26, 2000 Report Share Posted April 26, 2000 Amy wrote: things bounce off the page when reading I have this most of the time. And one of the reasons I had to stop working. On a good day I can read a page or small article in newspaper.(Although what I read never stays with me - I wonder why I read sometimes) Other days I cannot read anything it makes me lightheaded and dizzy. I wear glasses and when I wake up in the morning and look from the darken bedroom into the light hallway -the door is ajar- In my blurred vision the door is moving back and forth. Sometimes one eye is worse than the other. Has anyone experienced this? What causesboth problems? Carol - Canada not dx. MRI May17 Eye problems >>Date: Thu, 20 Apr 2000 05:26:28 -0700 >> >>Sometimes when I wake up from sleeping, I have one eye that does not want >>to >>focus clearly for a few hours. I also have a hard time getting my eyes to >>coordinate when looking sideways at things in the peripheral area of >>vision. >> >>Has anyone experienced similar things? >> >> >> >> >> >> >>_________ >>NOTE: NCC refers to posts with No Chiari Content >>Unsubscribe Yourself: chiari-unsubscribeegroups >>Technical Help: chiari-owneregroups >>WACMA Home: www.pressenter.com/~wacma >>WACMA List: www.eGroups.com/group/chiari >> >> > >______________________________________________________ >Get Your Private, Free Email at http://www.hotmail.com > > > >_________ >NOTE: NCC refers to posts with No Chiari Content >Unsubscribe Yourself: chiari-unsubscribeegroups >Technical Help: chiari-owneregroups >WACMA Home: www.pressenter.com/~wacma >WACMA List: www.eGroups.com/group/chiari > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 29, 2002 Report Share Posted August 29, 2002 Jen, why not see your primary doctor. The fact that they are watering, and you have a white discharge I wonder if its not allergy related. I have allergies myself but along with that I have the itchy eyes with a watery discharge and congestion my allergy doctor gave me drops for the eyes. Allergies effect people differently at time my eyes are dry too and burn I just use a natural eye drop which helps. Like I said go see your regular doctor first.............. Flora Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 29, 2002 Report Share Posted August 29, 2002 Jen, why not see your primary doctor. The fact that they are watering, and you have a white discharge I wonder if its not allergy related. I have allergies myself but along with that I have the itchy eyes with a watery discharge and congestion my allergy doctor gave me drops for the eyes. Allergies effect people differently at time my eyes are dry too and burn I just use a natural eye drop which helps. Like I said go see your regular doctor first.............. Flora Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 29, 2002 Report Share Posted August 29, 2002 Jen, why not see your primary doctor. The fact that they are watering, and you have a white discharge I wonder if its not allergy related. I have allergies myself but along with that I have the itchy eyes with a watery discharge and congestion my allergy doctor gave me drops for the eyes. Allergies effect people differently at time my eyes are dry too and burn I just use a natural eye drop which helps. Like I said go see your regular doctor first.............. Flora Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 29, 2002 Report Share Posted August 29, 2002 Jen, My father (who has PLS) has much difficulty similar to what you have described. He was diagnosed with Macular Degeneration (an eye disease) several years before he got his PLS diagnosis. It was just odd that his complaints seem so similar to yours. Everyday, we have to give him wet towels to put on his eyes. They seem to water and burn all the time. So it could either be the PLS or the Macular Degeneration. Maybe you should see an eye doctor for some testing. Liz y, NY Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 29, 2002 Report Share Posted August 29, 2002 Jen, My father (who has PLS) has much difficulty similar to what you have described. He was diagnosed with Macular Degeneration (an eye disease) several years before he got his PLS diagnosis. It was just odd that his complaints seem so similar to yours. Everyday, we have to give him wet towels to put on his eyes. They seem to water and burn all the time. So it could either be the PLS or the Macular Degeneration. Maybe you should see an eye doctor for some testing. Liz y, NY Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 29, 2002 Report Share Posted August 29, 2002 Jen, My father (who has PLS) has much difficulty similar to what you have described. He was diagnosed with Macular Degeneration (an eye disease) several years before he got his PLS diagnosis. It was just odd that his complaints seem so similar to yours. Everyday, we have to give him wet towels to put on his eyes. They seem to water and burn all the time. So it could either be the PLS or the Macular Degeneration. Maybe you should see an eye doctor for some testing. Liz y, NY Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 29, 2002 Report Share Posted August 29, 2002 I'm wondering if anyone else has difficulty at all with their eyes, out of all the postings I've read since I've discovered this group, it's never been mentioned as far as I know. I have been having the problem for about the last year & am not sure if it's PLS related or not, my neuro has never heard of anything similar. I've always had 20/20 vision & no eye problems at all, I was tested about two years ago and my vision then was still the same. It's kind of hard to describe it but my eyes feel sort of like they are dry & sometimes (especially when I'm tired) almost like they have a bit of sand or something in them. At the same time, they often water alot and I'm constantly wiping the outer edges because of this; because of this the outer skin becomes so irritated I need to put cream on it to help it heal. In the mornings I usually always have some white discharge at the corners. Since this has just started since the PLS dx, I tend to think it's related. If anyone else has anything similar, could you please let me know. Take care. Jen L. _________________________________________________________________ Send and receive Hotmail on your mobile device: http://mobile.msn.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 29, 2002 Report Share Posted August 29, 2002 I can relate to the eye problems/ I have had troble for several years now so my Dr. said it was dry eyes. I use Tears 3 & 4 times a day then at night I have a cream we put in. Mine itch and kind a feel like san in them but no wateryor running. Re: Eye problems > I'm wondering if anyone else has difficulty at all with their eyes, out of > all the postings I've read since I've discovered this group, it's never been > mentioned as far as I know. I have been having the problem for about the > last year & am not sure if it's PLS related or not, my neuro has never heard > of anything similar. I've always had 20/20 vision & no eye problems at all, > I was tested about two years ago and my vision then was still the same. > It's kind of hard to describe it but my eyes feel sort of like they are dry > & sometimes (especially when I'm tired) almost like they have a bit of sand > or something in them. At the same time, they often water alot and I'm > constantly wiping the outer edges because of this; because of this the outer > skin becomes so irritated I need to put cream on it to help it heal. In the > mornings I usually always have some white discharge at the corners. Since > this has just started since the PLS dx, I tend to think it's related. If > anyone else has anything similar, could you please let me know. Take care. > > Jen L. > > _________________________________________________________________ > Send and receive Hotmail on your mobile device: http://mobile.msn.com > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 29, 2002 Report Share Posted August 29, 2002 Jen, I am having the same problem with watering and white stuff. My eyes water at work and the tears run down in the wrinkles (or fat creases) and dry leaving a crusty white residue. I just figured this was some kind of salt from the eye fluid. I try to remember to keep it wiped away as it does not look so good. I have not thought about it much or given it any worry as my vision doesn't seem to be affected. If I get up at night, my eyes seem dry, but then I sleep with a small fan blowing in my face....... Ronnie Re: Eye problems > I'm wondering if anyone else has difficulty at all with their eyes, out of > all the postings I've read since I've discovered this group, it's never been > mentioned as far as I know. I have been having the problem for about the > last year & am not sure if it's PLS related or not, my neuro has never heard > of anything similar. I've always had 20/20 vision & no eye problems at all, > I was tested about two years ago and my vision then was still the same. > It's kind of hard to describe it but my eyes feel sort of like they are dry > & sometimes (especially when I'm tired) almost like they have a bit of sand > or something in them. At the same time, they often water alot and I'm > constantly wiping the outer edges because of this; because of this the outer > skin becomes so irritated I need to put cream on it to help it heal. In the > mornings I usually always have some white discharge at the corners. Since > this has just started since the PLS dx, I tend to think it's related. If > anyone else has anything similar, could you please let me know. Take care. > > Jen L. > > _________________________________________________________________ > Send and receive Hotmail on your mobile device: http://mobile.msn.com > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 29, 2002 Report Share Posted August 29, 2002 My eyes are doing the same, dry and burn, but they also look like someone punched me at time. I'm going to see my GP regarding this and my neck on the 3rd of Sept. I was wondering the same thing, if it was related to PLS. gloria Re: Eye problems > Jen, > My father (who has PLS) has much difficulty similar to what you have > described. He was diagnosed with Macular Degeneration (an eye disease) > several years before he got his PLS diagnosis. > It was just odd that his complaints seem so similar to yours. Everyday, we > have to give him wet towels to put on his eyes. They seem to water and burn > all the time. So it could either be the PLS or the Macular Degeneration. > Maybe you should see an eye doctor for some testing. > Liz y, NY > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 29, 2002 Report Share Posted August 29, 2002 I don't have the eye problems that are being discussed. Could it be that the dry eyes are from some medications that you all have in common? I do not take Baclofen or Zanaflex nor anything else, for that matter. Dolores Re: Eye problems > > > > Jen, > > My father (who has PLS) has much difficulty similar to what you have > > described. He was diagnosed with Macular Degeneration (an eye disease) > > several years before he got his PLS diagnosis. > > It was just odd that his complaints seem so similar to yours. Everyday, > we > > have to give him wet towels to put on his eyes. They seem to water and > burn > > all the time. So it could either be the PLS or the Macular Degeneration. > > Maybe you should see an eye doctor for some testing. > > Liz y, NY > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 30, 2002 Report Share Posted August 30, 2002 Thanks to everyone who wrote about problems with eyes. Dolores I've never thought it may be related to medication, I take both Baclofen and Zanaflex. I'll check with my doctor the next time I'm in. Jen L. _________________________________________________________________ MSN Photos is the easiest way to share and print your photos: http://photos.msn.com/support/worldwide.aspx Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 17, 2008 Report Share Posted February 17, 2008 I had eye problems to the extent of being told by 2 Opthamologists that I was going blind. But after amalgam replacement and detox and use of antioxidant eye drops my eyes have improved so much that I no longer wear glasses. Lots of things improved. Many of the eye conditions people have are caused by deterioration of the endothelial cells in the cornea or degeneration of the macula due to free radical activity caused by toxic metals including mercury, nickel, copper. Main source of all of these is dental work. I also use antioxidant eye drops, which protect the eyes from such free radical activity. See acetyl-L-Carnatine eye drops from such as Life Enhancement. Bernie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 17, 2008 Report Share Posted February 17, 2008 A close friend of mind who has MS had LYSIK corrective eye surgery and now reads without glasses and has 20/20 vision! I don't know whether or not Medicare nor Medicaid will cover it. ________________________________________________________________________________\ ____ Looking for last minute shopping deals? Find them fast with Yahoo! Search. http://tools.search.yahoo.com/newsearch/category.php?category=shopping Quote Link to comment Share on other sites More sharing options...
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