Guest guest Posted January 27, 2000 Report Share Posted January 27, 2000 It is an excellent idea to get the word out. Dr. Marinoff told my husband and myself that the lack of education is why so many vv sufferers are mistreated and misunderstood. Also on the research side I have heard stories of researchers making up their statistics on this disorder (I have one particular researcher in mind). What I would like to see is a research institute, where all the treatments are studied and when they don't work the researchers are honest about it. If I had back the money I have spent and lost during this ordeal (probably around $15,000-$20,000 in 1999 alone) I would gladly use it to fund HONEST research. >>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>\ >>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>\ >>>>>>> Message: 3 Date: Wed, 26 Jan 2000 22:13:24 -0500 From: " allan gordon " Subject: Re: Survey Would it be ok if I ask some of my colleagues at MSH to join this list That is an excellent and interesting questionnaire I would like to compare it to the one we have There could also be some other issues ..validation etc that would be interest Incidence of vaginismus So if it is OK I am going to ask Jane Esplen and Manijeh Jand to come on Dr. Esplen is an RN PhD and career scienist with he POHD in Mental Health She uses guided imagery as a technique and is interested in interventions Dr. Jand is a physician who developed our questionnaire in conjunction with a large number of clinicians> Als very computer literate Let me know if this is a problem I will not do anything until tomorrow Allan ----- Original Message ----- From ---------------------------------------------------------------- Get your free email from AltaVista at http://altavista.iname.com Quote Link to comment Share on other sites More sharing options...
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