scs

[Guest guest]

Angie:

I have had a scs in for almost 4 years. It provides great relief. It doesnt take away all the pain but I was in terrible pain and it helped enough to take the severe edge of the pain away. I was then able to eliminate some of the ,meds. that were severely taking away my quality of life. It is not a miracle worker. I would not want to have anything go wrong with my scs. I fear that I would go backwards in my dealing with rsd. I do have stronger tremors after the implant but I can take tremors any day compared to the hell I went through prior to the scs. How long have you guys been dealing with this? How much meds. are being taking? I would consider this before the scs. Becareful on the meds. not only can rsd mess you up but so can the meds. I am new 2 group about 2-3 weeks or so. I have been fight rsd for almost 6 years. I was diagnosised at the age of 28 and experienced just about it all that was offered at that time. Hope this infor. helps alittle. If you need more on the scs or anything else, please let me know I have all kinds of it.

vikki/CA

debgena@... wrote:

Dear Angie: You are a wonderfully supportive wife, sticking by your husband, the vow of sickness and health is a big one here. It must be harder to have just become husband and wife. It must be harder still for the people out there that are alone. It would be good if your husband could also join us, along with you, at one of our chats. He may get some ideas, pros and cons regarding the spinal cord stimulator. We have one rule and that would be no saying the word" sorry ." It is not our faults is not your fault therefore the rule. We joke that were going to take one point off every time you use the words sorry, off what, we haven't figured that out yet. LOL We do you live? I have become affiliated with the American Society for Reflex Sympathetic Dystrophy and we have state representatives that may be able to help you with a specific doctor or painclinic. Please go to the main site of our list and take advantage of the Links that we have set up. Clinical practical guidelines are really worth downloading. I have found it is particularly useful when visiting a doctor that is not versed in RSD, so I have used them quite a bit. That is not funny. I personally have opted not to get a spinal cord stimulator, the percentage of patients that found relief verse the problems from it was the main reason I decided not to get it. Please look into it, I know there are a few people on our list that having for those of you out there that have the spinal cord stimulating please try to helpless advise and she and her husband. Angie take care again Welcome I hope to meet you acts is someday soon Hugs to all and a pain free minute, Deb Listowner RSD-Crpsegroups