[Fwd: When LDN isn't working...]

[Guest guest]

Thank you Quick for giving me permission to repost this here.

--- [LDN_Users] When LDN isn't working...

Date: Tue, 11 Mar 2008 10:40:00 -0000

Reply-To: LDN_Users

To: LDN_Users

Recently someone that I know who was diagnosed over 12 years ago with

M.S. had been

experiencing relapse after relapse.

Normally, neurologists would just assume that she had progressed from the

relapsing/remitting form of M.S. to the secondary progressive form.

However, this astute neurologist decided to test lactic acid levels as

well as VLCFA levels

(Very Long Chain Fatty Acid levels). Both were over the normal limit. He

said to her, " Even

if you had just finished running 35 miles, your lactic acid levels would

not have been this

high. "

He was testing her for X-linked adrenoleukodystrophy. Since many females

who have this

are diagnosed with M.S. first, it is not surprising that for years she

has thought that she

had M.S.. Usually it takes having a male with X-linked ALD in a family

to figure out that a

female is a carrier.

I am bringing this to the attention of our group because sometimes

people diagnosed

with M.S. have said that they have still continued to progress even

while on LDN.

One can have BOTH M.S. and X-linked ALD, and tests are needed to see

whether it is one

or the other or both.

So if someone is taking LDN, but is still experiencing progression of

symptoms, it is

important to have a thorough work up to rule out inherited metabolic

disorders or other

causes of neurodegenerative diseases.

http://www.greatplainslaboratory.com/test1comp.html

<http://www.greatplainslaboratory.com/test1comp.html>

Wishing you all good health and correct diagnoses.

Quick

A