Guest guest Posted July 31, 2000 Report Share Posted July 31, 2000 In a message dated 7/31/2000 9:28:04 AM Eastern Daylight Time, sirisharamireddy@... writes: << asked pediatrician several times that my son is not talking yet (only had upto 5 words) and he keep on saying why do you worry so.. much he is only 2 years old.... >> Sirisha, Isn't it sad that so many doctors have this mentality? My daughter was diagnosed with her hearing loss at 3 months of age due to meningitis. That was the extent of information given me. They told me to have her see her pedatrician right away and have him refer us to an ENT. We did that and no one started talking about hearing aids until she was almost three years old. She got her hearing aids just before she turned three and then started the pre school SLI class in the public school system. Since then she has gained about a 150 word vocabulary. There is a treatment for hearing loss, Sirisha, hearing aids or cochlear implants. Your son's hearing loss can well be corrected with hearing aids. I can't remember what his loss is, it would have to be severe-profound to place him in the candidacy for an implant - and not getting much help from hearing aids. I just wish that all the professionals involved would provide more information to parents than they do. I think your right about your son's loss - the ear infections probably caused it. Take heart, he can do very well with the right hearing aids, proper fitting ear molds, and an FM system. What communication option have you chosen? Suzette Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 31, 2000 Report Share Posted July 31, 2000 In a message dated 7/30/00 11:23:44 PM Eastern Daylight Time, suzymaners@... writes: << At 10 months old the audiologist should have done an ABR, and not tried to test in the booth. Any child at 10 months is too young to be tested in a booth. They just don't know how to respond yet. >> My daughter was tested at ten months and we were told that they start booth testing at 6-7 months, their neurological systems should be mature enough to localize, but just to be safe, they usually want an ABR as well. It was from the lack of response in the booth that the audiologist ordered the ABR. I have heard so many audiologist horror stories (mine included) that I am wondering how to get a good one who knows what they are doing. Lucky for us the audie at the hospital where is getting her implant (3 weeks to go!) is excellent and we trust her, but we didn't get one like her first. mom to , 14 mos., deaf Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 31, 2000 Report Share Posted July 31, 2000 Hi Suzette, We didn't have any knowledge about this hearing loss or degrees of hearing loss at that time. Nobody in our family or in our friends or relatives families has this problem. We were in Minneapolis at that time and the audiologist not even mentioned about ABR for us. I asked pediatrician several times that my son is not talking yet (only had upto 5 words) and he keep on saying why do you worry so.. much he is only 2 years old.... We talk different language at home and my sons goes to day care. We thought as he is a boy and also because he is exposed to multiple languages his speech is delayed. I talked with two different audiologists and both of them said ear infections cannot cause permanant hearing loss. That is the only reason I see for my sons loss. I wish there is some treatment for this. Thank You, Sirisha. ________________________________________________________________________ Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 31, 2000 Report Share Posted July 31, 2000 << asked pediatrician several times that my son is not talking yet (only had upto 5 words) and he keep on saying why do you worry so.. much he is only 2 years old... Sirisha, Isn't it sad that so many doctors have this mentality? >>> I have to admit that when my son was 2( he is now 6 1/2) we brought him in for his 2 year check-up. The doctor was concerned because he wasnt really saying much at all, just a lot of gestures. She wanted his hearing tested and my husband and I spent the next few weeks fighting up a storm. I was adamant that there was nothing wrong with him, I had been slow to speak and figured my little boy was following in my footsteps. We finally agreed to get his testing done and the first place said he was fine in his right, deaf in his left. The second place said he was fine, no problems, just a difficult child to test. Well its funny because after reading up on hearing loss and watching him I realized that he DID have a hearing problem and now my husband was the one denying it. Anyway, we waged a 3 yr battle with the military for more testing and at the age of 5 he was finally fitted with aids(thank god for CT). Further testing the last few months has shown that he has lost more hearing( he is profound in his left ear with no measurable responses and severe to profound in his right) in his right ear and now we take it one day at a time. I guess my main point is that while doctors sure dont always recommend the right thing or such, sometimes it is the parents who are in the wrong. If I had had my way back then he would have never been tested and who knows when he would have finally gotten the help he needed! At least my husband can say he has been right at least once during our marriage J --- suzymaners@... wrote: > In a message dated 7/31/2000 9:28:04 AM Eastern > Daylight Time, > sirisharamireddy@... writes: > > << asked pediatrician several times that my son is > not talking yet (only had > upto 5 words) and he keep on saying why do you > worry so.. much he is only 2 > years old.... >> > > Sirisha, > > Isn't it sad that so many doctors have this > mentality? My daughter was > diagnosed with her hearing loss at 3 months of age > due to meningitis. That > was the extent of information given me. They told me > to have her see her > pedatrician right away and have him refer us to an > ENT. We did that and no > one started talking about hearing aids until she was > almost three years old. > She got her hearing aids just before she turned > three and then started the > pre school SLI class in the public school system. > Since then she has gained > about a 150 word vocabulary. There is a treatment > for hearing loss, Sirisha, > hearing aids or cochlear implants. Your son's > hearing loss can well be > corrected with hearing aids. I can't remember what > his loss is, it would have > to be severe-profound to place him in the candidacy > for an implant - and not > getting much help from hearing aids. I just wish > that all the professionals > involved would provide more information to parents > than they do. I think your > right about your son's loss - the ear infections > probably caused it. Take > heart, he can do very well with the right hearing > aids, proper fitting ear > molds, and an FM system. What communication option > have you chosen? > > Suzette > ===== http://johansenfamily.homestead.com/ __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 31, 2000 Report Share Posted July 31, 2000 Hi Suzette, I forgot to mention about the communication option we have chosen to our son. He is in the Oral option and doing great. He will be starting at preschool (will be 3 by Aug 9th) in Atlanta Speech School from Aug 21st and will have classes from 8AM - 12N, Mon- Fri. Sirisha. ________________________________________________________________________ Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 31, 2000 Report Share Posted July 31, 2000 Hi , You are right. After I found about my sons problem when I go back and think about his responses, then now I feel how can we so.. stupid not finding his loss all these days? My husband had concerns about his loss and I used to deny that he has no such problem. Sirisha. ________________________________________________________________________ Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 31, 2000 Report Share Posted July 31, 2000 Hi Sirisha, It certainly was hard, especially when other people question you. We took our son to the Yale Genetics clinic 2 years ago and the woman was unbelievable. She was asking all the questions about what age did he do this and that and so on... She asked me why I didnt get so concerned if he wasnt doing certain things. I told her(and I have to admit I'm quick to get angry, especially when someone is talking about my kids) that being my first child,I was 20 yrs old at the time, my hubby was 24, we were miles away from our families, I wasnt looking for anything to be wrong with our son. To us he was the perfect child--yes he was quiet but we always knew what he wanted and he was such a happy baby. I had no reason to really believe that there was anything going on with him. He walked at one, did everything " normally " . After miscarrying twins at 5 months we were just happy to have this precious child in our lives. I think that the old saying is true--love can make you blind, but thats what being a parent is about isnt it? Just be happy in the knowledge you are doing everything in your power for your child Sirisha and that you have such good resources in GA. We now live in CT and the people and schools here have been outstanding. Getting stationed here was the best thing that ever happened for our family. And being that I have never met another parent with a child with a hearing loss (until recently that is, we joined our local AGB chapter and we met a beautiful little girl with Treacher syndrome, that uses the bone conduction aids) this list has been my support. The people on here are so very helpful(as you may have already noticed) and they are always willing to listen!! --- Sirisha Ramireddy wrote: > Hi , > > You are right. After I found about my sons problem > when I go back and > think about his responses, then now I feel how can > we so.. stupid not > finding his loss all these days? My husband had > concerns about his loss and > I used to deny that he has no such problem. > > Sirisha. > ________________________________________________________________________ > Get Your Private, Free E-mail from MSN Hotmail at > http://www.hotmail.com > > ===== http://johansenfamily.homestead.com/ __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 31, 2000 Report Share Posted July 31, 2000 Hi , How old is your son now and how is he doing? After we found that my son has hearing problem, we were shocked and cried. I was not able to accept that he has hearing problem and he has to wear hearing aids. But now I realized (ofcourse I still cry) and started thinking in a positive manner and hoping that he will be perfectly alright. It's very embarassing to me when someone stares at my sons hearing aids, when we go to mall or groceries or to any other place. Sirisha. ________________________________________________________________________ Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 31, 2000 Report Share Posted July 31, 2000 Hi again Sirisha is now 6 (7 in Jan) and he will be entering first grade Aug.30. Last year he was mainstreamed in a morning kindergarten class and had his special needs class in the afternoon. He sees a speech teacher and a teacher for the deaf. has come a long way. For the most part people can understand him now and his behavior has gotten so much better since he started wearing hearing aids(a year this past Feb. that hes had them). The school concentrates on oral methods but at home we use total communication. We just learned that he may have a progressive loss and go in for more testing in Sept to see how hes done since his latest hearing dip in June. For when people stare at your son I wouldnt get embarrassed. Its a part of your son and nothing to be embarrassed about. When I see people staring at my son(or myself when I am wearing the FM) I always ask them if there is something I can help them with. Children are usually more inquisitive and like to know what is wearing. Of course we have to face the fact that there are tons of ignorant and stupid people out there, but we can try and educate them on deaf and hoh Just be secure of the fact that you and your son are not the only ones facing things like that and we all are with you in spirit. I think everyone on here can admit to a few crying jags, as parents I think its normal. I know I cry for many reasons involving my kids, and yes sometimes my sons hearing loss is what I'm crying for. But I also cry when I see their sweet faces sleeping (I have 3 kids, only 1 hearing impaired) or when they told me they loved me for the first time. So just hang in there Sirisha, and know that it does get better, even though some days seem like they'll never end! Your friend, --- Sirisha Ramireddy wrote: > Hi , > > How old is your son now and how is he doing? > After we found that my son has hearing problem, we > were shocked and cried. I > was not able to accept that he has hearing problem > and he has to wear > hearing aids. But now I realized (ofcourse I still > cry) and started thinking > in a positive manner and hoping that he will be > perfectly alright. It's very > embarassing to me when someone stares at my sons > hearing aids, when we go to > mall or groceries or to any other place. > > Sirisha. > > > ________________________________________________________________________ > Get Your Private, Free E-mail from MSN Hotmail at > http://www.hotmail.com > > ===== http://johansenfamily.homestead.com/ __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 31, 2000 Report Share Posted July 31, 2000 I suppose that's part of being a parent, isn't it - the guilt that goes along with it? Sometimes I look back on Tommy's behavior (he was 3-1/4 when he was diagnosed; 3-1/2 when he got his aids), I can't believe I didn't realize. But we didn't and all we have is now and we build on that. I have tried to put those feelings to good use - we testified to the NH legislature about the IMPORTANCE of infant hearing screening for all infants, not just high risk infants. Had that been in place, both our boys would have been diagnosed much earlier. It's hard, but be good to yourself! Barbara > Hi , > > You are right. After I found about my sons problem when I go back and > think about his responses, then now I feel how can we so.. stupid not > finding his loss all these days? My husband had concerns about his loss and > I used to deny that he has no such problem. > > Sirisha. > ________________________________________________ ________________________ > Get Your Private, Free E-mail from MSN Hotmail at http:// www.hotmail.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 31, 2000 Report Share Posted July 31, 2000 Hi Sirisha: Wow, do your posts grab at my heart! I have two children with hearing loss - my older son is 8 and my younger son is 5-1/2. Tommy, my older son, was 3-1/4 when he was diagnosed and received his aids at 3-1/2. Sammy, my little one, was 15 months when he was diagnosed, largely because our wonderful audiologist " nagged " us and said " we always test siblings " . You know, by the time Tommy was diagnosed, I suspected he had hearing loss. Sammy's diagnosis was a total shock (TOTAL shock). All I remember our audiologist saying was " I'm afraid I have bad news " - I don't remember one other thing she said after that. I lost it when I got that news - totally lost it! I know exactly how you feel when others (adults and kids) stare at your child - with two kids in Hanover NH, it happens all the time. At first, I would always give the " starer " a dirty look but in time I realized I was sending the wrong message, especially to Tom and Sam. As one of the world's great talkers (you know it's bad when the speech therapist says we provide a " language rich environment " for our kids - yikes!), I figured I could tell anyone more than they ever wanted to know - I figure it's my chance to educate both the kids and their parents. I always feel so good now when a kid asks Tommy or Sammy why they wear hearing aids and one or the other says " I wear them to hear better " - nuff said! One day in Burger King, Hugh (my husband) was putting Tommy's hearing aids back on after playing in the ball pit and a kid was staring. Hugh told him what they were for, the kid said " Cool! " and walked off! It's so hard and so painful - but hang in. It does get easier and not as overwhelming. Take good care Barbara > Hi , > > How old is your son now and how is he doing? > After we found that my son has hearing problem, we were shocked and cried. I > was not able to accept that he has hearing problem and he has to wear > hearing aids. But now I realized (ofcourse I still cry) and started thinking > in a positive manner and hoping that he will be perfectly alright. It's very > embarassing to me when someone stares at my sons hearing aids, when we go to > mall or groceries or to any other place. > > Sirisha. > > > ________________________________________________ ________________________ > Get Your Private, Free E-mail from MSN Hotmail at http:// www.hotmail.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 31, 2000 Report Share Posted July 31, 2000 Hi Barbara and , Thank you very much for your support. : Thank You for considering me as your friend. I need to learn a lot from both of you. Your friend, Sirisha. ________________________________________________________________________ Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 10, 2002 Report Share Posted May 10, 2002 I have a ? I had surgery in July 2001 upper,lower and genio and am scheduled to have my braces off. Does it hurt?? Some of my teeth are still sensitive The thought of that grinding tool to get off the glue/cement makes me cringe M. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 28, 2003 Report Share Posted October 28, 2003 Good for you for getting what you want in spite of the idiot! Just watch out, when I requested the Frees the doc said ok ok. When I got the lab results back he has only tested T3 and T3 nto FREE!! ARG! I really think he knew what he was doing too. He purposely put the wrong test down. Here's to you and being on the road to good health. Let us know what they say! in AZ Mom to Jenna(8), (7), (5), (4), Junie(3), Jillian (10 months) http://members.cox.net/bettendorf http://groups.yahoo.com/group/Arizona_Thyroid_Groups > HI, > Well I went to the thyroid nazi today, and he marched the > goosestep party line... Told me that THS is the only indicater of a > bad thyroid... Would not look into any treatment... I did got him to > do Blood work. > > TRH > THS > FREE T3 > FREE T4 > > Homocystine > C Reactive > > full cholestoral > > So even if he was worthless, I got the blood tests done for > $15.00... > > He said if the test come back " off " the he will sent me to a endo... > I told him " whats the point, hes only going to say the same thing > you said " ... I think I offended him, BIG WHOOP!... I will wait for > tests and then start the armour I got online... I will see if I get the > results myself... > > I can use your support on this! > > Bobby > Boynton Beach FL > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 28, 2003 Report Share Posted October 28, 2003 Be sure to get a copy of the results....don't just let them give you some numbers over the phone...you want to see the normal ranges for yourself....he might have said he is doing the free's for you, but don't be surprised if they come back as the Total's instead....he sounded like a typical ass and would definitely pull something like that---esp. since he is not used to ordering them and probably doesn 'lt have a clue as to the difference himself!!!....LOL.....sue in TN ~~~~~~~~~~~~~~~ > HI, > Well I went to the thyroid nazi today, and he marched the > goosestep party line... Told me that THS is the only indicater of a > bad thyroid... Would not look into any treatment... I did got him to > do Blood work. > > TRH > THS > FREE T3 > FREE T4 > > Homocystine > C Reactive > > full cholestoral > > So even if he was worthless, I got the blood tests done for > $15.00... > > He said if the test come back " off " the he will sent me to a endo... > I told him " whats the point, hes only going to say the same thing > you said " ... I think I offended him, BIG WHOOP!... I will wait for > tests and then start the armour I got online... I will see if I get the > results myself... > > I can use your support on this! > > Bobby > Boynton Beach FL Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 28, 2003 Report Share Posted October 28, 2003 > Well I went to the thyroid nazi today, and he marched the > goosestep party line... Told me that THS is the only indicater of a bad thyroid... Would not look into any treatment... Yup, as Sue said more aptly than I, this is definitely a DONKEY DOC! What an idiot view. The town I live near has nothing BUT these kind of docs, bar none. I am forced to send folks to a city over one hour away to get a good one. GO into FILES on this site and read, read, Bobby. The information is what will give you power!! Janie Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.