Guest guest Posted April 10, 2002 Report Share Posted April 10, 2002 Rhonda, Nicky is on the diet, and I have had to have him off of it completely twice. We did try experimenting at one point, taking him off just the gf part or just off the cf part as well. This may sound strange, and I don't know why, but when we had him off one or the other, the only problem we noticed was constipation when he was getting the casein. However, when he has been off both at once, the change is evident within hours, complete with tantrums, stims, zone-outs, etc. So, at least in Nicky's case it seems to have something to do with the combination of the two. I know it was recommended to me to take him off one first, and then the other, after at least a week. Maybe if you did the same thing taking him off the diet? Hope that helps! B gfcf diet Hey there everyone.. i need some advice here. We are getting ready to take Tommy off of the diet.. after having him on it for a year and a half now, and going over all of the documentation we've kept.. we've finally come to the conclusion that its not doing him any good. Not saying it wasnt worth the try.. because we did learn alot of DIFFERENT things going on with Tommy through the diet. Anyhow, I was wondering if anyone on here has tried the diet, and gone off of it. Im concerned with getting Tommy off of the diet " too fast " and dont know how to start weaning him off. Im hesitent to post this on the GFCF website because if any of you are members of that group.. you know how crazy people can get there when you give up on the diet..lol If any of you could help.. i'd appreciate it! :-) By the way.. sorry I have been so quiet lately.. we have all been battling the flu here for the past month.. I was fortunate enough to get it twice. But all is well now! (thank goodness!) Rhonda Long Island, NY Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 10, 2002 Report Share Posted April 10, 2002 Rhonda: Putter was on the GFCF diet for about a year and he went off it. I finally took him off because it was quite clear one time when he accidentally got hold of some regular waffles instead of rice waffles that they simply did not affect him at all. We did sort of gradually go off it. I have no idea if that is a better way or not, but we had a lot of food for him to go through that we had already bought and so it worked well for us. Also, Putter is not at all interested in dairy products (I have wondered if that was not because he knew that they bothered him; if you give him ice cream, which he does like, he will take a couple of small nibbles and then stop as if he knows any more will upset him, but that is just speculation). My hunch was that the diet was not going to be an issue for him because we did testing and it seemed to indicate that he had no problem (whereas every other child in Putter's psych's practice came out as needing the diet). Sorry you had the flu -- twice! How awful. Nice to hear from you again. Salli Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 10, 2002 Report Share Posted April 10, 2002 Hi Rhonda. Sorry to hear the diet didn't help. I thought about it for , but decided not to, for cost, stress and sanity reasons. The only thing I am going to try is yeast-free because a lot of them get yeast infections and is one of them. I know that as far as lactose goes (the sugar in dairy foods) that yoghurt has less. Casein I have no idea! You might start with small amounts of yoghurt? Good luck. in Sydney, Australia Mum to , 6yo AS ADHD, and , 5yo mild hearing loss gfcf diet Hey there everyone.. i need some advice here. We are getting ready to take Tommy off of the diet.. after having him on it for a year and a half now, and going over all of the documentation we've kept.. we've finally come to the conclusion that its not doing him any good. Not saying it wasnt worth the try.. because we did learn alot of DIFFERENT things going on with Tommy through the diet. Anyhow, I was wondering if anyone on here has tried the diet, and gone off of it. Im concerned with getting Tommy off of the diet " too fast " and dont know how to start weaning him off. Im hesitent to post this on the GFCF website because if any of you are members of that group.. you know how crazy people can get there when you give up on the diet..lol If any of you could help.. i'd appreciate it! :-) By the way.. sorry I have been so quiet lately.. we have all been battling the flu here for the past month.. I was fortunate enough to get it twice. But all is well now! (thank goodness!) Rhonda Long Island, NY Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 10, 2002 Report Share Posted April 10, 2002 Thanks so much for responding Salli. Thats exactly where we're at with Tommy.. he's had a FEW slipups.. but has never shown a reaction to the gluten.. though, he does show reaction to the casien.. we do plan on staying casien free... especially after ordering 25 pounds of his milk..lol Its nice to hear that someone was in the same boat as us.. I think thats what we are going to do as well.. just use up what food we have and gradually switch back. Thanks again for your imput Rhonda > Rhonda: > > Putter was on the GFCF diet for about a year and he went off it. I finally > took him off because it was quite clear one time when he accidentally got > hold of some regular waffles instead of rice waffles that they simply did > not affect him at all. > > We did sort of gradually go off it. I have no idea if that is a better way > or not, but we had a lot of food for him to go through that we had already > bought and so it worked well for us. Also, Putter is not at all interested > in dairy products (I have wondered if that was not because he knew that they > bothered him; if you give him ice cream, which he does like, he will take a > couple of small nibbles and then stop as if he knows any more will upset > him, but that is just speculation). My hunch was that the diet was not > going to be an issue for him because we did testing and it seemed to > indicate that he had no problem (whereas every other child in Putter's > psych's practice came out as needing the diet). > > Sorry you had the flu -- twice! How awful. Nice to hear from you again. > > Salli Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 11, 2002 Report Share Posted April 11, 2002 > Hey there everyone.. i need some advice here. We are getting ready > to take Tommy off of the diet.. Well, you'll have to change your email address . . . Sissi Kids' Page http://www.isoa.net/~nitetrax/dillon.htm Boone's Art http://www.isoa.net/~nitetrax/bart.htm Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 11, 2002 Report Share Posted April 11, 2002 uugghh.. dont remind me!..lol > > Hey there everyone.. i need some advice here. We are getting ready > > to take Tommy off of the diet.. > > Well, you'll have to change your email address . . . > Sissi > > Kids' Page > http://www.isoa.net/~nitetrax/dillon.htm > > Boone's Art > http://www.isoa.net/~nitetrax/bart.htm Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 12, 2002 Report Share Posted April 12, 2002 Rhonda - You do what you feel is right for your child. Period. If I were you, I would not load him up right away. I would definitely wean him. It's just like any other " diet " , in that when you start incorporating new foods, your system needs a chance to catch up. Good Luck!!! Penny :-) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 12, 2002 Report Share Posted April 12, 2002 Thanks Penny. I've gotten more support here than with anyone I tell ya! I did end up posting on the gfcfkids site, and i DID get ALOT of private emails that were very PREACHING type emails. I didnt think that my email box could hold that many!..lol ANyhow.. there's no other way to know, unless I just do it.. so tonight is the night. Im only going to give him a few small things.. He should be the happies kid on earth tonight..lol Thank to you all for your support with me on this.. I'll keep you updated on what happens. And if all goes well, I will have some Kirkmans to unload on you all!!! :-) (Tommy's been off of the kirkmans for a week now with nothing negative happening, and some good comming of it) Rhonda > Rhonda - > > You do what you feel is right for your child. Period. > > If I were you, I would not load him up right away. I would definitely wean > him. It's just like any other " diet " , in that when you start incorporating > new foods, your system needs a chance to catch up. > > Good Luck!!! > > Penny :-) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 13, 2002 Report Share Posted April 13, 2002 Rhonda I'm really sorry that you had such a hard time. I never did the diet because we had tested first. I just didn't see the need to go to all the time, trouble, and waiting to see if nothing would come of it. Though there are people that it helps. My daughters speech therapist is allergic to the protein in milk. I had her tested threw the Great Smokies Lab threw my DAN doctor. You are the mom and as such know what's best. G Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 11, 2008 Report Share Posted January 11, 2008 Gluten Free / Casein Free (GF/CF) Specific Carbohydrate Support Group Contact Wallitch at I thought discontinued her support group too. Does anyone know for sure? RobinStart the year off right. Easy ways to stay in shape in the new year. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 11, 2008 Report Share Posted January 11, 2008 Gluten Free / Casein Free (GF/CF) Specific Carbohydrate Support Group Contact Wallitch at I thought discontinued her support group too. Does anyone know for sure? RobinStart the year off right. Easy ways to stay in shape in the new year. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 11, 2008 Report Share Posted January 11, 2008 Gluten Free / Casein Free (GF/CF) Specific Carbohydrate Support Group Contact Wallitch at I thought discontinued her support group too. Does anyone know for sure? RobinStart the year off right. Easy ways to stay in shape in the new year. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 11, 2008 Report Share Posted January 11, 2008 Hello , There used to be a Biomedical support group held by Beth Vataker at the Broward ARC, it discontinued when she moved to NJ last year so I am not sure if someone else has picked up... but here is another one. I have not attended myself but here is the contact info. Gluten Free / Casein Free (GF/CF) Specific Carbohydrate Support Group Contact Wallitch at Also the GFCF kids Yahoo group, they have tons of knowledge and is a good support group with loads of GFCF information. Sofia Cohane wrote: Hi, I have been planning on implementing the GFCF diet with my daughter for about 3 months now and have yet to do anything as I know I need support and have just not followed up on getting the info (probably procrastinating because I am worried about undertaking such a big change). In any case, I understand that there is a support group on this topic that meets monthly at Flamingo Church (I think). If anyone has more info on the schedule of these meetings, please share so that I can get started. Thanks so much! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 11, 2008 Report Share Posted January 11, 2008 Hello , There used to be a Biomedical support group held by Beth Vataker at the Broward ARC, it discontinued when she moved to NJ last year so I am not sure if someone else has picked up... but here is another one. I have not attended myself but here is the contact info. Gluten Free / Casein Free (GF/CF) Specific Carbohydrate Support Group Contact Wallitch at Also the GFCF kids Yahoo group, they have tons of knowledge and is a good support group with loads of GFCF information. Sofia Cohane wrote: Hi, I have been planning on implementing the GFCF diet with my daughter for about 3 months now and have yet to do anything as I know I need support and have just not followed up on getting the info (probably procrastinating because I am worried about undertaking such a big change). In any case, I understand that there is a support group on this topic that meets monthly at Flamingo Church (I think). If anyone has more info on the schedule of these meetings, please share so that I can get started. Thanks so much! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 11, 2008 Report Share Posted January 11, 2008 There is tons of information on www.tacanow.com (or org)Menus,plans etc. Also, see gfcf.com There is also a list group that is gfcf kids I believe Hope this helps --- Cohane wrote: > Hi, > > > > I have been planning on implementing the GFCF diet > with my daughter for > about 3 months now and have yet to do anything as I > know I need support and > have just not followed up on getting the info > (probably procrastinating > because I am worried about undertaking such a big > change). In any case, I > understand that there is a support group on this > topic that meets monthly at > Flamingo Church (I think). If anyone has more info > on the schedule of these > meetings, please share so that I can get started. > Thanks so much! > > > > > > ________________________________________________________________________________\ ____ Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now. http://mobile.yahoo.com/;_ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 11, 2008 Report Share Posted January 11, 2008 There is tons of information on www.tacanow.com (or org)Menus,plans etc. Also, see gfcf.com There is also a list group that is gfcf kids I believe Hope this helps --- Cohane wrote: > Hi, > > > > I have been planning on implementing the GFCF diet > with my daughter for > about 3 months now and have yet to do anything as I > know I need support and > have just not followed up on getting the info > (probably procrastinating > because I am worried about undertaking such a big > change). In any case, I > understand that there is a support group on this > topic that meets monthly at > Flamingo Church (I think). If anyone has more info > on the schedule of these > meetings, please share so that I can get started. > Thanks so much! > > > > > > ________________________________________________________________________________\ ____ Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now. http://mobile.yahoo.com/;_ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 11, 2008 Report Share Posted January 11, 2008 Yes you are correct Robin, the GFCF support group that was run by Wallitsch has ended as well, has returned to Wisconsin and my Biomedical support group has ended as well since I moved back to NJ. Beth Vataker > > > > In a message dated 1/11/2008 2:18:57 PM Eastern Standard Time, > eteniex@... writes: > > Gluten Free / Casein Free (GF/CF) Specific Carbohydrate Support Group > Contact Wallitch at > > > > > I thought discontinued her support group too. Does anyone know for > sure? > > Robin > > > > **************Start the year off right. Easy ways to stay in shape. > http://body.aol.com/fitness/winter-exercise? NCID=aolcmp00300000002489 > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 11, 2008 Report Share Posted January 11, 2008 Yes you are correct Robin, the GFCF support group that was run by Wallitsch has ended as well, has returned to Wisconsin and my Biomedical support group has ended as well since I moved back to NJ. Beth Vataker > > > > In a message dated 1/11/2008 2:18:57 PM Eastern Standard Time, > eteniex@... writes: > > Gluten Free / Casein Free (GF/CF) Specific Carbohydrate Support Group > Contact Wallitch at > > > > > I thought discontinued her support group too. Does anyone know for > sure? > > Robin > > > > **************Start the year off right. Easy ways to stay in shape. > http://body.aol.com/fitness/winter-exercise? NCID=aolcmp00300000002489 > Quote Link to comment Share on other sites More sharing options...
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