Re: Anyone with personal experience using Myelin Sheath Protein?

[Guest guest]

Hi Zurama. I took a product for awhile called Sphingolin, myelin basic protein.

I don't think it helped, but it might have if I had stuck with it. I don't

think the autism and MS have the same physical damage for the same reasons, but

it might work better for you than it did for me. In my case of MS, the damage

is likely due to a lack of thyroid hormones T3 and T4.

Zurama wrote: Hi I am new here on behalf of my

son. I have just ordered some for my

son. He doesn't have MS? He has severe autism,

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[Guest guest]

Zurama,

there is a yahoogroup for parents using LDN to treat kids with autism.

The group is run by Dr. McCandles. Let me know if you need the link.

Yvette

> ch, low upper

> body muscle tone. He also has a compromised immune system and I have

> him on Low Dose Naltroxene witch I have read is a therapy used for MS too.

>

> I

>

> .

>

>

--

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[Guest guest]

I took Sphingolin for a while as well and did not really see the

results. Just like , I might have given up too soon (about 2

months taking it)

However when I think about it I see it this way - Best Bet Diet (that

I am on) suggests against eating any food that will mimic protein

structure of myelin. Then Shingolin will be a definite no-no because

it has the closest structure?

I am thinking out loud here and not " perscribing " anything mind you.

>

> Hi I am new here on behalf of my son. I have just ordered some for my

> son. He doesn't have MS? He has severe autism, which includes among

> other medical conditions, neurological damage and no speech, low upper

> body muscle tone. He also has a compromised immune system and I have

> him on Low Dose Naltroxene witch I have read is a therapy used for

MS too.

>

> I want to start him on the Myelin Sheath Protein supplement and was

> wondering if anyone here has used it and what benefits if any did it

> have. In a Urine Organic Acids Report test done eight years ago he had

> low N-Acetylaspartic and I have found that this is consistent with

> Myelin Sheath damage. I believe it explains why he has deteriorated

> continously since then. He is now ten years old.

> Zurama

>

[Guest guest]

Hi :

Thank you for responding! I am not so sure the two are not

similar-autoimmunity and heavy metal toxicity are involved in both as

far as I know. Poor Mickie is Lead, Cadmium and Aluminum toxic.

Mercury I haven't found but the signs are there.

Hope the Myelin can help him some.

Zurama

>

[Guest guest]

Hi Yvette:

thank you.....I am a member of the LDN group too. I wonder why there's

no group for Myelin Sheath protein? Do you know of any?

Zurama

>

>

[Guest guest]

This Shingolin is it a the brand name?

Zurama

>

> I took Sphingolin for a while as well and did not really see the

> results. J

[Guest guest]

No personal experience, but in Celeste Pepe's book on Reversing MS, she

says it was was of her steps and recommends it to people who are only

going to do one of her steps. She claims the immune system will attack

the Shingolin rather than the body's own myelin. I did a search on of

old posts in this group a while back and couldn't find anyone saying it

helped them--or maybe one person said so. But only a couple people had

tried it.