Guest guest Posted May 6, 2000 Report Share Posted May 6, 2000 Hi Kay: Do you know if the centers are also looking at how long a child has been wearins aids and what kind of gain they're getting before they approve an implant? Because a parent wants an implant for their child, is that necessarily a guarantee that the ENT or whomever will make that child a candidate? Thanks, > >Reply-To: Listen-Upegroups >To: <Listen-Upegroups> >Subject: Re: eligibility for CIs >Date: Sat, 6 May 2000 18:49:21 -0500 > > > What's the latest on how severe a child's loss should be before they are > > eligible to receive a Cochlear Implant? Is it still profound loss or >severe > > loss? > >Mostly depends on the center. More and more centers are implanting severe. >They look more at aided discrimination than audiogram. At the center that >did JD's it had to be below 20%. > >Hugs, >Kay > ________________________________________________________________________ Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 6, 2000 Report Share Posted May 6, 2000 In a message dated 5/6/2000 7:50:11 PM Eastern Daylight Time, listenup@... writes: << Mostly depends on the center. More and more centers are implanting severe. They look more at aided discrimination than audiogram. At the center that did JD's it had to be below 20%. >> The center that implanted Jake is doing severe to profound kids, and some kids that other centers wouldn't implant from what I hear. Jake was a borderline candidate by audiogram, which is useless in his diagnosis. He was implanted based on his speech discrimination scores and lack of progress in spoken language. Elaine Cueing Mom to Jake/6yrs/Clarion CI/2-99 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 6, 2000 Report Share Posted May 6, 2000 I have heard that they are doing them on severe to profound loss children. That's why I'm looking to get one for my daughter. I guess it all depends on how much help they get from their aids. My daughters best results in an aided audiogram was at 55 db. I believe that for better language development that should be more in the 20 - 30 db range. Suzette Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 6, 2000 Report Share Posted May 6, 2000 > What's the latest on how severe a child's loss should be before they are > eligible to receive a Cochlear Implant? Is it still profound loss or severe > loss? Mostly depends on the center. More and more centers are implanting severe. They look more at aided discrimination than audiogram. At the center that did JD's it had to be below 20%. Hugs, Kay Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 6, 2000 Report Share Posted May 6, 2000 > Do you know if the centers are also looking at how long a child has been > wearins aids and what kind of gain they're getting before they approve an > implant? Because a parent wants an implant for their child, is that > necessarily a guarantee that the ENT or whomever will make that child a > candidate? They look at a number of things. Different centers place different weights on different things. Just because a parent wants an implant for the child doesn't make him a candidate. Look how long we waited while JD kept losing hearing before he was finally a candidate - and then only barely. Hugs, Kay Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 7, 2000 Report Share Posted May 7, 2000 > I believe that for better language development that > should be more in the 20 - 30 db range. Unfortunately, this is not what they look at. One of the things you will hear many parents of AV kids say is that AV therapy actually puts their kids at a disadvantage as far as CI candidacy is concerned. For example, take 2 kids with the exact hearing loss, amplification, and assume each got equal benefit from their hearing aids. Lets say one of those kids is in a TC program with very little auditory work, and the other one is an AV kid who had learned to make his little bit of residual hearing go a long way. He has probably learned how to take what little he hears and make sense out of it. The child with less auditory training may not be able to take that same input and turn it into speech (decode it). The TC kid would qualify for implantation long before the AV kid will. JD fell into just that crack. One look at his audiogram, aided or unaided was enough for those with experience to say, " Oh yes, he'll qualify easily " . When they put him in the sound booth, no way did he qualify. We had to sit back and watch his hearing deteriorate till he came close to qualifying. Technically he qualified in only one ear, not the other (which would be enough to disqualify him) but the surgeon decided to classify him as a candidate because his hearing loss had been proven as progressive and it was only a matter of time before the other ear would qualify. His aided audiogram in that ear had some frequencies with 110, 115, and NR's - I'm too far behind right now to take the time to go get out his audiogram and reproduce it here right now. His aided audiogram only had a few of the speech frequencies that went into the speech banana. If your child is evaluated and considered a candidate (as I recall she's AV), then consider yourself very fortunate. I just wanted to let you know that sometimes the very thing we do to help our kids can be a minus in other areas. Qualifying for implantation is one of them. I've spoken to a number of other AV parents whose children have fallen into the same crack. Hugs, Kay Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 8, 2000 Report Share Posted May 8, 2000 At 11:32 PM 5/6/00 -0400, you wrote: >I have heard that they are doing them on severe to profound loss children. >That's why I'm looking to get one for my daughter. I guess it all depends on >how much help they get from their aids. My daughters best results in an aided >audiogram was at 55 db. I believe that for better language development that >should be more in the 20 - 30 db range. With what hearing aids? Have you gone through extended trials with better hearing aid technology? Or do you want to go right to the implant? Chris << Christofer deHahn......Director of Information Technology >> << Chiliad Publishing.............Amherst, Massachusetts, USA >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 9, 2000 Report Share Posted May 9, 2000 In a message dated 5/7/00 10:42:15 PM Eastern Daylight Time, listenup@... writes: << If your child is evaluated and considered a candidate (as I recall she's AV), then consider yourself very fortunate. I just wanted to let you know that sometimes the very thing we do to help our kids can be a minus in other areas. Qualifying for implantation is one of them. I've spoken to a number of other AV parents whose children have fallen into the same crack. Hugs, Kay >> Thanks for the heads up. I'm hoping she'll qualify. She's 4.5 and has just started to put 3 word phrases together. I thought that was great, but when she talks to our friends (people who don't see her everyday) they can't understand a thing she says & if I'm not around, she doesn't try to say words. So maybe the thing that frusrates me now will help to qualify her. I'm praying she will. If she doesn't, we'll just work with what she's got. Thanks, Suzette Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 9, 2000 Report Share Posted May 9, 2000 In a message dated 5/8/00 10:34:34 PM Eastern Daylight Time, dehahn@... writes: << With what hearing aids? Have you gone through extended trials with better hearing aid technology? Or do you want to go right to the implant? >> Oticon Personic 440's. We haven't tried other aids. I'd like to try to go straight to the implant which would allow her to hear more of the frequencies than hearing aids are able to amplify. If she doesn't qualify for the implant, then I'll look into other aids. I asked her audie about reprogramming the ones she has but she was of the impression that may not have been responding to the lower db's simply out of being distracted. I suspected the same, but it's just something we couldn't be sure of. Thanks. Suzette Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 11, 2000 Report Share Posted May 11, 2000 In a message dated 5/11/00 7:01:16 PM Eastern Daylight Time, maryemapa@... writes: << I think that 4.5 is really young ... I don't think you can expect a child that young, profoundly deaf, who is learning to put sounds and words together to speak exactly clearly when she is so young. I am sure the oral moms and dads can help .... Doesn't clear speech take sometimes take years of speech therapy? And then, what defines clear? >> I was just at the Florida Oral Convention where I saw a testimonial of a little girl born profoundly deaf who was implanted at age 2. By age 4 she was speaking in very clear, full sentences. Every child is different. I saw another testimonial of a 6 year old boy who was profoundly deaf with absolutely no language, not even sign (don't ask me how that happened). I saw a video clip of his therapy 18 months after the CI. He spoke in full sentences as well, not perfectly clear, but very understandable. I'd define clear as understandable by the way. The potential is there and I'd like to give that to my daughter. Thanks for the concern . Suzette Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 11, 2000 Report Share Posted May 11, 2000 In a message dated 5/11/00 7:44:31 PM Eastern Daylight Time, listenup@... writes: << Well.......I happen to have a differing opinion. When a child is raised with AV therapy, as JD was, they are taught to match their speech sounds with what they hear. If speech correction is needed, it's done by speaking, usually close to the child's ear and the child self-corrects. >> Thanks Kay. By the way the ball is rolling. Our first appointment at Nemours is next Tuesday, May 16. Suzette Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 11, 2000 Report Share Posted May 11, 2000 >I don't think you can expect a child > that young, profoundly deaf, who is learning to put sounds and words > together to speak exactly clearly when she is so young. Well.......I happen to have a differing opinion. When a child is raised with AV therapy, as JD was, they are taught to match their speech sounds with what they hear. If speech correction is needed, it's done by speaking, usually close to the child's ear and the child self-corrects. One thing with cochlear implants is that one of the first change that occurs is their articulation clears up because they can more easily hear the differences between the sounds. One interesting tidbit comes from some correspondence I had a few years ago with someone who was implanted when they were well over 50. He had been deaf (very little residual hearing since birth). He said that years after the implant, he still couldn't really say he " heard " speech, or noise for that matter, but he still considered himself a success because 1) speech-reading became significantly easier for him and even those he had never been able to speech-read (folks with beards or heavy accents) became rather easy to speech-read, and 2) those around him said his speech cleared up significantly. His reason for getting an implant was to make communication with others easier, and it was so even though he doesn't really hear anything, it's gotten easier for him. JD's articulation was getting sloppier and sloppier as his hearing loss progressed. Within a matter of days after hook-up, I noticed his articulation was clearing up again. Hugs, Kay Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 11, 2000 Report Share Posted May 11, 2000 Re: eligibility for CIs JD's articulation was getting sloppier and sloppier as his hearing loss progressed. Within a matter of days after hook-up, I noticed his articulation was clearing up again. Hugs, Kay I don't know how many of you are Guiding Light watchers but I am and have been for years. Is this relevant?? Yes. The actress that plays Abigail (Amy Eklund) had a CI earlier this year or late last year. I continue to be amazed at the improvements in her speech. She always had good speech, but there were definitely certain sounds that were not as clear and some that were very nasal. I don't get to watch the show but maybe once a week and each time I hear her speak it's better than the last!! RoseAnn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 12, 2000 Report Share Posted May 12, 2000 Thanks for the information, Kay. > ________________________________________________________________________ Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com Quote Link to comment Share on other sites More sharing options...
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