ruby slippers - we all got 'em

[Guest guest]

Beverly,

I'm a ppms and i wasn't too bad until my husband started telling me every week

that i was worthless and embarrassing. i finally hit rock bottom, kicked him

out and saw a specialist who was (sadly) negative and got a script for a

powerchair. THEN i got PISSED OFF and decided that if my husband or i could

talk myself into bad shape i could work/talk myself back from the brink.

i force myself onto the treadmill a few times a day - it may not be pretty,

but it feels wonderful. i also eat a raw diet (for the most part) and load up on

vitamins and meditate a lot with not a WISH to recover, but an EXPECTATION to

heal.

Finally, a sense of humor is greatly important.................. When my

husband sodomized me after spending 3 weeks with his lawyer girlfriend and

telling me i was a total loser, i thought that needed to be the end for me, but

i put an irreverent spin on that particular event - and decided SHE CAN NEVER

SAY SHE DOESN'T TALK CRAP.....

i could sit and sob brokenly [and i have], i could believe the defeatist

attitudes of doctors, PTs and friends and family. but I'm slowly coming

back..........wanna come?

please don't give up. It's like Dorothy's ruby slippers. You have the power

within you, but it takes time, hard work, and diligence.

i hope you choose to do the work-

Beverly wrote:

Hi all-am somewhat new to group & wanted to introduce myself. I am

54, married w/a 15 yr old son. My baby sister got PPMS at 16

and " lived " a terrible life until she died at 41 (in 2004). I had a

cousin w/PP who lived 10 yrs. start to finish. When my sister died,

my family thought " at last, this terrible disease has left our

lives. " Last July I noticed tingling in my foot. And somehow, God

help me, I knew immediately what it was.

Everyone thought I was over-reacting. I insisted on an MRI-two

lesions. Since then the tingling has spread to my hands & my legs are

rubbery. One of the hardest parts is that I have been suffering from

treatment-resistant depression for the last 3 yrs; no drug works,

even had ECT in Jan.07. I know it is important to stay positive with

this disease, but I don't know how when my depression was so bad to

begin with that I had to quit working 3 yrs ago.

The other hard part are the visuals in my mind of my sister' hellish

life. It doesn't take much imagination on my part to envision myself

in a wheelchair, unable to move a muscle, unable to talk, unable to

eat. This was her life & I'm afraid it will be mine. I was depressed;

now I am depressed & scared to death.

I know they don't have drugs for PP. I don't mind doing research on

vitamins/diet, etc. In fact I worked at a health food store for over

20 yrs before I quit. I used to help people with their health; now I

am overwhelmed trying to help my own.

I have been reading alot of the forums; I have alot of questions that

I will save for another, less lengthy, time. But one question: I

notice many of you folks have R/R. Sorry to put it this way, but I

would give anything to trade PP for RR. RR almost seems like an

entirely different disease to me. So my question is, is there anyone

out there with PP & have you tried any nutritional approaches that

have helped? I did get a doctor (not the neurologist) to prescribe

LDN, but otherwise I am overwhelmed at all the different things you

all seem to be using & don't really know where to start.

Thanks for listening. Beverly