New to group - Hello

[Guest guest]

Hello,

My name is and I have just joined this group.

My family live in Queensland, Australia. I have a wonderful husband, a boy aged

11, another aged 9 and our sweet little girl , aged 6.

Last November Chrissy was checked at her school for eyesight and hearing and

we were told she had a moderate/severe loss in one ear. We were shocked, as we

had never noticed, other than what we thought selective-deafness.

She went straight on to a hearing aid and we thought all was well. This March

while

having Chrissy's hearing checked, they found her other ear is now

moderate/severe

as well. Her graph looks a lot like the letter X. Panic stations kicked in and

after

much checking with specialists (another story), we were told that Chrissy has

something called 'Large Vestibular Aqueduct' syndrome. Has anyone heard of

this???

Apparently she will loose all her hearing in the next few years, but don't know

when. I have spent heaps of time on the NET and found as much info as I can.

Our New specialist has sent all her charts to Sydney, as this is the first case

up

here and no-one can help us with understanding.

Anyway, that's where we are, at present and I look forward to watching for the

groups emails as I would love to share and I have so much to learn. I'm so

confused. The only things holding us up at present is our family, friends and

our

strong faith.

Hoping to share,