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Re: Low Calcium post TT

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The day after surgery, they took lab work and found my calcium was below

normal and didn't treat. The day after that, they had me do another blood

test and it was even worse and I felt tingly all over, so they immediately

started me on 3 grams of calcium tablets and Rocaltrol three times a day.

Jan

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My Dr told me that it was really dangerous to have low calcium levels. He

was so concerned that he told me to call immediately (day or night) if I

felt numbness or tingling. He described it as feeling " weird " which I made

him clarify. I would say that your friend could easily go to Walgreens (or

the like) and pick up calcium/Vitamin D tablets and take them on her own. I

took 2,000 mg for 4 weeks. It certainly won't hurt her.

Hope that helps.

Papillary Thyroid Cancer w/ Lymph Node involvement

pt 3/1/00, tt 4/12/00

RAI 100 mCi's 5/26/00

Tg 8.8 while suppressed - Tg 357 with TSH of 96 on 12/27/00

2nd RAI 150 mCi's 1/19/01

threegolfers@...

Low Calcium post TT

>

> Hi all,

>

> I know there are plenty members here who experienced low calcium

> immediately following their thyroidectomy. My question is did your

> doctor choose to treat it immediately or make you wait a week or so to

> see if your parathyroids kicked in? I am writing to someone right now

> who is struggling with tingling and feeling terribly uncomfortable from

> low calcium but her doctor refuses to give her anything, making her

> wait it out.

>

> I'd really appreciate some feedback on this.

>

> Thanks,

>

> Gail

> dx: 1968,TT,pap. & foll. well differentiated, RAI, rad.neck

> dissection, lung surgery, hashimoto, iodine resistant,

> existing thyca nodules in lungs. Last surgery 1972

>

>

>

>

> For more information regarding thyroid cancer visit www.thyca.org. If you

do not wish to belong to this group, you may UNSUBSCRIBE by sending a blank

email to thyca-unsubscribe

>

>

>

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I was put on calcium right away because my levels were low after

surgery. I did not find out until 3 months after surgery that my

parathyroid glands were either taken out or damaged during surgery at

least that is what my endo told me. I really did not know I was on

the calcium until I asked. My surgeon wrote in a letter to my endo

that they were identified and left in place. It seems this was kept

from me on purpose, because no one ever brought it up untill I

asked. She said she is going to wean me off the calcium and Vit. D

if the blood test show up ok but that if I felt that tingling I

should go back on it.

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Guest guest

>

> Hi all,

>

> I know there are plenty members here who experienced low calcium

> immediately following their thyroidectomy. My question is did your

> doctor choose to treat it immediately or make you wait a week or so

to

> see if your parathyroids kicked in? I am writing to someone right

now

> who is struggling with tingling and feeling terribly uncomfortable

from

> low calcium but her doctor refuses to give her anything, making her

> wait it out.

My Doc's indicated that my parathyroids would kick back in (and they

did) but treated me.. i was released from the hospital on a saturday,

went sunday for blood tests, calcium was low, they gave me iv

calcium, my levels didn't come back up so i was checked in for

repeated iv calcium and stayed till a tuesday, and had blood tests

each day to ensure that my calcium was at a good level and the

parathyroids were doing their job

barb

dx pap thyca 7/3/99, tt 8/13/99, rai 4/24/00 63mci... clean scan

12/15/00

>

> I'd really appreciate some feedback on this.

>

> Thanks,

>

> Gail

> dx: 1968,TT,pap. & foll. well differentiated, RAI, rad.neck

> dissection, lung surgery, hashimoto, iodine resistant,

> existing thyca nodules in lungs. Last surgery 1972

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My doctor was very concerned about it and wouldn't release me from the

hospital until symptoms abated and blood levels were OK. He gave IV

calcium and finally had to use rocaltrol (a form of vitamin D) to aid

absorption,which I stayed on for a month more as well. from what I've

heard the doctors tend to really worry about this and be pretty serious

about treating it. Being so low on calcium that youhave tingling is

pretty serious I think.

Gail Gundling wrote:

>

> Hi all,

>

> I know there are plenty members here who experienced low calcium

> immediately following their thyroidectomy. My question is did your

> doctor choose to treat it immediately or make you wait a week or so to

>

> see if your parathyroids kicked in? I am writing to someone right now

>

> who is struggling with tingling and feeling terribly uncomfortable

> from

> low calcium but her doctor refuses to give her anything, making her

> wait it out.

>

> I'd really appreciate some feedback on this.

>

> Thanks,

>

> Gail

> dx: 1968,TT,pap. & foll. well differentiated, RAI, rad.neck

> dissection, lung surgery, hashimoto, iodine resistant,

> existing thyca nodules in lungs. Last surgery 1972

>

>

>

>

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Guest guest

My doctor was very concerned about it and wouldn't release me from the

hospital until symptoms abated and blood levels were OK. He gave IV

calcium and finally had to use rocaltrol (a form of vitamin D) to aid

absorption,which I stayed on for a month more as well. from what I've

heard the doctors tend to really worry about this and be pretty serious

about treating it. Being so low on calcium that youhave tingling is

pretty serious I think.

Gail Gundling wrote:

>

> Hi all,

>

> I know there are plenty members here who experienced low calcium

> immediately following their thyroidectomy. My question is did your

> doctor choose to treat it immediately or make you wait a week or so to

>

> see if your parathyroids kicked in? I am writing to someone right now

>

> who is struggling with tingling and feeling terribly uncomfortable

> from

> low calcium but her doctor refuses to give her anything, making her

> wait it out.

>

> I'd really appreciate some feedback on this.

>

> Thanks,

>

> Gail

> dx: 1968,TT,pap. & foll. well differentiated, RAI, rad.neck

> dissection, lung surgery, hashimoto, iodine resistant,

> existing thyca nodules in lungs. Last surgery 1972

>

>

>

>

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Guest guest

Hi Gail, Following my RND my calcium was low, the parathyroids never did kick

back in. I was in the hosp a week after surgery--one reason being my calcium

was very. Had the calcium IV' etc. A

word of caution regarding the Vit D. The rocatrol taken by pts who suffer w/

hpth is a water soluble form and easily absorbed by the body. OTC Vit D can be

od'd on--don't overdo the dosage. I

agree w/ the gen consensus here on this site--this pt needs to be treated!!

Good luck to your friend.

lindalee@...

dx 12-96 follicular w/ bone mets

4 RAI= 840mCi 300mcg Synthroid

HPTH

Pgh., Pa

Gail Gundling wrote:

> Hi all,

>

> I know there are plenty members here who experienced low calcium

> immediately following their thyroidectomy. My question is did your

> doctor choose to treat it immediately or make you wait a week or so to

> see if your parathyroids kicked in? I am writing to someone right now

> who is struggling with tingling and feeling terribly uncomfortable from

> low calcium but her doctor refuses to give her anything, making her

> wait it out.

>

> I'd really appreciate some feedback on this.

>

> Thanks,

>

> Gail

> dx: 1968,TT,pap. & foll. well differentiated, RAI, rad.neck

> dissection, lung surgery, hashimoto, iodine resistant,

> existing thyca nodules in lungs. Last surgery 1972

>

>

> For more information regarding thyroid cancer visit www.thyca.org. If you do

not wish to belong to this group, you may UNSUBSCRIBE by sending a blank email

to thyca-unsubscribe

>

>

>

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Guest guest

,

>

> I know there are plenty members here who experienced low calcium

> immediately following their thyroidectomy.

I had that problem and in fact had to stay in the hospital for 5 days til it

got regulated. I was very uncomfortable....cramping, drawing in of my hands,

and the tingling. It gradually went away and I have no problem now 5 weeks

post tt.

Jan

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Hi Gail,

I too am a suffer of low calcium due to parathyroids being damaged and two of

them being removed. They started me on calcium right away. I was taking at one

point, 9000mg per day I have weined myself down to 1200mg every other day,

though sometimes the tingling will start again and then I take it daily for a

while. They've been watching my blood levels for calcium along with my TSH but

it's different every month. One month I'm low and the next normal and then low

again. Tell your friend to have her doctor do a blood test. I was having them

every other day for about three weeks.

Hope that helps

Jane

11/21/01 TT, dx Papillary Carcinoma 3.0cm x 2.5cm Right lobe, and under a cm

left lobe, 1/18/01 RAI i131 75.2mCi, 4/16/01 still slightly hypo at 5.6

Synththroid .150 daily

New Scan and RAI at the end of July, Radiologists says I'll need a larger dosage

this time around due to large remnant left behind.

Low Calcium post TT

Hi all,

I know there are plenty members here who experienced low calcium

immediately following their thyroidectomy. My question is did your

doctor choose to treat it immediately or make you wait a week or so to

see if your parathyroids kicked in? I am writing to someone right now

who is struggling with tingling and feeling terribly uncomfortable from

low calcium but her doctor refuses to give her anything, making her

wait it out.

I'd really appreciate some feedback on this.

Thanks,

Gail

dx: 1968,TT,pap. & foll. well differentiated, RAI, rad.neck

dissection, lung surgery, hashimoto, iodine resistant,

existing thyca nodules in lungs. Last surgery 1972

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Guest guest

HI,THEY REMOVED ALL OF PARATHROID WHEN I HAD MY SURGERY AND AS SOON AS I

RETURNED TO ROOM WAS HOOKED UP TO IV. IF MEMORY IS CORRECT I WAS GETTING 3

BAGS OF CALCIUM ADAY.I WAS KEPT IN HOSPITAL SIX DAYS UNTIL THEY GOT CALCIUM

TO NORMAL LEVELS. I NOW TAKE OSCAL 500mg TWICE ADAY AND ONE ROCALTROL.25mcg

ADAY.I STILL GET THE TINGELING IN MY HANDS AND FACE OCCASIONALLY AND WHEN I

DO I CHEW A TUMS.WORKS FOR ME.

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At 12:33 AM +0000 4/27/2001, Gail Gundling wrote:

>Hi all,

>

>I know there are plenty members here who experienced low calcium

>immediately following their thyroidectomy. My question is did your

>doctor choose to treat it immediately or make you wait a week or so to

>see if your parathyroids kicked in? I am writing to someone right now

>who is struggling with tingling and feeling terribly uncomfortable from

>low calcium but her doctor refuses to give her anything, making her

>wait it out.

>

>I'd really appreciate some feedback on this.

>

>Thanks,

>

>Gail

>dx: 1968,TT,pap. & foll. well differentiated, RAI, rad.neck

>dissection, lung surgery, hashimoto, iodine resistant,

>existing thyca nodules in lungs. Last surgery 1972

>

>

>

Hi Gail,

Did her doctor test her calcium level?

Immediately after my surgery, my calcium was a little low but recovered to

a " normal " level after a day. However, after the surgery (for about 3

weeks), my fingertips of my left hand tingled. Of course my doctor didn't

think anything of that since my calcium level was " normal. "

My assumption is that my true normal level of calcium is on the high end so

" normal " according to lab tests is low for me. However, it all worked out

in the end and I don't have any tingling anymore.

On a similar vein but not necessarily related, I was diagnosed with

osteopenia earlier this year. My thyroidectomy was last July. I had my

RAI in September then started on 0.150 mg levoxyl. Six weeks later, my TSH

was <0.01. Now I'm taking about 1500 mg of calcium with 600 IU of Vitamin

D.

I think it's too soon after my thyroid problems to blame that but it

certainly didn't help. Interestingly, I was part of a study about 5 years

ago to collect bone density data and my bone density was normal then.

Betty

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At 12:33 AM +0000 4/27/2001, Gail Gundling wrote:

>Hi all,

>

>I know there are plenty members here who experienced low calcium

>immediately following their thyroidectomy. My question is did your

>doctor choose to treat it immediately or make you wait a week or so to

>see if your parathyroids kicked in? I am writing to someone right now

>who is struggling with tingling and feeling terribly uncomfortable from

>low calcium but her doctor refuses to give her anything, making her

>wait it out.

>

>I'd really appreciate some feedback on this.

>

>Thanks,

>

>Gail

>dx: 1968,TT,pap. & foll. well differentiated, RAI, rad.neck

>dissection, lung surgery, hashimoto, iodine resistant,

>existing thyca nodules in lungs. Last surgery 1972

>

>

>

Hi Gail,

Did her doctor test her calcium level?

Immediately after my surgery, my calcium was a little low but recovered to

a " normal " level after a day. However, after the surgery (for about 3

weeks), my fingertips of my left hand tingled. Of course my doctor didn't

think anything of that since my calcium level was " normal. "

My assumption is that my true normal level of calcium is on the high end so

" normal " according to lab tests is low for me. However, it all worked out

in the end and I don't have any tingling anymore.

On a similar vein but not necessarily related, I was diagnosed with

osteopenia earlier this year. My thyroidectomy was last July. I had my

RAI in September then started on 0.150 mg levoxyl. Six weeks later, my TSH

was <0.01. Now I'm taking about 1500 mg of calcium with 600 IU of Vitamin

D.

I think it's too soon after my thyroid problems to blame that but it

certainly didn't help. Interestingly, I was part of a study about 5 years

ago to collect bone density data and my bone density was normal then.

Betty

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I was sent home with a prescription for calcium pills. None of my

parathyroid were damaged or removed, according to the pathology report. My

calcium levels never dropped too low but, I'm still taking the pills. They

will check my levels again in June but, until then a little extra calcium

won't hurt anyone.

Re: Low Calcium post TT

> I was put on calcium right away because my levels were low after

> surgery. I did not find out until 3 months after surgery that my

> parathyroid glands were either taken out or damaged during surgery at

> least that is what my endo told me. I really did not know I was on

> the calcium until I asked. My surgeon wrote in a letter to my endo

> that they were identified and left in place. It seems this was kept

> from me on purpose, because no one ever brought it up untill I

> asked. She said she is going to wean me off the calcium and Vit. D

> if the blood test show up ok but that if I felt that tingling I

> should go back on it.

>

>

>

> For more information regarding thyroid cancer visit www.thyca.org. If you

do not wish to belong to this group, you may UNSUBSCRIBE by sending a blank

email to thyca-unsubscribe

>

>

>

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Guest guest

>Thanks everyone for your input! The patient is now taking calcium and

>insisting on a blood test!!

>

>Gail

As a follow up, and before my memory fades anymore, I was at a

Thyroid cancer update session today as the token patient observer.

One speaker had some stats on parathyroid/calcium problems following

thyroidectomies.

point 1. the incidence varied quite widely by location. The worst

facilities where an order of magnitude worse than the best.

point 2. there was clearly a very different picture on the short term

- versa long term stats.

Some places were recording as high as 24% of patients having problems

in the short term.

The long term stats spread between a best of 0.3% to as bad as 9%.

The best was a French facility. Here in the UK the best was 1 or 2%

I will try and write up some more of the event - but I am not a very

good note taker.

So treat this as maybe-hearsay rather than fact.

Alan

====

Positive, adj.:

Mistaken at the top of one's voice.

-- Ambrose Bierce, " The Devil's Dictionary "

--

London, England

dx 9/97, tt 10/97; pap/fol with spine and rib mets; RAI(100 mCi

12/97, 244mCi 10/98); 150ug T4; -ve scan, +ve Tg; bilateral neck

dissection 7/99; EBR (60 Gray) to neck 10-11/99; 5AZA trial 9/2000;

Retinol trial 2/2001; Tg 238

ICQ# 67445221

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take Tums, but not within 4 hours of taking your cytomel/synthroid

bettyy@... wrote:

At 12:33 AM +0000 4/27/2001, Gail Gundling wrote:

>Hi all,

>

>I know there are plenty members here who experienced low calcium

>immediately following their thyroidectomy. My question is did your

>doctor choose to treat it immediately or make you wait a week or so to

>see if your parathyroids kicked in? I am writing to someone right now

>who is struggling with tingling and feeling terribly uncomfortable from

>low calcium but her doctor refuses to give her anything, making her

>wait it out.

>

>I'd really appreciate some feedback on this.

>

>Thanks,

>

>Gail

>dx: 1968,TT,pap. & foll. well differentiated, RAI, rad.neck

>dissection, lung surgery, hashimoto, iodine resistant,

>existing thyca nodules in lungs. Last surgery 1972

>

>

>

Hi Gail,

Did her doctor test her calcium level?

Immediately after my surgery, my calcium was a little low but recovered to

a " normal " level after a day. However, after the surgery (for about 3

weeks), my fingertips of my left hand tingled. Of course my doctor didn't

think anything of that since my calcium level was " normal. "

My assumption is that my true normal level of calcium is on the high end so

" normal " according to lab tests is low for me. However, it all worked out

in the end and I don't have any tingling anymore.

On a similar vein but not necessarily related, I was diagnosed with

osteopenia earlier this year. My thyroidectomy was last July. I had my

RAI in September then started on 0.150 mg levoxyl. Six weeks later, my TSH

was <0.01. Now I'm taking about 1500 mg of calcium with 600 IU of Vitamin

D.

I think it's too soon after my thyroid problems to blame that but it

certainly didn't help. Interestingly, I was part of a study about 5 years

ago to collect bone density data and my bone density was normal then.

Betty

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take Tums, but not within 4 hours of taking your cytomel/synthroid

bettyy@... wrote:

At 12:33 AM +0000 4/27/2001, Gail Gundling wrote:

>Hi all,

>

>I know there are plenty members here who experienced low calcium

>immediately following their thyroidectomy. My question is did your

>doctor choose to treat it immediately or make you wait a week or so to

>see if your parathyroids kicked in? I am writing to someone right now

>who is struggling with tingling and feeling terribly uncomfortable from

>low calcium but her doctor refuses to give her anything, making her

>wait it out.

>

>I'd really appreciate some feedback on this.

>

>Thanks,

>

>Gail

>dx: 1968,TT,pap. & foll. well differentiated, RAI, rad.neck

>dissection, lung surgery, hashimoto, iodine resistant,

>existing thyca nodules in lungs. Last surgery 1972

>

>

>

Hi Gail,

Did her doctor test her calcium level?

Immediately after my surgery, my calcium was a little low but recovered to

a " normal " level after a day. However, after the surgery (for about 3

weeks), my fingertips of my left hand tingled. Of course my doctor didn't

think anything of that since my calcium level was " normal. "

My assumption is that my true normal level of calcium is on the high end so

" normal " according to lab tests is low for me. However, it all worked out

in the end and I don't have any tingling anymore.

On a similar vein but not necessarily related, I was diagnosed with

osteopenia earlier this year. My thyroidectomy was last July. I had my

RAI in September then started on 0.150 mg levoxyl. Six weeks later, my TSH

was <0.01. Now I'm taking about 1500 mg of calcium with 600 IU of Vitamin

D.

I think it's too soon after my thyroid problems to blame that but it

certainly didn't help. Interestingly, I was part of a study about 5 years

ago to collect bone density data and my bone density was normal then.

Betty

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In response to:

<I know there are plenty members here who experienced low calcium

immediately following their thyroidectomy. My question is did your

doctor choose to treat it immediately or make you wait a week or so to

see if your parathyroids kicked in? I am writing to someone right now

who is struggling with tingling and feeling terribly uncomfortable

from low calcium but her doctor refuses to give her anything, making

her wait it out.>

I have no medical background at all, but my doc explained it to me

like this: He told me that nearly everyone's calcium drops

immediately after tt because the parthyroids are sensitive and

get " cranky " whenever a surgeon gets so close to them.

He said about 3 different things can happen:

1) your calcium will drop after surgery and will stay low [which will

require IV calcium]

2) your calcium will drop after surgery for just a few hours and then

will come back up all by itself to a normal level [which means no

calcium supplement needed]

3) your calcium will drop after surgery and will gradually come up to

normal after about 1-2 weeks post-op. [which means you need calcium

supplement, then bloodtest to check level, calcium dosing adjustment,

blood retested for level, etc. until it can be determined that your

own body is " in fact " producing the calcium; in which case the

supplement is discontinued]

He said that only " time will tell " and he kept a very close watch on

my calcium levels. Meaning that it was checked daily in the hospital

and was taking 3 Tums 4 times a day; then again at 8 days post-op

which was 4 days after I left the hospital-after which he had me to

stop taking the Tums; then tested my calcium level again 2 days later

and said that my calcium level was normal and there would be no need

for me take any calcium supplement. My calcium was just checked

again last Thursday and it's 9.0 in a range of 8.5-10.1, so it's OK.

You mentioned that your friends calcium was " low, " but how low is low?

--Chris

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In response to:

<I know there are plenty members here who experienced low calcium

immediately following their thyroidectomy. My question is did your

doctor choose to treat it immediately or make you wait a week or so to

see if your parathyroids kicked in? I am writing to someone right now

who is struggling with tingling and feeling terribly uncomfortable

from low calcium but her doctor refuses to give her anything, making

her wait it out.>

I have no medical background at all, but my doc explained it to me

like this: He told me that nearly everyone's calcium drops

immediately after tt because the parthyroids are sensitive and

get " cranky " whenever a surgeon gets so close to them.

He said about 3 different things can happen:

1) your calcium will drop after surgery and will stay low [which will

require IV calcium]

2) your calcium will drop after surgery for just a few hours and then

will come back up all by itself to a normal level [which means no

calcium supplement needed]

3) your calcium will drop after surgery and will gradually come up to

normal after about 1-2 weeks post-op. [which means you need calcium

supplement, then bloodtest to check level, calcium dosing adjustment,

blood retested for level, etc. until it can be determined that your

own body is " in fact " producing the calcium; in which case the

supplement is discontinued]

He said that only " time will tell " and he kept a very close watch on

my calcium levels. Meaning that it was checked daily in the hospital

and was taking 3 Tums 4 times a day; then again at 8 days post-op

which was 4 days after I left the hospital-after which he had me to

stop taking the Tums; then tested my calcium level again 2 days later

and said that my calcium level was normal and there would be no need

for me take any calcium supplement. My calcium was just checked

again last Thursday and it's 9.0 in a range of 8.5-10.1, so it's OK.

You mentioned that your friends calcium was " low, " but how low is low?

--Chris

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Hi

The patient is doing very poorly because of very poor medical

treatment. This is someone I don't know, and have only given supportive

information to on the internet. It is infuriating when doctors treat

patients with indifference. The patient is in an unknown experience

with no support or information. If not for the saved information I had

from Dr. Rolla and all the information you folks supplied she might not

have known what to do and what to ask for. She has now been to ER

repeatedly, had tetany and inadequate dosing of calciumm rolcaltrol was

added on Saturday and increased today. She had to argue with her doctor

today about getting another blood test. It's very disheartening to read

about doctors who treat patients this way.

I never experienced a calcium problem in my treatment so all the feed

back from everyone on the list really has helped.

Thanks,

Gail

dx1968,TT,pap. & foll. well differentiated, RAI, rad.neck

dissection, lung surgery, hashimoto, iodine resistant,

existing thyca nodules in lungs. Last surgery 1972

>

> I have no medical background at all, but my doc explained it to me

> like this: He told me that nearly everyone's calcium drops

> immediately after tt because the parthyroids are sensitive and

> get " cranky " whenever a surgeon gets so close to them.

> He said about 3 different things can happen:

> 1) your calcium will drop after surgery and will stay low [which will

> require IV calcium]

> 2) your calcium will drop after surgery for just a few hours and then

> will come back up all by itself to a normal level [which means no

> calcium supplement needed]

> 3) your calcium will drop after surgery and will gradually come up to

> normal after about 1-2 weeks post-op. [which means you need calcium

> supplement, then bloodtest to check level, calcium dosing adjustment,

> blood retested for level, etc. until it can be determined that your

> own body is " in fact " producing the calcium; in which case the

> supplement is discontinued]

>

> He said that only " time will tell " and he kept a very close watch on

> my calcium levels. Meaning that it was checked daily in the hospital

> and was taking 3 Tums 4 times a day; then again at 8 days post-op

> which was 4 days after I left the hospital-after which he had me to

> stop taking the Tums; then tested my calcium level again 2 days later

> and said that my calcium level was normal and there would be no need

> for me take any calcium supplement. My calcium was just checked

> again last Thursday and it's 9.0 in a range of 8.5-10.1, so it's OK.

>

> You mentioned that your friends calcium was " low, " but how low is low?

>

> --Chris

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