Guest guest Posted April 21, 2000 Report Share Posted April 21, 2000 These are also my main symptoms along with dizziness. I do have pain but the others bother me more. I am still waiting a definite dx. So far was told I have mild chiari. fatigue > Has anyone had chiari or cervical S. whose main symptoms were fatigue and tinnitus? I do not have much pain but my main symptoms are CFS and tinnitus. > thanks > Steve > feel free to back channel me > > > > _________ > NOTE: NCC refers to posts with No Chiari Content > Unsubscribe Yourself: chiari-unsubscribeegroups > Technical Help: chiari-owneregroups > WACMA Home: www.pressenter.com/~wacma > WACMA List: www.eGroups.com/group/chiari > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 3, 2000 Report Share Posted May 3, 2000 Just trying to catch up on days of messages. My main symptoms are dizziness, fatigue, eye problems and fatigue. I am 49 and since I went on natural progesteron cream my energy level has increased along with a better sense of well being. I am also on antidepressants, but have noticed I feel better since being on the cream. For the guys my dr. is now screaning his male patients for low testosterone(sp??) as this can also cause fatigue. Carol-Canada notdx. MRI May17 Re: fatigue >These are also my main symptoms along with dizziness. I do have pain but the >others bother me more. I am still waiting a definite dx. So far was told I >have mild chiari. > fatigue > > >> Has anyone had chiari or cervical S. whose main symptoms were fatigue and >tinnitus? I do not have much pain but my main symptoms are CFS and tinnitus. >> thanks >> Steve >> feel free to back channel me >> >> >> >> _________ >> NOTE: NCC refers to posts with No Chiari Content >> Unsubscribe Yourself: chiari-unsubscribeegroups >> Technical Help: chiari-owneregroups >> WACMA Home: www.pressenter.com/~wacma >> WACMA List: www.eGroups.com/group/chiari >> >> > > > >_________ >NOTE: NCC refers to posts with No Chiari Content >Unsubscribe Yourself: chiari-unsubscribeegroups >Technical Help: chiari-owneregroups >WACMA Home: www.pressenter.com/~wacma >WACMA List: www.eGroups.com/group/chiari > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 3, 2000 Report Share Posted May 3, 2000 Re: fatigue > > >>Hi Carol! Vision is my worst problem. Do you have it all the time or just >>when you exert yourself(more common) Mine is all the time(blurred, can't >>focus-have to squint) Please let me know!There are not too many of us with >>severe vision problems.. >> fatigue >>> > >>> > >>> >> Has anyone had chiari or cervical S. whose main symptoms were fatigue >>and >>> >tinnitus? I do not have much pain but my main symptoms are CFS and >>> tinnitus. >>> >> thanks >>> >> Steve >>> >> feel free to back channel me >>> >> >>> >> >>> >> >>> >> _________ >>> >> NOTE: NCC refers to posts with No Chiari Content >>> >> Unsubscribe Yourself: chiari-unsubscribeegroups >>> >> Technical Help: chiari-owneregroups >>> >> WACMA Home: www.pressenter.com/~wacma >>> >> WACMA List: www.eGroups.com/group/chiari >>> >> >>> >> >>> > >>> > >>> > >>> >_________ >>> >NOTE: NCC refers to posts with No Chiari Content >>> >Unsubscribe Yourself: chiari-unsubscribeegroups >>> >Technical Help: chiari-owneregroups >>> >WACMA Home: www.pressenter.com/~wacma >>> >WACMA List: www.eGroups.com/group/chiari >>> > >>> > >>> > >>> >>> >>> >>> _________ >>> NOTE: NCC refers to posts with No Chiari Content >>> Unsubscribe Yourself: chiari-unsubscribeegroups >>> Technical Help: chiari-owneregroups >>> WACMA Home: www.pressenter.com/~wacma >>> WACMA List: www.eGroups.com/group/chiari >>> >>> >>> >> > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 19, 2000 Report Share Posted May 19, 2000 Dorothy, I hope you are getting some REST! If you feel like you are going to need two whole days of rest, plan on four. So easy to say ahead of time, If I get feeling better I won't push myself....so hard to believe I will follow through. Thanks for continuing to share your experience, and I hope you are already feeling better! Carolyn A. Tucson On Thu, 18 May 2000 19:28:40 -0000 " Dorothy Boehms " writes: > I am now five months postop from decompression, laminectomy's, fusion > > and doing pretty well. For the past week or so I have pushed > myself, > gotten little sleep. Today I am SO fatigued and I am getting my > words mixed up......anyone else have this happen??? > > Thanks! > Dorothy > > > > Help section: /help/ > > NOTE: NCC refers to posts with No Chiari Content > > Unsubscribe Yourself: chiari-unsubscribeegroups > > WACMA Home: www.pressenter.com/~wacma > > WACMA List: www.eGroups.com/group/chiari > > ________________________________________________________________ YOU'RE PAYING TOO MUCH FOR THE INTERNET! Juno now offers FREE Internet Access! Try it today - there's no risk! For your FREE software, visit: http://dl.www.juno.com/get/tagj. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 19, 2000 Report Share Posted May 19, 2000 Dorothy, I hope you are getting some REST! If you feel like you are going to need two whole days of rest, plan on four. So easy to say ahead of time, If I get feeling better I won't push myself....so hard to believe I will follow through. Thanks for continuing to share your experience, and I hope you are already feeling better! Carolyn A. Tucson On Thu, 18 May 2000 19:28:40 -0000 " Dorothy Boehms " writes: > I am now five months postop from decompression, laminectomy's, fusion > > and doing pretty well. For the past week or so I have pushed > myself, > gotten little sleep. Today I am SO fatigued and I am getting my > words mixed up......anyone else have this happen??? > > Thanks! > Dorothy > > > > Help section: /help/ > > NOTE: NCC refers to posts with No Chiari Content > > Unsubscribe Yourself: chiari-unsubscribeegroups > > WACMA Home: www.pressenter.com/~wacma > > WACMA List: www.eGroups.com/group/chiari > > ________________________________________________________________ YOU'RE PAYING TOO MUCH FOR THE INTERNET! Juno now offers FREE Internet Access! Try it today - there's no risk! For your FREE software, visit: http://dl.www.juno.com/get/tagj. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 19, 2000 Report Share Posted May 19, 2000 > On Thu, 18 May 2000 19:28:40 -0000 " Dorothy Boehms " > writes: > > I am now five months postop from decompression, laminectomy's, fusion > > > > and doing pretty well. For the past week or so I have pushed > > myself, > > gotten little sleep. Today I am SO fatigued and I am getting my > > words mixed up......anyone else have this happen??? > > > > Thanks! > > Dorothy > > hi dorothy & all i'm not any kind of expert on this, but it seems to me that it can take many, many months to completely recover from the surgery itself...especially since you got the triple whammy of chiari decompression, extensive cervical decompression AND cervical fusion. added to that, the length of time you were sick before surgery may have some impact on recovery...your body is not only trying to recover from surgery, but get back what it lost over 10+ years of deconditioning. rest & let your body recover. just my 2¢. june in calif. dx of cervical stenosis, POTS, etc. Recovering from surgery on 4/24 with Dr. Heffez (lam's on c-3 thru c-6, partial lams of c-2 & c-7, fusion of c-3 thru c-7...i think, forgot to ask & haven't got report yet =). ( & yes, dorothy & marianne, it HURTS! :-p) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 19, 2000 Report Share Posted May 19, 2000 > On Thu, 18 May 2000 19:28:40 -0000 " Dorothy Boehms " > writes: > > I am now five months postop from decompression, laminectomy's, fusion > > > > and doing pretty well. For the past week or so I have pushed > > myself, > > gotten little sleep. Today I am SO fatigued and I am getting my > > words mixed up......anyone else have this happen??? > > > > Thanks! > > Dorothy > > hi dorothy & all i'm not any kind of expert on this, but it seems to me that it can take many, many months to completely recover from the surgery itself...especially since you got the triple whammy of chiari decompression, extensive cervical decompression AND cervical fusion. added to that, the length of time you were sick before surgery may have some impact on recovery...your body is not only trying to recover from surgery, but get back what it lost over 10+ years of deconditioning. rest & let your body recover. just my 2¢. june in calif. dx of cervical stenosis, POTS, etc. Recovering from surgery on 4/24 with Dr. Heffez (lam's on c-3 thru c-6, partial lams of c-2 & c-7, fusion of c-3 thru c-7...i think, forgot to ask & haven't got report yet =). ( & yes, dorothy & marianne, it HURTS! :-p) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 19, 2000 Report Share Posted May 19, 2000 > On Thu, 18 May 2000 19:28:40 -0000 " Dorothy Boehms " > writes: > > I am now five months postop from decompression, laminectomy's, fusion > > > > and doing pretty well. For the past week or so I have pushed > > myself, > > gotten little sleep. Today I am SO fatigued and I am getting my > > words mixed up......anyone else have this happen??? > > > > Thanks! > > Dorothy > > hi dorothy & all i'm not any kind of expert on this, but it seems to me that it can take many, many months to completely recover from the surgery itself...especially since you got the triple whammy of chiari decompression, extensive cervical decompression AND cervical fusion. added to that, the length of time you were sick before surgery may have some impact on recovery...your body is not only trying to recover from surgery, but get back what it lost over 10+ years of deconditioning. rest & let your body recover. just my 2¢. june in calif. dx of cervical stenosis, POTS, etc. Recovering from surgery on 4/24 with Dr. Heffez (lam's on c-3 thru c-6, partial lams of c-2 & c-7, fusion of c-3 thru c-7...i think, forgot to ask & haven't got report yet =). ( & yes, dorothy & marianne, it HURTS! :-p) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 20, 2000 Report Share Posted May 20, 2000 hi, This happens to me daily!!!! I'm good for about half a day, then i find a comfy chair, blanket, and my son. =0) love, G in Idaho 12/99 decomp 1/00 repair csf leak & staph fatigue > I am now five months postop from decompression, laminectomy's, fusion > and doing pretty well. For the past week or so I have pushed myself, > gotten little sleep. Today I am SO fatigued and I am getting my > words mixed up......anyone else have this happen??? > > Thanks! > Dorothy > > > > Help section: /help/ > > NOTE: NCC refers to posts with No Chiari Content > > Unsubscribe Yourself: chiari-unsubscribeegroups > > WACMA Home: www.pressenter.com/~wacma > > WACMA List: www.eGroups.com/group/chiari > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 20, 2000 Report Share Posted May 20, 2000 hi, This happens to me daily!!!! I'm good for about half a day, then i find a comfy chair, blanket, and my son. =0) love, G in Idaho 12/99 decomp 1/00 repair csf leak & staph fatigue > I am now five months postop from decompression, laminectomy's, fusion > and doing pretty well. For the past week or so I have pushed myself, > gotten little sleep. Today I am SO fatigued and I am getting my > words mixed up......anyone else have this happen??? > > Thanks! > Dorothy > > > > Help section: /help/ > > NOTE: NCC refers to posts with No Chiari Content > > Unsubscribe Yourself: chiari-unsubscribeegroups > > WACMA Home: www.pressenter.com/~wacma > > WACMA List: www.eGroups.com/group/chiari > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 20, 2000 Report Share Posted May 20, 2000 hi, This happens to me daily!!!! I'm good for about half a day, then i find a comfy chair, blanket, and my son. =0) love, G in Idaho 12/99 decomp 1/00 repair csf leak & staph fatigue > I am now five months postop from decompression, laminectomy's, fusion > and doing pretty well. For the past week or so I have pushed myself, > gotten little sleep. Today I am SO fatigued and I am getting my > words mixed up......anyone else have this happen??? > > Thanks! > Dorothy > > > > Help section: /help/ > > NOTE: NCC refers to posts with No Chiari Content > > Unsubscribe Yourself: chiari-unsubscribeegroups > > WACMA Home: www.pressenter.com/~wacma > > WACMA List: www.eGroups.com/group/chiari > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 5, 2008 Report Share Posted May 5, 2008 Someone was asking about help with fatigue. I take Source Naturals ENADA (NADH) 5mg 1 per day; seems to help. Also, below is reference I found using Acetyl-L-Carnitine for fatigue in MS. It's worth a try! Beverly Acetyl L-carnitine Carnitine and acetyl L-carnitine (ALC) facilitate the transport of fatty acids across the mitochondrial membrane. The acetyl group of ALC is used in the biosynthesis of acetyl-CoA, a key intermediary in the generation of cellular energy. Depletion of ALC increases mitochondrial stress. Supplementation with ALC reduced fatigue in Chronic Fatigue Syndrome [Vermeulen RC, Scholte HR. Exploratory open label, randomized study of acetyl- and propionylcarnitine in chronic fatigue syndrome. Psychosom Med. 2004 Mar-Apr;66(2):276-82.] It also alleviated fatigue in MS. [Tomassini V et al., Comparison of the effects of acetyl L-carnitine and amantadine for the treatment of fatigue in multiple sclerosis: results of a pilot, randomised, double-blind, crossover trial. J Neurol Sci. 2004 Mar 15;218(1-2):103-8.] --------------------------------- Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now. Quote Link to comment Share on other sites More sharing options...
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