Guest guest Posted March 19, 2000 Report Share Posted March 19, 2000 Gals, this is about a VV patient who just got diagnosed with fibro. Stop now if that isn't you. I don't think it's breaking any confidences to say that I have two relatives (unrelated to each other) with VV. One just saw Dr. St. Amand yesterday in LA. She has had: bowel disease, candidiasis, and VV. He examined her and said she was one of the worst cases of fibro he has seen. He said in 20 years she would have had arthritis. He showed her places in her body where, I guess it was the crystals of phosphate? were formed, and she could feel them but had thought everyone was like that. He was warm, extremely helpful, gave her much information, and told her the things she needs to avoid that contain salicilates. He himself has had fibro, and one of the people who works with him had VV and is all right now, having taken guai. I care about all of you and hope that each one of you will at least read " What Your Doctor May Not Tell You About Fibromyalgia " so you can be informed of this treatment that (other than Estrace) has helped more people than anything I've seen in my 2 years on the list. It seems to me that Estrace, if it is going to help, helps more comfortably than guai. Guai can make the person feel bad all over while the phosphates are leaving the body, as I understand it. Isn't it true (Dee, dear expert) that Estrace is more local in any discomfort it causes? Anyway, there is hope, gals! Two years ago nobody was saying they were better...well, maybe one person. Forgive me if I say, because I don't want to interfere, but to help, it gives me an awful feeling when someone is planning surgery before trying some of these things. This is not advice, just feedback. Warmly, Beth Quote Link to comment Share on other sites More sharing options...
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