Guest guest Posted September 14, 2006 Report Share Posted September 14, 2006 who out there has this form of ms and what treatments are you getting,its my understanding theres some really good trials going on with this form. Stay in the know. Pulse on the new Yahoo.com. Check it out. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 14, 2006 Report Share Posted September 14, 2006 Have you been diagnosed with Primary Progressive, Jeff? Sharon Sharon (MSersLife Group Owner/Creator) It's not easy taking my problems one at a time when they refuse to get in line. ~Ashleigh Brilliant PRIMARY PROGRESSIVE MS who out there has this form of ms and what treatments are you getting,its my understanding theres some really good trials going on with this form. Stay in the know. Pulse on the new Yahoo.com. Check it out. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 14, 2006 Report Share Posted September 14, 2006 yes i have is that a bad thing?Sharon Marsden wrote: Have you been diagnosed with Primary Progressive, Jeff? Sharon Sharon (MSersLife Group Owner/Creator) It's not easy taking my problems one at a time when they refuse to get in line. ~Ashleigh Brilliant PRIMARY PROGRESSIVE MS who out there has this form of ms and what treatments are you getting,its my understanding theres some really good trials going on with this form. Stay in the know. Pulse on the new Yahoo.com. Check it out. DIPLOMACY DOES NOTWORK WHEN DEALING WITHNUT'S HELL BENT ONDESTROYING US. How low will we go? Check out Yahoo! Messenger’s low PC-to-Phone call rates. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 14, 2006 Report Share Posted September 14, 2006 I have a very good friend with PPMS. She said she doesn't have good days and bad days--she just has days that are all about the same. She doesn't have exacerbations or relapses. When were you told it was PPMS? I don't believe they prescribe any of the CRAB T (Copaxone, Rebif, Avonex, Betaseron or Tysabri) drugs for PPMS. I have heard of people with PPMS taking LDN though. Sharon (MSersLife Group Owner/Creator) It's not easy taking my problems one at a time when they refuse to get in line. ~Ashleigh Brilliant PRIMARY PROGRESSIVE MS who out there has this form of ms and what treatments are you getting,its my understanding theres some really good trials going on with this form. Stay in the know. Pulse on the new Yahoo.com. Check it out. DIPLOMACY DOES NOTWORK WHEN DEALING WITHNUT'S HELL BENT ONDESTROYING US. How low will we go? Check out Yahoo! Messenger¢s low PC-to-Phone call rates. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 15, 2006 Report Share Posted September 15, 2006 Sharon your friend same as me,progressive ms 25 years no remissions...praying never lose use of right arm only part body can move unaided. Betaferon only drug offered in UK but not for PPMS.Nothing to help,tried baclofen made me want sleep all time may be dependant carers help 24/7 but rather stay alert...NOTHING wrong with my brain...touching wood...lol take care CHRIS UK XX I have a very good friend with PPMS. She said she doesn't have good days and bad days--she just has days that are all about the same. She doesn't have exacerbations or relapses. When were you told it was PPMS? I don't believe they prescribe any of the CRAB T (Copaxone, Rebif, Avonex, Betaseron or Tysabri) drugs for PPMS. I have heard of people with PPMS taking LDN though. Sharon (MSersLife Group Owner/Creator) It's not easy taking my problems one at a time when they refuse to get in line. ~Ashleigh Brilliant PRIMARY PROGRESSIVE MS who out there has this form of ms and what treatments are you getting,its my understanding theres some really good trials going on with this form. Stay in the know. Pulse on the new Yahoo.com. Check it out. DIPLOMACY DOES NOTWORK WHEN DEALING WITHNUT'S HELL BENT ONDESTROYING US. How low will we go? Check out Yahoo! Messenger¢s low PC-to-Phone call rates. Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.