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Hi Christy,

My heart goes out to you. You, like me, are trying everything and it seems

like we are only getting worse. I just know that some day we have to get

better.

But, sometimes I think we have to get worse before better. It is so hard to

be in even more pain but it does make sense that if it is a nerve that is

trapped by getting you in line would help, despite the initial pain.

You are in my prayers.

Love,

Sandi

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Hi Christy,

My heart goes out to you. You, like me, are trying everything and it seems

like we are only getting worse. I just know that some day we have to get

better.

But, sometimes I think we have to get worse before better. It is so hard to

be in even more pain but it does make sense that if it is a nerve that is

trapped by getting you in line would help, despite the initial pain.

You are in my prayers.

Love,

Sandi

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Ted-

I have not had any test to prove or disprove pudendal neuralgia. The nurse

practioner I saw made the diagnosis based on symptoms and exam. She did a

thorough musclular exam and feels that my pudendal nerve is entraped in

muscles. My dad is an MD, and he is in the process of scheduling an MRI for

me. My main symtpom is burning. I have widespread vulvar burning as well as

burning down the backs of my legs and the soles of my feet. My vulvar

burning feels like a cross between a chemical burn and a sunburn and the

backs of my legs feels exactly like a sunburn. I do not have numbness or

tingling. I've been tested for diabetes as I have lost a lot of weight

recently, and it was negative.

For what it's worth, I have scoliosis in my lumbar spine and IBS. Are you in

the healthcare field?

Thanks for responding. I really am at my wit's end and very depressed.

Christy

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Ted-

I do have muscle weakness in my lower abdomen as well as some of my upper

legs. I have pain around my hips too from tight muscles caused by trying to

guard the area.

Christy

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