Newly Diagnosed

July 6, 2002

Re: how long does it take for amitriptyline to work?

Hi ,I had constant 24/7 burning. I started at 5 mg and worked my way up gradually to 75 mg. The pain dissipated gradually and then stopped at 75 mg. This took about a month or so. That was back in 1995 so it's been about 7 years now. I'll stay on it forever if I have to though.As to side effects, I had dry mouth, constipation (I used a stool softener to help out with this though), drowsiness (take it before bedtime so the drowsiness won't effect you too much). All those symptoms dissipated though. I don't have any of them now. The only long-term side effect is weight gain. I lost 15 pounds due to the stress of not knowing why I was in such pain (didn't eat, didn't sleep) and was down to 95 pounds. When I went on the med and didn't have pain, I pigged out! Unfortunately, I was so happy to be eating that I ate anything and a lot of it including Hershey Kisses by the bagful. I'm not sure if the medicine itself causes weight gain but it does make you crave sweets which I didn't catch on to until I gained the weight. I'm now exercising and not really dieting but eating healthier to try to get some of it off. I'm 140 pounds now and that's where I've stabilized. Well, I guess that's it. Let me know if you have any questions.I'm hoping you find something to get rid of the pain soon!Sheri

Hi everyoneI was wondering what everyone elses experiences were with amitriptyline (elavil).I started taking it just over 2 months ago, I started off on 25mg a day for a month and then increased to 50mg which ive been on for just over a month. Im seeing my GP again next week and am hoping she's going to increase dose because it doesnt seem to have improved my symptoms at all.I would like to know if amitryiptyline has helped anyone else with vulvar/urinary problems and how long it took to start working/fully work to help with symptoms. Also what dose is it best to be on and what dose has helped with other sufferers. Also whats the highest dose that you can be on??ThanksAVON Independent Sales Representative Sherimw@... / District 2606, Frederick landAVON Breast Cancer 3-Day DC Concierge Crew 2000; Food Service Crew 2001; Check-In 2002It's Not Having What You Want; It's Wanting What You've Got (Sheryl Crowe)Nobody Has Everything, But Everybody Has Something (Iyanla)*****END OF MESSAGE*****-------------------------------------------------Yahoo members can click on:http://groups.yahoo.com/group/VulvarDisordersOn the left side is a listing including bookmarks andFiles . If you click on those you will find much additional information posted by our members.To post message: VulvarDisorders To Subscribe: VulvarDisorders-subscribe Unsubscribe: VulvarDisorders-unsubscribe List owner: VulvarDisorders-owner *****

July 6, 2002

Re: how long does it take for amitriptyline to work?

Hi ,I had constant 24/7 burning. I started at 5 mg and worked my way up gradually to 75 mg. The pain dissipated gradually and then stopped at 75 mg. This took about a month or so. That was back in 1995 so it's been about 7 years now. I'll stay on it forever if I have to though.As to side effects, I had dry mouth, constipation (I used a stool softener to help out with this though), drowsiness (take it before bedtime so the drowsiness won't effect you too much). All those symptoms dissipated though. I don't have any of them now. The only long-term side effect is weight gain. I lost 15 pounds due to the stress of not knowing why I was in such pain (didn't eat, didn't sleep) and was down to 95 pounds. When I went on the med and didn't have pain, I pigged out! Unfortunately, I was so happy to be eating that I ate anything and a lot of it including Hershey Kisses by the bagful. I'm not sure if the medicine itself causes weight gain but it does make you crave sweets which I didn't catch on to until I gained the weight. I'm now exercising and not really dieting but eating healthier to try to get some of it off. I'm 140 pounds now and that's where I've stabilized. Well, I guess that's it. Let me know if you have any questions.I'm hoping you find something to get rid of the pain soon!Sheri

Hi everyoneI was wondering what everyone elses experiences were with amitriptyline (elavil).I started taking it just over 2 months ago, I started off on 25mg a day for a month and then increased to 50mg which ive been on for just over a month. Im seeing my GP again next week and am hoping she's going to increase dose because it doesnt seem to have improved my symptoms at all.I would like to know if amitryiptyline has helped anyone else with vulvar/urinary problems and how long it took to start working/fully work to help with symptoms. Also what dose is it best to be on and what dose has helped with other sufferers. Also whats the highest dose that you can be on??ThanksAVON Independent Sales Representative Sherimw@... / District 2606, Frederick landAVON Breast Cancer 3-Day DC Concierge Crew 2000; Food Service Crew 2001; Check-In 2002It's Not Having What You Want; It's Wanting What You've Got (Sheryl Crowe)Nobody Has Everything, But Everybody Has Something (Iyanla)*****END OF MESSAGE*****-------------------------------------------------Yahoo members can click on:http://groups.yahoo.com/group/VulvarDisordersOn the left side is a listing including bookmarks andFiles . If you click on those you will find much additional information posted by our members.To post message: VulvarDisorders To Subscribe: VulvarDisorders-subscribe Unsubscribe: VulvarDisorders-unsubscribe List owner: VulvarDisorders-owner *****

July 6, 2002

Hello, everyone,

I am a newly diagnosed VD sufferer. At only 27 years old, this terrible condition began to plug me and my family. 2 years ago I met my husband and just delivered my first babyboy. That's when I realized that I had a terrible burning in vagina. It appears only during the intercourse. After extensive reading on internet I link it with constant, untreatable yeast infections and my previous 10 year history of hpv. I haven't had an outbreak for so long, but it seems that there is a strong correlation between those 3 conditions. My GyN was clueless about vestibulitis and was treating yeast month after month. Finally I found an experienced physician who told me what that burning might be. Considering that just 3 month ago I gave birth to my son, and with my history I probably will be taking interferon shots and elavil.

Here are my questions, if anyone can shed some light on my depressing situation

Elavil-does it effect the mind at all? For how long is it suppose to be taken?

Interferon-How painful are those shots and where are they administered?

I am usually a very upbeat and lifelong person. However I see that there no definite cure to this problem. Now I am shifting to being depressed and desperate.Certainly, I don't want to burden my family's happiness. My husband is very supportive, hopeful and a wonderful person, I must add. And I want to make him happy living with me.

Thank you for listening and sharing.

Looking forward contributing and communicating with everybody.

Re: how long does it take for amitriptyline to work?

Hi ,I had constant 24/7 burning. I started at 5 mg and worked my way up gradually to 75 mg. The pain dissipated gradually and then stopped at 75 mg. This took about a month or so. That was back in 1995 so it's been about 7 years now. I'll stay on it forever if I have to though.As to side effects, I had dry mouth, constipation (I used a stool softener to help out with this though), drowsiness (take it before bedtime so the drowsiness won't effect you too much). All those symptoms dissipated though. I don't have any of them now. The only long-term side effect is weight gain. I lost 15 pounds due to the stress of not knowing why I was in such pain (didn't eat, didn't sleep) and was down to 95 pounds. When I went on the med and didn't have pain, I pigged out! Unfortunately, I was so happy to be eating that I ate anything and a lot of it including Hershey Kisses by the bagful. I'm not sure if the medicine itself causes weight gain but it does make you crave sweets which I didn't catch on to until I gained the weight. I'm now exercising and not really dieting but eating healthier to try to get some of it off. I'm 140 pounds now and that's where I've stabilized. Well, I guess that's it. Let me know if you have any questions.I'm hoping you find something to get rid of the pain soon!Sheri

Hi everyoneI was wondering what everyone elses experiences were with amitriptyline (elavil).I started taking it just over 2 months ago, I started off on 25mg a day for a month and then increased to 50mg which ive been on for just over a month. Im seeing my GP again next week and am hoping she's going to increase dose because it doesnt seem to have improved my symptoms at all.I would like to know if amitryiptyline has helped anyone else with vulvar/urinary problems and how long it took to start working/fully work to help with symptoms. Also what dose is it best to be on and what dose has helped with other sufferers. Also whats the highest dose that you can be on??ThanksAVON Independent Sales Representative Sherimw@... / District 2606, Frederick landAVON Breast Cancer 3-Day DC Concierge Crew 2000; Food Service Crew 2001; Check-In 2002It's Not Having What You Want; It's Wanting What You've Got (Sheryl Crowe)Nobody Has Everything, But Everybody Has Something (Iyanla)*****END OF MESSAGE*****-------------------------------------------------Yahoo members can click on:http://groups.yahoo.com/group/VulvarDisordersOn the left side is a listing including bookmarks andFiles . If you click on those you will find much additional information posted by our members.To post message: VulvarDisorders To Subscribe: VulvarDisorders-subscribe Unsubscribe: VulvarDisorders-unsubscribe List owner: VulvarDisorders-owner *****

July 6, 2002

Hello, everyone,

I am a newly diagnosed VD sufferer. At only 27 years old, this terrible condition began to plug me and my family. 2 years ago I met my husband and just delivered my first babyboy. That's when I realized that I had a terrible burning in vagina. It appears only during the intercourse. After extensive reading on internet I link it with constant, untreatable yeast infections and my previous 10 year history of hpv. I haven't had an outbreak for so long, but it seems that there is a strong correlation between those 3 conditions. My GyN was clueless about vestibulitis and was treating yeast month after month. Finally I found an experienced physician who told me what that burning might be. Considering that just 3 month ago I gave birth to my son, and with my history I probably will be taking interferon shots and elavil.

Here are my questions, if anyone can shed some light on my depressing situation

Elavil-does it effect the mind at all? For how long is it suppose to be taken?

Interferon-How painful are those shots and where are they administered?

I am usually a very upbeat and lifelong person. However I see that there no definite cure to this problem. Now I am shifting to being depressed and desperate.Certainly, I don't want to burden my family's happiness. My husband is very supportive, hopeful and a wonderful person, I must add. And I want to make him happy living with me.

Thank you for listening and sharing.

Looking forward contributing and communicating with everybody.

Re: how long does it take for amitriptyline to work?

Hi ,I had constant 24/7 burning. I started at 5 mg and worked my way up gradually to 75 mg. The pain dissipated gradually and then stopped at 75 mg. This took about a month or so. That was back in 1995 so it's been about 7 years now. I'll stay on it forever if I have to though.As to side effects, I had dry mouth, constipation (I used a stool softener to help out with this though), drowsiness (take it before bedtime so the drowsiness won't effect you too much). All those symptoms dissipated though. I don't have any of them now. The only long-term side effect is weight gain. I lost 15 pounds due to the stress of not knowing why I was in such pain (didn't eat, didn't sleep) and was down to 95 pounds. When I went on the med and didn't have pain, I pigged out! Unfortunately, I was so happy to be eating that I ate anything and a lot of it including Hershey Kisses by the bagful. I'm not sure if the medicine itself causes weight gain but it does make you crave sweets which I didn't catch on to until I gained the weight. I'm now exercising and not really dieting but eating healthier to try to get some of it off. I'm 140 pounds now and that's where I've stabilized. Well, I guess that's it. Let me know if you have any questions.I'm hoping you find something to get rid of the pain soon!Sheri

Hi everyoneI was wondering what everyone elses experiences were with amitriptyline (elavil).I started taking it just over 2 months ago, I started off on 25mg a day for a month and then increased to 50mg which ive been on for just over a month. Im seeing my GP again next week and am hoping she's going to increase dose because it doesnt seem to have improved my symptoms at all.I would like to know if amitryiptyline has helped anyone else with vulvar/urinary problems and how long it took to start working/fully work to help with symptoms. Also what dose is it best to be on and what dose has helped with other sufferers. Also whats the highest dose that you can be on??ThanksAVON Independent Sales Representative Sherimw@... / District 2606, Frederick landAVON Breast Cancer 3-Day DC Concierge Crew 2000; Food Service Crew 2001; Check-In 2002It's Not Having What You Want; It's Wanting What You've Got (Sheryl Crowe)Nobody Has Everything, But Everybody Has Something (Iyanla)*****END OF MESSAGE*****-------------------------------------------------Yahoo members can click on:http://groups.yahoo.com/group/VulvarDisordersOn the left side is a listing including bookmarks andFiles . If you click on those you will find much additional information posted by our members.To post message: VulvarDisorders To Subscribe: VulvarDisorders-subscribe Unsubscribe: VulvarDisorders-unsubscribe List owner: VulvarDisorders-owner *****

June 8, 2008

Hi!

My name is Kat and I was recently diagnosed with ms.....kinda scared

right now and not sure if I wanna believe 1 man's opinion. I have

applied for SSI so maybe I can go to there doctor's for other

opinions. Not real sure as what else to say as it is all to surreal

right now.

Thanks for giving me somewhere to go.

Kat

June 8, 2008

Hi Lat,

& nbsp;

Hang in there...............I was diag 2 years ago with very little symptoms and

then

...........BAM. & nbsp; That was in Feb and now am on Copaxone. & nbsp;

& nbsp;

Keep a positiveattitude..........I know it might bre hard right now but it will

be OK. & nbsp; Mzke sure you have a good doctor..........one who will listen to

you. & nbsp; Build up your immune system.......probiotiics by healthy

trinity...............Vit C, Zinc ..........omega 3 (good ones)

and my doctor told me to take Vit D. & nbsp; A good book is Healing MS. & nbsp;

Watch what you eat. & nbsp;

& nbsp;

No diet drinks

no sugar .And exercise. & nbsp;

& nbsp;

jesusiscoming_ruready@... is my address if you want to talk.

& nbsp;

Terry & nbsp; & nbsp;

From: kat_n_jessie & lt;kat_n_jessie@... & gt;

Subject: Newly Diagnosed

To: mscured

Date: Sunday, June 8, 2008, 6:51 PM

Hi!

My name is Kat and I was recently diagnosed with ms.....kinda scared

right now and not sure if I wanna believe 1 man's opinion. I have

applied for SSI so maybe I can go to there doctor's for other

opinions. Not real sure as what else to say as it is all to surreal

right now.

Thanks for giving me somewhere to go.

Kat

June 9, 2008

Another excellent WebSite for those of us and our caregivers who are fighting

MS

www.patientslikeme.com , lots of help and direction for MS sufferers.

June 9, 2008

HANG IN THEIR KAT, all of us fighting MS know the problems that come with it,

here is a WebSite that has helped me tremendously. www.patientslikeme.com ,

you will find a number of different types of MS sufferers at the site and you

can also input what you want, you don't have to be a perfect typist... REMEMBER?

MS!

August 27, 2009

>

> My husband Ray has had prostate cancer for 8 yrs, diagnosed aged 69 with psa

15.6, T2, Gleason 7, was treated with radiotherapy then hormones for 3yrs. psa

negligible until 1 year ago when it started rising and doubling quickly, so went

back on hormones and still is,psa low but gets depressed at the side effects.

> Sadly yesterday our son 46, married with 2 children boy aged 12 and

girl aged 9, was diagnosed with PCa too, after very reluctantly, on our

suggestion, persuading a nurse to add psa test on his blood form. First Psa 9.1,

second (after suggestions how to reduce it) 6.2 The resulting biopsy has shown

that he has 5 out of 10 cores positive, T1, Gleason 6 but dont know how the

score made up.

> He saw the urolgist yesterday who suggested prostatectomy as his first choice

but radiotherapy also mentioned along with various other sugggestions. He was

shell shocked, been in denial a bit, and told me the uro has said something

which thought meant his sex life would be virtually over and gave him

leaflets about pumps etc.

The whole family devastated, and he can't take it all in, but after reading all

the posts on here for 8 years I have suggested to him that he looks at all

options and tries to find out as much as he can.

> I wondered what anyone on here might suggest as to the best way forward,

bearing in mind he is only 46 and very concerned about saving as much sexual

function as possible, and also is it best for my husbad to stay on hormones, or

rest from that for a while return to it as and when needed.

> Worried wife and Mum, Ann

>

Hi Ann,

My hasband has prostate cancer, he is 64. Our Uro also suggested surgery. So we

went to a very well known surgeon, date was set for last May. My husband had a

PSA of 7.9 and Gleason of 9, stage T2, a very agressive form of cancer. I

started doing research on-line and I joined this group. We saw five different

specialists and they all agreed that my husband needed Hormone Therapy right

away to slow or even stop the spread of the cancer. We went into Boston, MA,

Mass. General and we saw a specialist on Proton Beam but my husband was told

that the lymph nodes had to be radiated also. He suggested IMRT treatment. So he

went through 42 IMRT treatments and was on hormones for one year. His PSA now is

0.01. But he is still having side effects from the hormones, hot flashes and

fatigue. He started going to the gym and I have noticed that he's not falling

asleep in his chair so much. We were told exercise was the best thing he could

do to help fight the fatigue. He has his next PSA test in October, so I am kind

of holding my breath that it stays down. I also heard it could jump around for a

while. It's such a horrible thing for the whole family. Especially for the wife

who is very much effected by the ED. He's using a VED system with very little

success, I feel so bad that he has to go through all that.

I will keep your family in my thoughts and prayers.

Best Wishes,

Sheila

August 27, 2009