Guest guest Posted April 28, 2008 Report Share Posted April 28, 2008 Hi I was recently at a big MS Conference here in the UK. The very respected Neuro Alasdair Coles spoke of his frustration as a LDN trial fell-through. He described how he had secured funding for a trial, via the UK MS Society, and worked with the lady who had been pushing LDN in the UK (didn't name her though). Apparently, all was on course until they contacted a Dr. Bahrain? Apologies for any spelling errors there. Here is where it fell down. Alasdair Coles was saying that he wanted Dr. Bahrain to work with them as he and his colleagues had been presribing LDN for patients and were some of the main advocators of LDN. However, what infuriated Alasdair Coles after writing several times to Dr. Bahrain, he was eventually told Dr. Bahrain was-quote/unquote " Too Busy " to help. This annoyed Alasadair Coles as he had secured funding, was working alongside LDN advocators and then was told the very people advocating were too busy to help, when, in essence, they had to provide little (a signature or two). Of course I am paraphrasing here and certainly do not claim the above are exact facts, just what I remember. This worried me as, although I have never had any experience of LDN, I always thought this may be an option for my Brother. Alasdair Coles did not say LDN didn't work, what he was saying was that the medical community could have little confidence when some main advocators (and prescribers) were not willing to help seemingly. Can anyone please shed some light on this, and why these advoctaors of LDN would not help when many have been crying out for LDN trials for years now. This kid of upet me, if true, as it kind of seems weird that-in a similar stance to the Daval/goat serum people-those advocating were seemingly not being co-operative when the medical community were actually willing to do independant trials. I have criticsied the medical community many times, but if the above is true then really how does this look? To reitterate, I am certainly not saing LDN (or goat serum) doesn't work. I was just after some questions answering. Thank you, Adam Quote Link to comment Share on other sites More sharing options...
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