introduction

[Guest guest]

Hello My symptoms are external burning. Dr Hamod is treating me with medication and physical therapy. It is frustrating because the severity of the pain differs daily. I burn even without touch so I am scared that surgery to remove that area of skin will not help. If it is neurological I would think that the pain would just come back. I also have sore muscles in my neck, back and hip/gluts. They diagnosed me with fibro. recently. It is not so bad that it changes my daily living at all. It am a dancer and teach ballet and I am able to do everything physically that I want. I just wish I could get rid of the vulvar burning. The only way I can have intercourse is if I use lidocaine creme. I am trying to stay positive, but when you have this for so long it is hard. Do you have any anxiety disorders or panic attacks at all? I am curious because this pain coincided when I started having panic attacks in college. Thanks for responding Introduction HelloMy name is and I have had vulvar vestibulitis for ten years. I amonly 29 and have gone through many treatments that did not work. I amfrustrated and feeling very alone right now. I started in 1993 with the lowoxalate diet and calcium citrate for two years. I didn't notice muchimprovement. I then went to see another doc who said he didn't believe inthat diet and he put me on disipramine and introduced me to lidocaine. Thiswas in 1996. I was still in college in Utah far away from this doctor thatI saw in home in MD. The disipramine didn't help either. At this point Igave up getting help. I used lidocaine to numb myself for intercourse.This problem lead to the break up of my engagement. I am now married to awonderful person who tries to be supportive. I am sure it is difficult tobe married to someone who has trouble with intimacy. I recently decided tofind a doctor that may be able to help. I have been seeing Dr. Hamod ats Hopkins in Baltimore for about two months. I am taking amitrypaline,allegra, calcium citrate and using stearin lanolin creme. I haven't noticeany improvement with the external burning. I just started physical therapywith a therapist at Hopkins that specializes in women's health. I am tryingto remain hopeful, but it gets hard to keep your hopes up when you don'thear many success stories. Dr. Hamod said if I don't start feeling betterexternally we will need to discuss surgery. If anyone has any advice Iwould love to hear it. I have also been dealing with anxiety attacks forten years and have recently been diagnosed with fibromyalgia. Please help.*****END OF MESSAGE*****-------------------------------------------------Yahoo members can click on:http://groups.yahoo.com/group/VulvarDisordersOn the left side is a listing including Links andFiles . If you click on those you will find much additionalinformation posted by our members.To post message: VulvarDisorders To Subscribe: VulvarDisorders-subscribe Unsubscribe: VulvarDisorders-unsubscribe List owner: VulvarDisorders-owner *****

[Guest guest]

Hello My symptoms are external burning. Dr Hamod is treating me with medication and physical therapy. It is frustrating because the severity of the pain differs daily. I burn even without touch so I am scared that surgery to remove that area of skin will not help. If it is neurological I would think that the pain would just come back. I also have sore muscles in my neck, back and hip/gluts. They diagnosed me with fibro. recently. It is not so bad that it changes my daily living at all. It am a dancer and teach ballet and I am able to do everything physically that I want. I just wish I could get rid of the vulvar burning. The only way I can have intercourse is if I use lidocaine creme. I am trying to stay positive, but when you have this for so long it is hard. Do you have any anxiety disorders or panic attacks at all? I am curious because this pain coincided when I started having panic attacks in college. Thanks for responding Introduction HelloMy name is and I have had vulvar vestibulitis for ten years. I amonly 29 and have gone through many treatments that did not work. I amfrustrated and feeling very alone right now. I started in 1993 with the lowoxalate diet and calcium citrate for two years. I didn't notice muchimprovement. I then went to see another doc who said he didn't believe inthat diet and he put me on disipramine and introduced me to lidocaine. Thiswas in 1996. I was still in college in Utah far away from this doctor thatI saw in home in MD. The disipramine didn't help either. At this point Igave up getting help. I used lidocaine to numb myself for intercourse.This problem lead to the break up of my engagement. I am now married to awonderful person who tries to be supportive. I am sure it is difficult tobe married to someone who has trouble with intimacy. I recently decided tofind a doctor that may be able to help. I have been seeing Dr. Hamod ats Hopkins in Baltimore for about two months. I am taking amitrypaline,allegra, calcium citrate and using stearin lanolin creme. I haven't noticeany improvement with the external burning. I just started physical therapywith a therapist at Hopkins that specializes in women's health. I am tryingto remain hopeful, but it gets hard to keep your hopes up when you don'thear many success stories. Dr. Hamod said if I don't start feeling betterexternally we will need to discuss surgery. If anyone has any advice Iwould love to hear it. I have also been dealing with anxiety attacks forten years and have recently been diagnosed with fibromyalgia. Please help.*****END OF MESSAGE*****-------------------------------------------------Yahoo members can click on:http://groups.yahoo.com/group/VulvarDisordersOn the left side is a listing including Links andFiles . If you click on those you will find much additionalinformation posted by our members.To post message: VulvarDisorders To Subscribe: VulvarDisorders-subscribe Unsubscribe: VulvarDisorders-unsubscribe List owner: VulvarDisorders-owner *****

[Guest guest]

Hello My symptoms are external burning. Dr Hamod is treating me with medication and physical therapy. It is frustrating because the severity of the pain differs daily. I burn even without touch so I am scared that surgery to remove that area of skin will not help. If it is neurological I would think that the pain would just come back. I also have sore muscles in my neck, back and hip/gluts. They diagnosed me with fibro. recently. It is not so bad that it changes my daily living at all. It am a dancer and teach ballet and I am able to do everything physically that I want. I just wish I could get rid of the vulvar burning. The only way I can have intercourse is if I use lidocaine creme. I am trying to stay positive, but when you have this for so long it is hard. Do you have any anxiety disorders or panic attacks at all? I am curious because this pain coincided when I started having panic attacks in college. Thanks for responding Introduction HelloMy name is and I have had vulvar vestibulitis for ten years. I amonly 29 and have gone through many treatments that did not work. I amfrustrated and feeling very alone right now. I started in 1993 with the lowoxalate diet and calcium citrate for two years. I didn't notice muchimprovement. I then went to see another doc who said he didn't believe inthat diet and he put me on disipramine and introduced me to lidocaine. Thiswas in 1996. I was still in college in Utah far away from this doctor thatI saw in home in MD. The disipramine didn't help either. At this point Igave up getting help. I used lidocaine to numb myself for intercourse.This problem lead to the break up of my engagement. I am now married to awonderful person who tries to be supportive. I am sure it is difficult tobe married to someone who has trouble with intimacy. I recently decided tofind a doctor that may be able to help. I have been seeing Dr. Hamod ats Hopkins in Baltimore for about two months. I am taking amitrypaline,allegra, calcium citrate and using stearin lanolin creme. I haven't noticeany improvement with the external burning. I just started physical therapywith a therapist at Hopkins that specializes in women's health. I am tryingto remain hopeful, but it gets hard to keep your hopes up when you don'thear many success stories. Dr. Hamod said if I don't start feeling betterexternally we will need to discuss surgery. If anyone has any advice Iwould love to hear it. I have also been dealing with anxiety attacks forten years and have recently been diagnosed with fibromyalgia. Please help.*****END OF MESSAGE*****-------------------------------------------------Yahoo members can click on:http://groups.yahoo.com/group/VulvarDisordersOn the left side is a listing including Links andFiles . If you click on those you will find much additionalinformation posted by our members.To post message: VulvarDisorders To Subscribe: VulvarDisorders-subscribe Unsubscribe: VulvarDisorders-unsubscribe List owner: VulvarDisorders-owner *****

[Guest guest]

Hi ,

I just finished therapy with dr. Homad. However he didn't offer me physical therapy. I have a lot to say about my experience if you are interested let me know.

LUda

Re: Introduction

Hello

My symptoms are external burning. Dr Hamod is treating me with medication and physical therapy. It is frustrating because the severity of the pain differs daily. I burn even without touch so I am scared that surgery to remove that area of skin will not help. If it is neurological I would think that the pain would just come back. I also have sore muscles in my neck, back and hip/gluts. They diagnosed me with fibro. recently. It is not so bad that it changes my daily living at all. It am a dancer and teach ballet and I am able to do everything physically that I want. I just wish I could get rid of the vulvar burning. The only way I can have intercourse is if I use lidocaine creme. I am trying to stay positive, but when you have this for so long it is hard. Do you have any anxiety disorders or panic attacks at all? I am curious because this pain coincided & *****END OF MESSAGE*****-------------------------------------------------Yahoo members can click on:http://groups.yahoo.com/group/VulvarDisordersOn the left side is a listing including Links andFiles . If you click on those you will find much additional information posted by our members.To post message: VulvarDisorders To Subscribe: VulvarDisorders-subscribe Unsubscribe: VulvarDisorders-unsubscribe List owner: VulvarDisorders-owner *****

[Guest guest]

Hi ,

I just finished therapy with dr. Homad. However he didn't offer me physical therapy. I have a lot to say about my experience if you are interested let me know.

LUda

Re: Introduction

Hello

My symptoms are external burning. Dr Hamod is treating me with medication and physical therapy. It is frustrating because the severity of the pain differs daily. I burn even without touch so I am scared that surgery to remove that area of skin will not help. If it is neurological I would think that the pain would just come back. I also have sore muscles in my neck, back and hip/gluts. They diagnosed me with fibro. recently. It is not so bad that it changes my daily living at all. It am a dancer and teach ballet and I am able to do everything physically that I want. I just wish I could get rid of the vulvar burning. The only way I can have intercourse is if I use lidocaine creme. I am trying to stay positive, but when you have this for so long it is hard. Do you have any anxiety disorders or panic attacks at all? I am curious because this pain coincided & *****END OF MESSAGE*****-------------------------------------------------Yahoo members can click on:http://groups.yahoo.com/group/VulvarDisordersOn the left side is a listing including Links andFiles . If you click on those you will find much additional information posted by our members.To post message: VulvarDisorders To Subscribe: VulvarDisorders-subscribe Unsubscribe: VulvarDisorders-unsubscribe List owner: VulvarDisorders-owner *****

[Guest guest]

Hi ,

I just finished therapy with dr. Homad. However he didn't offer me physical therapy. I have a lot to say about my experience if you are interested let me know.

LUda

Re: Introduction

Hello

My symptoms are external burning. Dr Hamod is treating me with medication and physical therapy. It is frustrating because the severity of the pain differs daily. I burn even without touch so I am scared that surgery to remove that area of skin will not help. If it is neurological I would think that the pain would just come back. I also have sore muscles in my neck, back and hip/gluts. They diagnosed me with fibro. recently. It is not so bad that it changes my daily living at all. It am a dancer and teach ballet and I am able to do everything physically that I want. I just wish I could get rid of the vulvar burning. The only way I can have intercourse is if I use lidocaine creme. I am trying to stay positive, but when you have this for so long it is hard. Do you have any anxiety disorders or panic attacks at all? I am curious because this pain coincided & *****END OF MESSAGE*****-------------------------------------------------Yahoo members can click on:http://groups.yahoo.com/group/VulvarDisordersOn the left side is a listing including Links andFiles . If you click on those you will find much additional information posted by our members.To post message: VulvarDisorders To Subscribe: VulvarDisorders-subscribe Unsubscribe: VulvarDisorders-unsubscribe List owner: VulvarDisorders-owner *****

[Guest guest]

Hi ,

Welcome to the group!

I was diagnosed with Vestibulitis a little over 3 years ago. I'm 28

and have been married a year...similar to you... and too have a

supportive husband, but as I'm sure you know, VV really has a huge

effect on a marriage. It's so hard. Especially when you're just

starting out in a marriage--there are enough marriage obstacles to

deal with before one even considers vulva pain!

And, it's hard to talk to friends about it b/c there is only so much

they can say without really understanding.

I hope you find this group as helpful as I have...sometimes reading

the posts can be uplifting...at other times discouraging....but,

always, it serves its purpose in reminding me I'm not alone in all

this.

-Kellie

[Guest guest]

Hi ,

Welcome. I understand how you feel. I am the town clerk and treasurer where I live and am having a difficult time coping with the demands of the job and the FMS symptoms along with my newly diagnosed year round allergies.. It's challenging when you are hurting so much and don't know where to turn next. That is why I have become a member of this group too. I have been here for probably 6 weeks but have found a lot of moral support just by reading the mail.

Good luck and take care.

Debbie wrote:

Hello all,

My name is and I was diagnosed with Inflammatory Arthrititis/Fibromyalgia 2 years ago. I am seeing a new Rheumo Specialist a Dr. Brown in Seattle on May 10th and am so excited as I have heard wonderful things about him from several different sources. My symptoms started after having 3 1/2 feet of my large colon removed 2 1/2 years ago. I am so tired of hurting and being exhausted after the smallest attempt to do the necessities. I don't know how much longer I will able to work as my wrists and ankles are always in pain no matter what I do or take. I am a Computer Support Analyst for a living.

I hope to learn through all of your experiences and be supportive when I can be.

Thanks for being here I have learned so much just in the last week of lurking.

__________________________________________________

[Guest guest]

Hi ,

Welcome. I understand how you feel. I am the town clerk and treasurer where I live and am having a difficult time coping with the demands of the job and the FMS symptoms along with my newly diagnosed year round allergies.. It's challenging when you are hurting so much and don't know where to turn next. That is why I have become a member of this group too. I have been here for probably 6 weeks but have found a lot of moral support just by reading the mail.

Good luck and take care.

Debbie wrote:

Hello all,

My name is and I was diagnosed with Inflammatory Arthrititis/Fibromyalgia 2 years ago. I am seeing a new Rheumo Specialist a Dr. Brown in Seattle on May 10th and am so excited as I have heard wonderful things about him from several different sources. My symptoms started after having 3 1/2 feet of my large colon removed 2 1/2 years ago. I am so tired of hurting and being exhausted after the smallest attempt to do the necessities. I don't know how much longer I will able to work as my wrists and ankles are always in pain no matter what I do or take. I am a Computer Support Analyst for a living.

I hope to learn through all of your experiences and be supportive when I can be.

Thanks for being here I have learned so much just in the last week of lurking.

__________________________________________________

[Guest guest]

Hi ,

My name is Kara and I was diagnosed with crippling arthrititis/ Fibromyalgia 4 days ago. I can't work and I understand about the pain. Hope to hear from you again soon

Kara Conder

Indiana wrote:

Hello all,

My name is and I was diagnosed with Inflammatory Arthrititis/Fibromyalgia 2 years ago. I am seeing a new Rheumo Specialist a Dr. Brown in Seattle on May 10th and am so excited as I have heard wonderful things about him from several different sources. My symptoms started after having 3 1/2 feet of my large colon removed 2 1/2 years ago. I am so tired of hurting and being exhausted after the smallest attempt to do the necessities. I don't know how much longer I will able to work as my wrists and ankles are always in pain no matter what I do or take. I am a Computer Support Analyst for a living.

I hope to learn through all of your experiences and be supportive when I can be.

Thanks for being here I have learned so much just in the last week of lurking.

__________________________________________________

[Guest guest]

Hi ,

My name is Kara and I was diagnosed with crippling arthrititis/ Fibromyalgia 4 days ago. I can't work and I understand about the pain. Hope to hear from you again soon

Kara Conder

Indiana wrote:

Hello all,

My name is and I was diagnosed with Inflammatory Arthrititis/Fibromyalgia 2 years ago. I am seeing a new Rheumo Specialist a Dr. Brown in Seattle on May 10th and am so excited as I have heard wonderful things about him from several different sources. My symptoms started after having 3 1/2 feet of my large colon removed 2 1/2 years ago. I am so tired of hurting and being exhausted after the smallest attempt to do the necessities. I don't know how much longer I will able to work as my wrists and ankles are always in pain no matter what I do or take. I am a Computer Support Analyst for a living.

I hope to learn through all of your experiences and be supportive when I can be.

Thanks for being here I have learned so much just in the last week of lurking.

__________________________________________________

[Guest guest]

Hi ,

My name is Kara and I was diagnosed with crippling arthrititis/ Fibromyalgia 4 days ago. I can't work and I understand about the pain. Hope to hear from you again soon

Kara Conder

Indiana wrote:

Hello all,

My name is and I was diagnosed with Inflammatory Arthrititis/Fibromyalgia 2 years ago. I am seeing a new Rheumo Specialist a Dr. Brown in Seattle on May 10th and am so excited as I have heard wonderful things about him from several different sources. My symptoms started after having 3 1/2 feet of my large colon removed 2 1/2 years ago. I am so tired of hurting and being exhausted after the smallest attempt to do the necessities. I don't know how much longer I will able to work as my wrists and ankles are always in pain no matter what I do or take. I am a Computer Support Analyst for a living.

I hope to learn through all of your experiences and be supportive when I can be.

Thanks for being here I have learned so much just in the last week of lurking.

__________________________________________________

[Guest guest]

Hi ,

Welcome to the group. I know what you mean about your wrists hurting. I'm not on the computer that much and mine hurt. With your line of work it must be very painful.

This is a great group of support people. It's comforting to know that your not alone, and there are people who understand the A to Z about living with this disease.

I look forward to getting to know you.

Kathleen in N.C.

[Guest guest]

I need to apologize to all the new people who have joined. I've been pretty sick lately and haven't had much of a chance to welcome you. I'm sorry for that.

This is a great group. Lots of good information on fibro, but also a lot of support for personal matters as well. After all, a lot of our personal matters effect our fibro.

Welcome to all, and may you have some pain free days.

Tigger

[Guest guest]

I need to apologize to all the new people who have joined. I've been pretty sick lately and haven't had much of a chance to welcome you. I'm sorry for that.

This is a great group. Lots of good information on fibro, but also a lot of support for personal matters as well. After all, a lot of our personal matters effect our fibro.

Welcome to all, and may you have some pain free days.

Tigger

[Guest guest]

WELCOME CINDY!! Warm Welcoming Hug, Hello all, My name is and I was diagnosed with Inflammatory Arthrititis/Fibromyalgia 2 years ago. I am seeing a new Rheumo Specialist a Dr. Brown in Seattle on May 10th and am so excited as I have heard wonderful things about him from several different sources. My symptoms started after having 3 1/2 feet of my large colon removed 2 1/2 years ago. I am so tired of hurting and being exhausted after the smallest attempt to do the necessities. I don't know how much longer I will able to work as my wrists and ankles are always in pain no matter what I do or take. I am a Computer Support Analyst for a living. I hope to learn through all of your experiences and be supportive when I can be. Thanks for being here I have learned so much just in the last week of lurking. __________________________________________________

[Guest guest]

Welcome ! I am glad you are here. I hope the new rheumy will help you out. Surgery sometimes triggers fibro. That is what triggered mine. I worked on a computer all day, which didn't help. I would go home screaming and crying, I would be in so much pain. I wish you all the best! This is a wonderful group that has helped me a lot.

Love and Peace,

Annette

Introduction

Hello all,

My name is and I was diagnosed with Inflammatory Arthrititis/Fibromyalgia 2 years ago. I am seeing a new Rheumo Specialist a Dr. Brown in Seattle on May 10th and am so excited as I have heard wonderful things about him from several different sources. My symptoms started after having 3 1/2 feet of my large colon removed 2 1/2 years ago. I am so tired of hurting and being exhausted after the smallest attempt to do the necessities. I don't know how much longer I will able to work as my wrists and ankles are always in pain no matter what I do or take. I am a Computer Support Analyst for a living.

I hope to learn through all of your experiences and be supportive when I can be.

Thanks for being here I have learned so much just in the last week of lurking.

__________________________________________________

[Guest guest]

Welcome ! I am glad you are here. I hope the new rheumy will help you out. Surgery sometimes triggers fibro. That is what triggered mine. I worked on a computer all day, which didn't help. I would go home screaming and crying, I would be in so much pain. I wish you all the best! This is a wonderful group that has helped me a lot.

Love and Peace,

Annette

Introduction

Hello all,

My name is and I was diagnosed with Inflammatory Arthrititis/Fibromyalgia 2 years ago. I am seeing a new Rheumo Specialist a Dr. Brown in Seattle on May 10th and am so excited as I have heard wonderful things about him from several different sources. My symptoms started after having 3 1/2 feet of my large colon removed 2 1/2 years ago. I am so tired of hurting and being exhausted after the smallest attempt to do the necessities. I don't know how much longer I will able to work as my wrists and ankles are always in pain no matter what I do or take. I am a Computer Support Analyst for a living.

I hope to learn through all of your experiences and be supportive when I can be.

Thanks for being here I have learned so much just in the last week of lurking.

__________________________________________________

[Guest guest]

Me too, thanks Tigger.

Hi new people! I am Amy. I am 28 and I live in the

Cleveland, Ohio area. I am married and have two

kittens who are 9 months old. No kids. They're enough.

LOL. I was just diagnosed with FMS in February,

although I can't remember a time in my life I didn't

have the symptoms. I also have Polycystic Ovarian

Syndrome. I am a research reporter.. at least for now.

Welcome!

--- Tigger wrote:

> AOL Email

> I need to apologize to all the new people who have

> joined. I've been pretty sick lately and haven't

> had much of a chance to welcome you. I'm sorry for

> that.

Amy Swinderman

Live aloha!

__________________________________________________

[Guest guest]

Welcome Anne Marie,

Or do you prefer to be called Dakk O'ta? Autumn Rose is a beautiful name.

I can't imagine going that long without pain medication, but I would probably feel the same way. I would never want to do anything that would harm any baby. They are so precious.

Hope to hear more from you soon. Take care.

Love & Peace,Annette

"The time is always right to do what is right" - Luther King, Jr.

Introduction

I don't think I ever introduced myself to you all.

My Name is Anne Marie and I have had Fibromyalgia since July 2000 when I was in an auto accident. Along with Fibro I have Occipital Neuralgia, torn disk in my lower back and a bulging disk in my neck as well as my face, arms and legs are numb.

I was introduced to this group by a friend of mine on Open Diary. I joined few months ago, but have not posted.

I had a rough two years just recently - when I had to go off my medications because I was pregnant with my beautiful daughter, Autumn Rose. I had to remain off the meds until she stopped breast feeding - she weined herself at 9 months. I was so hoping to make it to at least a year with her... but she chose the time to stop, not I.

It was tough, but you know I would do it all over again because having her has been the one of the best things to happen to me, the first being my husband. I have been married to Charly for 9 1/2 years and I could not ask for a more compassionate and understanding mate.

I have a yahoo group for fibro, but we are not very active and very small to boot. :-) I am not soliciting members but if you ever want to check it out send me an email. Feel free to check out my Open Diary too. http://opendiary.com/dakk%20O'ta

Well, that is all for now. I hope to be more active with the group. If I go abscent for periods of time - I can usually be found in the sandbox or play room with my daughter!

Take care and soft hugs,

Anne Marie

aka Dakk O'ta

1. While it is wonderful to share our experiences with everyone on the list as to what treatments do and don't work for us, pls always check with your dr. Some treatments are dangerous when given along with other meds as well as to certain health conditions or just dangerous in general.2. If you are in a difficult situation (doesn't matter what it is) pls don't be afraid to ask for help. It is the first step to trying to make that situation better.Have a nice day everyone.

[Guest guest]

Welcome Anne Marie,

Or do you prefer to be called Dakk O'ta? Autumn Rose is a beautiful name.

I can't imagine going that long without pain medication, but I would probably feel the same way. I would never want to do anything that would harm any baby. They are so precious.

Hope to hear more from you soon. Take care.

Love & Peace,Annette

"The time is always right to do what is right" - Luther King, Jr.

Introduction

I don't think I ever introduced myself to you all.

My Name is Anne Marie and I have had Fibromyalgia since July 2000 when I was in an auto accident. Along with Fibro I have Occipital Neuralgia, torn disk in my lower back and a bulging disk in my neck as well as my face, arms and legs are numb.

I was introduced to this group by a friend of mine on Open Diary. I joined few months ago, but have not posted.

I had a rough two years just recently - when I had to go off my medications because I was pregnant with my beautiful daughter, Autumn Rose. I had to remain off the meds until she stopped breast feeding - she weined herself at 9 months. I was so hoping to make it to at least a year with her... but she chose the time to stop, not I.

It was tough, but you know I would do it all over again because having her has been the one of the best things to happen to me, the first being my husband. I have been married to Charly for 9 1/2 years and I could not ask for a more compassionate and understanding mate.

I have a yahoo group for fibro, but we are not very active and very small to boot. :-) I am not soliciting members but if you ever want to check it out send me an email. Feel free to check out my Open Diary too. http://opendiary.com/dakk%20O'ta

Well, that is all for now. I hope to be more active with the group. If I go abscent for periods of time - I can usually be found in the sandbox or play room with my daughter!

Take care and soft hugs,

Anne Marie

aka Dakk O'ta

1. While it is wonderful to share our experiences with everyone on the list as to what treatments do and don't work for us, pls always check with your dr. Some treatments are dangerous when given along with other meds as well as to certain health conditions or just dangerous in general.2. If you are in a difficult situation (doesn't matter what it is) pls don't be afraid to ask for help. It is the first step to trying to make that situation better.Have a nice day everyone.

[Guest guest]

Welcome Anne Marie,

Or do you prefer to be called Dakk O'ta? Autumn Rose is a beautiful name.

I can't imagine going that long without pain medication, but I would probably feel the same way. I would never want to do anything that would harm any baby. They are so precious.

Hope to hear more from you soon. Take care.

Love & Peace,Annette

"The time is always right to do what is right" - Luther King, Jr.

Introduction

I don't think I ever introduced myself to you all.

My Name is Anne Marie and I have had Fibromyalgia since July 2000 when I was in an auto accident. Along with Fibro I have Occipital Neuralgia, torn disk in my lower back and a bulging disk in my neck as well as my face, arms and legs are numb.

I was introduced to this group by a friend of mine on Open Diary. I joined few months ago, but have not posted.

I had a rough two years just recently - when I had to go off my medications because I was pregnant with my beautiful daughter, Autumn Rose. I had to remain off the meds until she stopped breast feeding - she weined herself at 9 months. I was so hoping to make it to at least a year with her... but she chose the time to stop, not I.

It was tough, but you know I would do it all over again because having her has been the one of the best things to happen to me, the first being my husband. I have been married to Charly for 9 1/2 years and I could not ask for a more compassionate and understanding mate.

I have a yahoo group for fibro, but we are not very active and very small to boot. :-) I am not soliciting members but if you ever want to check it out send me an email. Feel free to check out my Open Diary too. http://opendiary.com/dakk%20O'ta

Well, that is all for now. I hope to be more active with the group. If I go abscent for periods of time - I can usually be found in the sandbox or play room with my daughter!

Take care and soft hugs,

Anne Marie

aka Dakk O'ta

1. While it is wonderful to share our experiences with everyone on the list as to what treatments do and don't work for us, pls always check with your dr. Some treatments are dangerous when given along with other meds as well as to certain health conditions or just dangerous in general.2. If you are in a difficult situation (doesn't matter what it is) pls don't be afraid to ask for help. It is the first step to trying to make that situation better.Have a nice day everyone.

[Guest guest]

Hello Anne Marie,

This group makes my days and nights bearable . I no longer

feel alone:))))))))

We do get a little crazy as that helps us make it through each day.

It has been about 15 years since I was diagnosed with fms.

I worked until I could not drag my self there. I have had back surgery and tried all kinds of meds, some have helped but most have done nothing.

I am 44 yrs married to a wonderful guy (going on 18 years)

With one son and three grandchildren.

Hope you like it here,

Patsy June

(juneybug on Yahoo IM)

-- Introduction

I don't think I ever introduced myself to you all.

My Name is Anne Marie and I have had Fibromyalgia since July 2000 when I was in an auto accident. Along with Fibro I have Occipital Neuralgia, torn disk in my lower back and a bulging disk in my neck as well as my face, arms and legs are numb.

I

[Guest guest]

Hello Anne Marie,

This group makes my days and nights bearable . I no longer

feel alone:))))))))

We do get a little crazy as that helps us make it through each day.

It has been about 15 years since I was diagnosed with fms.

I worked until I could not drag my self there. I have had back surgery and tried all kinds of meds, some have helped but most have done nothing.

I am 44 yrs married to a wonderful guy (going on 18 years)

With one son and three grandchildren.

Hope you like it here,

Patsy June

(juneybug on Yahoo IM)

-- Introduction

I don't think I ever introduced myself to you all.

My Name is Anne Marie and I have had Fibromyalgia since July 2000 when I was in an auto accident. Along with Fibro I have Occipital Neuralgia, torn disk in my lower back and a bulging disk in my neck as well as my face, arms and legs are numb.

I

[Guest guest]

Hello Anne Marie,

This group makes my days and nights bearable . I no longer

feel alone:))))))))

We do get a little crazy as that helps us make it through each day.

It has been about 15 years since I was diagnosed with fms.

I worked until I could not drag my self there. I have had back surgery and tried all kinds of meds, some have helped but most have done nothing.

I am 44 yrs married to a wonderful guy (going on 18 years)

With one son and three grandchildren.

Hope you like it here,

Patsy June

(juneybug on Yahoo IM)

-- Introduction

I don't think I ever introduced myself to you all.

My Name is Anne Marie and I have had Fibromyalgia since July 2000 when I was in an auto accident. Along with Fibro I have Occipital Neuralgia, torn disk in my lower back and a bulging disk in my neck as well as my face, arms and legs are numb.

I