Guest guest Posted October 23, 2002 Report Share Posted October 23, 2002 , it always amazes me how folks have differing experiences with this strange condition! I've been to the Mayo twice and both times saw Dr. Dyck who " wrote the book on neurology " . Ask your neuro, it's a fat one. He insisted both times I probably had MS after the 3 day work ups. Two years later I got the PLS diagnosis from, get this, a " team of neurologists " at NIH. BTW, it's amazing how far one can travel at the Mayo without going out into the nasty Rochester weather! Bruce Maser Norfolk, VA > My neurologist sent me to Mayo in Rochester because he said they specialized > in neurology. I don't remember waiting too long--but it was in > December--Minnesota in December. I couldn't have been more impressed at how > efficient they were and 3 full days of testing and I came away with a PLS > diagnosis after going from doctor to doctor for the prior couple of years. > > The doctor I saw Dr. Tony Windebank and he was great. That was in Dec. 1997. > > Gentner > Fremont, CA > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 23, 2002 Report Share Posted October 23, 2002 , it always amazes me how folks have differing experiences with this strange condition! I've been to the Mayo twice and both times saw Dr. Dyck who " wrote the book on neurology " . Ask your neuro, it's a fat one. He insisted both times I probably had MS after the 3 day work ups. Two years later I got the PLS diagnosis from, get this, a " team of neurologists " at NIH. BTW, it's amazing how far one can travel at the Mayo without going out into the nasty Rochester weather! Bruce Maser Norfolk, VA > My neurologist sent me to Mayo in Rochester because he said they specialized > in neurology. I don't remember waiting too long--but it was in > December--Minnesota in December. I couldn't have been more impressed at how > efficient they were and 3 full days of testing and I came away with a PLS > diagnosis after going from doctor to doctor for the prior couple of years. > > The doctor I saw Dr. Tony Windebank and he was great. That was in Dec. 1997. > > Gentner > Fremont, CA > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 28, 2002 Report Share Posted October 28, 2002 Thanks for your reply. It helps to have voices (email) of experience. Marv Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 19, 2008 Report Share Posted June 19, 2008 I know a lot of people who've gone to Mayo Clinic for testing and the results in general have been very poor. They seem to be similar to witch doctors based on what I've seen. They don't seem to use real science and medically documented information on the conditions that the people I know who went there. They charge a lot of money and do a lot of tests, but they seem to clearly be the wrong tests based on what I know of the conditions and tests that have been demonstrated to be useful by people who've gotten better.  I don't know of anyone who was helped a lot by Mayo Clinic. They don't seem to understand the connection between toxics and chronic health conditions, or to test for such; or to know how to treat chronic conditions related to toxics through detox, nutrition, etc. Bernie Quote Link to comment Share on other sites More sharing options...
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