Guest guest Posted December 12, 2000 Report Share Posted December 12, 2000 Beth, No I have not suffered any losses, never been pg. My BU looks like lopsided bunny ears on a HSG, with the horns communicating just at the very bottom. The 'specialists' that I saw when it was diagnosed after sonohystergram (following unrelated abdominal pain approx 6yrs ago), tried to tell me it was " very common " , " not a problem " etc etc etc, I had to fight tooth and nail to get the HSG done so we could differentiate between Septate and BU, now i'm starting the fight again to get the correct tests etc done. I'm not sure where you are but I'm in the UK with the ever so great NHS system where the moto certainly isn't 'prevention is better than cure'. When I was diagnosed they actually told me " if and when you suffer problems/miscarriages we will look into it further, until then just get on with your life and forget about it! Like that's possible when your whole life is about having kids. I know I wasn't ready to start a family then, but I wanted to know that I could DEFINATELY have kids and they offered no support or information. I visited medical libraries, contacted 'fertiliy' groups but there was no info over here, I then sat down and searched the web - I now have two three inch folders of info which I shall take with me to the new specialist if I have to just so they know not to try and fob me off. Sorry for the long moan, just this system really gets me down sometimes! Hope all is well with you, thanks for sharing your story with me. Tracie Re: Hi... > > > I have a BU, TTC 18mths now.... just beginning work up tests I have > > an egroup for BU sufferers in the UK - not many of us here on the > web! > > I look forward to seeing your group progress. > > > > What is your history? > > > > Good Luck > > Tracie > > Hi Tracie, > > Bravo for starting a list! And thanks for getting the ball rolling > on this one. > > Here is my history: > PCOS > Male factor > IUI (11 cycles) > 3 chemical pregnancies ending around 4-5 weeks > 1 clinical pregnancy ending at 19 weeks. > The miscarriage looked like an incompetent cervix although I had none > of the risk factors for one. After about 9 more unsuccessful months > of TTC, I asked for an HSG. > > The HSG showed a complete division of the uterine cavity, right down > to the internal os of the cervix. Ultrasound testing revealed that > it was wholly septate. I had a septoplasty in October and am waiting > to TTC again in January, I hope. Depends on whether the resection > was complete enough. > > It looks as though my uterus could not expand beyond 19 weeks, with > the baby lodged in the left horn. here is one of the HSG spot images: > http://www.wegrokit.com/uterus/xfill.jpg > > Have you suffered any pregnancy loss? How severe is your bicarnuate > uterus? > > Beth > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 12, 2000 Report Share Posted December 12, 2000 >I had to > fight tooth and nail to get the HSG done so we could differentiate between > Septate and BU, now i'm starting the fight again to get the correct tests > etc done. Which tests do you want to have done? I was told that it was impossible to tell from my HSG whether my uterus was BU or septate, so an MRI was proposed. Then the doc learned that MRI are frequently inconclusive with this sort of thing, and ordered an abdominal and transvaginal ultrasound. The diagnosis of septate was made, then, on evidence that there wasn't even a dimple on the outside of the fundus, much less a division. Scanning the longitudinal cross section showed that. My other option would have been to have a simultaneous laparoscopy/hysteroscopy. As it turned out, that is what I did have, just to back up the diagnosis and monitor the septoplasty surgery. It was also helpful in detecting a uterine perforation that happened during the surgery (It was tiny and harmless . . . at least I know then that the surgeon cut the entire septum at some point). >I'm not sure where you are but I'm in the UK with the ever so > great NHS system where the moto certainly isn't 'prevention is better than > cure'. I'm in the States, FYI. Luckily for me, my insurance covers surgery to restore normal reproductive function (although I tend to mistrust insurance companies--what if mine squeaks out of paying my bill on a technicality?). >When I was diagnosed they actually told me " if and when you suffer > problems/miscarriages we will look into it further, until then just get on > with your life and forget about it! Oh dear . . . that's horrid. :-( I heard something a little like that as I still sat on the x-ray table after finding out. My doc said that he thought my uterus was bicornuate, and that the good news was that I would carry a baby longer and longer with each pregnancy, at which point I snapped at him, " How many practice babies do I have to have before I have one who lives? " I was rather distraught. > Like that's possible when your whole life is about having kids. I know I > wasn't ready to start a family then, but I wanted to know that I could > DEFINATELY have kids and they offered no support or information. I visited > medical libraries, contacted 'fertiliy' groups but there was no info over > here, I then sat down and searched the web - I now have two three inch > folders of info which I shall take with me to the new specialist if I have > to just so they know not to try and fob me off. Good for you! Are you exploring the possibility of surgery? What do you have planned? > > Sorry for the long moan, just this system really gets me down sometimes! No problem. That is one of the reasons I started this group! If you know of any outstanding resources or good online images of Mullerian duct anomalies, would you please send me a few of the URLs? I am putting together some pages about it. Thank you. Beth Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 12, 2000 Report Share Posted December 12, 2000 Beth.... I had an abdominal then transvaginal ultrasounds on which they suspected BU, i then had the HSG 8mths later which they said confirmed the BU. Like you I am skeptical about this, although the gynaecologist that I had at the time was a professor and one of the best we have here in the UK, both you and I know how important it is to differentiate between the two. I am going to try and get a lap/hyst done, which I feel would be the most conclusive test, then take things from there but again it's more expense for the NHS when as far as they are concerned I have had no problems. The first Gyne I saw also said something to me along the lines of each pregnancy whether you manage to carry it or not will strech the uterus and next time will be longer!!!!, that was before I had the HSG and they were trying to tell me it was NOTHING. I'll be going for the blood test next Friday (day 21) and my partner will do his sperm test the same day (he is sooooo not looking forward to that!) this is really the beginning for us.... and I hope not too long a road to travel. But I know in my heart that I will do anything and everything that I have to in order to have a child. I must go now, but I will have a look in my files for some info for you. have you searched on MedLine and the obgyn network? that's where I got a lot of my stats. Speak to you soon take care Tracie Re: Re: Hi... > > >I had to > > fight tooth and nail to get the HSG done so we could differentiate between > > Septate and BU, now i'm starting the fight again to get the correct tests > > etc done. > > Which tests do you want to have done? I was told that it was impossible to > tell from my HSG whether my uterus was BU or septate, so an MRI was > proposed. Then the doc learned that MRI are frequently inconclusive with > this sort of thing, and ordered an abdominal and transvaginal ultrasound. > The diagnosis of septate was made, then, on evidence that there wasn't even > a dimple on the outside of the fundus, much less a division. Scanning the > longitudinal cross section showed that. > > My other option would have been to have a simultaneous > laparoscopy/hysteroscopy. As it turned out, that is what I did have, just > to back up the diagnosis and monitor the septoplasty surgery. It was also > helpful in detecting a uterine perforation that happened during the surgery > (It was tiny and harmless . . . at least I know then that the surgeon cut > the entire septum at some point). > > >I'm not sure where you are but I'm in the UK with the ever so > > great NHS system where the moto certainly isn't 'prevention is better than > > cure'. > > I'm in the States, FYI. Luckily for me, my insurance covers surgery to > restore normal reproductive function (although I tend to mistrust insurance > companies--what if mine squeaks out of paying my bill on a technicality?). > > >When I was diagnosed they actually told me " if and when you suffer > > problems/miscarriages we will look into it further, until then just get on > > with your life and forget about it! > > Oh dear . . . that's horrid. :-( I heard something a little like that as > I still sat on the x-ray table after finding out. My doc said that he > thought my uterus was bicornuate, and that the good news was that I would > carry a baby longer and longer with each pregnancy, at which point I snapped > at him, " How many practice babies do I have to have before I have one who > lives? " I was rather distraught. > > > Like that's possible when your whole life is about having kids. I know I > > wasn't ready to start a family then, but I wanted to know that I could > > DEFINATELY have kids and they offered no support or information. I > visited > > medical libraries, contacted 'fertiliy' groups but there was no info over > > here, I then sat down and searched the web - I now have two three inch > > folders of info which I shall take with me to the new specialist if I have > > to just so they know not to try and fob me off. > > Good for you! Are you exploring the possibility of surgery? What do you > have planned? > > > > > Sorry for the long moan, just this system really gets me down sometimes! > > No problem. That is one of the reasons I started this group! > > If you know of any outstanding resources or good online images of Mullerian > duct anomalies, would you please send me a few of the URLs? I am putting > together some pages about it. Thank you. > > Beth > > > > > Quote Link to comment Share on other sites More sharing options...
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