Guest guest Posted June 14, 2008 Report Share Posted June 14, 2008 Lydia-- This sounds REALLY interesting. I always said my sister a's MS was SO different than most others. She progressed so rapidly and did end up totally immobile and blind. And I had a cousin that died within 10yrs of dx, also totally immobile, couldn't talk, could only blink her eyes before she died. If this NMO is genetic at all, I think I better get myself tested if that testing is available. Looks like the only place doing anything with it is the Mayo Clinic. S---, I don't know if I'm up for the road trip! But I am grateful to you for finding this reference. I had never heard of it. Thanks. Beverly > > Has anybody heard of this? NMO antibody test at Mayo clinic. My > neurologist said I might have a disease that closely mimics MS but is > not the same thing and drugs for MS don't work. My blood has to be > sent to Mayo Clinic because they are the only ones that does this test. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 14, 2008 Report Share Posted June 14, 2008 Dear Beverly, You don't have to go to Mayo clinic. My neurologist is having my blood taken and the lab will send it there. Best regards, Lydia Quote Link to comment Share on other sites More sharing options...
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