Guest guest Posted July 31, 2008 Report Share Posted July 31, 2008 > > Hi all, > I've had optic neuritis (symptomatically and diagnosed) since January > 07. It has never gotten any better, but I don't think it's gotten > worse. It is mostly in the right eye. I am unable to read with the > right eye unless the letters are huge (like a big sign). I also have > problems with glare, double vision, and seeing what looks like a > mirror image underneath letters. Fortunately, my left eye is > correctable to 20/20 with glasses, and when I wear my glasses most of > these other symptoms go away as the left (good) eye takes over. Also, > after I wear my glasses for a while and then take them off, my vision > is much worse than before I put them on in the first place(and this > lasts about a half hour or so). > > Anyway, I know most people who get optic neuritis get remission > fairly early on, which obviously I did not, and I never did the IV > steroids (it's too late now anyway). I am curious if anyone had a > remission from optic neuritis after a long term bout like I have had, > and also does anyone have any particular ideas about healing optic > neuritis, beyond the regular things we talk about in this group (BBD, > LDN,etc). > > Thanks, > >Hi i to hve ON ive had it since may 07 mine has gotten some better it started off with blck spot in center of vision now its just blurry i to did not hve the steroids my neuro said it was hard to say if it will get better or not but tht anything is possible but if u find anything tht seems to work plz let me know. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 31, 2008 Report Share Posted July 31, 2008 There are vitamins and herbs that are very specific for the eyes. ...RP I am curious if anyone had a remission from optic neuritis after a long term bout like I have had, and also does anyone have any particular ideas about healing optic neuritis, beyond the regular things we talk about in this group (BBD, LDN,etc). Thanks, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 4, 2008 Report Share Posted August 4, 2008 I also have ON in my left eye and partly in my right eye due to MS. It hasn't improved in the past year and, as with most people, gets considerable worse when I heat up. I've been reading a few posts discussing the use of lecithin -- has anyone seen definite improvement through its use? I've ordered some high strength Lecithin 1200mg capsules and will let you know if it helps. Best Dan > >> >> Hi all, >> I've had optic neuritis (symptomatically and diagnosed) since > January Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 4, 2008 Report Share Posted August 4, 2008 Dan, I have. I had lost most of the vision in my left eye, and a significant amount in my right. I had to stop driving, had to close one division of my business, because I could no longer see well enough to do graphic design. (I'm a writer and editor, and I do graphic design work on the side) Until the ON hit, I had 20/20 vision. The ON hit me all at once. Literally in an instant. I was lying on the floor, watching a movie with my older kids and husband. When the movie was over, I got up and sat at my computer and I couldn't read the screen. That's when I realized I couldn't make out the huge Walmart at the other side of the intersection, either. (we had huge picture windows on our second floor living room. About half an hour later I got really dizzy and my ears started to ring. I couldn't even sit up. We thought about going to the hospital, but since I was having other ms problems, too we fiigured it was ms related. The next morning my left eye was completely fuzzy. And it stayed that way for over 6 months. Some days were better than others, but overall, my vision was rotten. I started taking fish oil and lecithin together 3x every day. Slowly and steadily, my vision improved. I still have mild problms if the sun is to bright, and flourecent lights still make me see spots, but I've solved those problems by wearing polarized sunglasses if my eyes get fuzzy. Something about the polorized lenses clears the fuzziness right up. Overall, though the fish oil and lecithn helped my body heal the eye nerve tissue. hth, Yvette > > I've been reading a few posts discussing the use of lecithin -- has > anyone seen definite improvement through its use? I've ordered some > high strength Lecithin 1200mg capsules and will let you know if it > helps. > > Best > Dan > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 4, 2008 Report Share Posted August 4, 2008 I have had ON since January 07, so just over a year and a half. One person I know with MS says he had ON for 2 years and then at about 2 years his vision gradually came back within a couple of months. That gives me a little bit of hope. From what I read, most cases of ON resolve on their own within a few months. I think that's why my neuro didn't prescribe the IV steroids. Unfortunately mine hasn't come back in all this time. I think I could live with it (if the damage is permanent) as long as I could get rid of my other symptoms (which vary much more than the ON) and also stop any progression. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 4, 2008 Report Share Posted August 4, 2008 Swansons Vitamins on line has a supplement called Eyes Alive, with Lutine etc. Very good product for your eyes and not expensive. ...RP - Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 4, 2008 Report Share Posted August 4, 2008 > > I have had ON since January 07, so just over a year and a half. One > person I know with MS says he had ON for 2 years and then at about 2 > years his vision gradually came back within a couple of months. That > gives me a little bit of hope. My first MS symptom (like many others) was optic neuritis in the left eye last Oct. It got really bad, I had the central blind spot for a couple weeks so literally could not see anything. It came back gradually but the best is 20/50. Then, my right eye started going bad a couple months ago (saga is in the archives, it all started with soy cheese, ugh) but I think waging the war with acupuncture and fasting helped keep it from getting as bad. Now the acuity is decent in that eye (20/25) but still have problems with glare and bright light. Both eyes still get worse anytime my core temp goes up, whether a shower, exercise, summer heat, etc. I'm trying to be patient b/c I *know* the damage is not permanent. When I have acupuncture sessions both eyes are temporarily better, I just can't get the results to stick yet. Obviously I have some problem with my chi or energy flow. So that's helping me stick this out, and I explain to people that it's residual damage but not an active symptom. I sure hope it doesn't take 2 years to come back but I'm just going to hang in there. I used to take lecithin, maybe I'll add that back in to my supplements... Crystal Quote Link to comment Share on other sites More sharing options...
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