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Re: Jai / spinal cord stimulator

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Jai,

I love my doctor and he has tried everything possible and the SCS was the

final option.

I am also having a problem with the SCS battery/pulse generator. He put it in

my buttock area. I guess they cut a pocket and install it. For some reason,

the skin closest to the incision is as the doctor put it is " thinning " so it

feels like the battery is trying to push itself out when you sit. Kind of

like sitting on a thick wallet which gives you the feeling like it's trying

to push itself out when you sit.

The second problem is with all the voltage fluctations I am having. If I tilt

my head backward slightly the voltage increases. If I move my head down

toward my chest the voltage almost completely drops off. Now to complicate

things more, when I lay on my back the voltage increase because the

wires/electrode push against my spine. There is no winning.

The last problem is that in the top portion of my back is where they connect

all the wires using a plastic sleeve connector. I now have pain there. It

starts in the morning sore and the discomfort turns to pain by early

afternoon. Needless to say I can't sleep on my left side very well.

At this point, I am going to give the unit three more months. Then I will

turn the unit off for one or two months and monitor my progress. If all

things stay constant, then I am going to have it removed. I know w/c wants to

settle and I want to make sure they pay the expenses to have all this stuff

removed. The thought of getting cut up again and the possiblity that the RSD

could spread isn't a pleasant thought either.

Hope this helps. The surgery was no piece of cake. I had 3 five inch

incisions.

Mitch :>)

mariodinky@...

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