Guest guest Posted January 2, 2002 Report Share Posted January 2, 2002 Hi Amy, Welcome to this list!! There are several women here who also have Uterus Didelphys, so you have found a good place for information and support here. My name is Lia and I also have Uterus Didelphys (the acronym we generally use for this is UD). Some common acronyms are: BU - bicornuate uterus SU - septate uterus UU - unicornate uterus As your doctor may have told you, UD generally means two completely separate uterine cavities, two cervixes and a logitudinal vaginal septum. There are some exceptions to this - for example, the two uterine cavities can sometimes be fused, but usually this is what UD is " defined " as. I am currently 34 and I was diagnosed with UD in my mid-twenties. I have had various tests done to confirm the diagnosis, but I haven't had laparoscopy. I had also consulted several doctors on my child- bearing prognosis and they ALL told me that UD is one congenital anomaly that does NOT require surgical correction. It does carry some pregnancy-related risks, particularly in the latter half of pregnancy due to the smaller size of each uterus. These include higher risk of premature labour and delivery, fetal malpresentation - ie. the baby being breech instead of head-down at term and various related labour issues. I just wanted to reassure you that I have had two full-term pregnancies, with relatively few complications and two completely healthy, perfect kids. I did not require any assistance to conceive, and although I had very close monitoring during my pregnancies, I didn't require any surgery or any " extraordinary " interventions to have my children. I am currently 36 weeks PG with my third baby. With uterine anomalies, there is a lot of individual variability in fertility and pregnancy outcomes. Through my research, I have " met " numerous women with UD, some of whom had uncomplicated pregnancies and didn't even know about their UD until after the fact, others had various issues/complications. There is a wide spectrum of individual cases. In my particular case, the outcomes have been really positive, without much medical intervention. I would urge you to continue to do research and go for a second, if not a third, opinion, plus more testing. Uterine surgery is a major step and one that I would not take lightly. Information is power, I hope you will find more answers here and elsewhere that will ease your concerns somewhat. Take care and feel free to ask anything you like. When I was first diagnosed, I found that the " personal " stories reassured me a lot more than medical textbooks, which generally focus on risks, not success stories. Best of luck, Lia UD, 36 wks PG with baby boy#3, EDD Jan 18, 02 - (middle name in debate) Kosic Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 2, 2002 Report Share Posted January 2, 2002 Hi Amy, Welcome to this list!! There are several women here who also have Uterus Didelphys, so you have found a good place for information and support here. My name is Lia and I also have Uterus Didelphys (the acronym we generally use for this is UD). Some common acronyms are: BU - bicornuate uterus SU - septate uterus UU - unicornate uterus As your doctor may have told you, UD generally means two completely separate uterine cavities, two cervixes and a logitudinal vaginal septum. There are some exceptions to this - for example, the two uterine cavities can sometimes be fused, but usually this is what UD is " defined " as. I am currently 34 and I was diagnosed with UD in my mid-twenties. I have had various tests done to confirm the diagnosis, but I haven't had laparoscopy. I had also consulted several doctors on my child- bearing prognosis and they ALL told me that UD is one congenital anomaly that does NOT require surgical correction. It does carry some pregnancy-related risks, particularly in the latter half of pregnancy due to the smaller size of each uterus. These include higher risk of premature labour and delivery, fetal malpresentation - ie. the baby being breech instead of head-down at term and various related labour issues. I just wanted to reassure you that I have had two full-term pregnancies, with relatively few complications and two completely healthy, perfect kids. I did not require any assistance to conceive, and although I had very close monitoring during my pregnancies, I didn't require any surgery or any " extraordinary " interventions to have my children. I am currently 36 weeks PG with my third baby. With uterine anomalies, there is a lot of individual variability in fertility and pregnancy outcomes. Through my research, I have " met " numerous women with UD, some of whom had uncomplicated pregnancies and didn't even know about their UD until after the fact, others had various issues/complications. There is a wide spectrum of individual cases. In my particular case, the outcomes have been really positive, without much medical intervention. I would urge you to continue to do research and go for a second, if not a third, opinion, plus more testing. Uterine surgery is a major step and one that I would not take lightly. Information is power, I hope you will find more answers here and elsewhere that will ease your concerns somewhat. Take care and feel free to ask anything you like. When I was first diagnosed, I found that the " personal " stories reassured me a lot more than medical textbooks, which generally focus on risks, not success stories. Best of luck, Lia UD, 36 wks PG with baby boy#3, EDD Jan 18, 02 - (middle name in debate) Kosic Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 2, 2002 Report Share Posted January 2, 2002 Hi Amy, Welcome to this list!! There are several women here who also have Uterus Didelphys, so you have found a good place for information and support here. My name is Lia and I also have Uterus Didelphys (the acronym we generally use for this is UD). Some common acronyms are: BU - bicornuate uterus SU - septate uterus UU - unicornate uterus As your doctor may have told you, UD generally means two completely separate uterine cavities, two cervixes and a logitudinal vaginal septum. There are some exceptions to this - for example, the two uterine cavities can sometimes be fused, but usually this is what UD is " defined " as. I am currently 34 and I was diagnosed with UD in my mid-twenties. I have had various tests done to confirm the diagnosis, but I haven't had laparoscopy. I had also consulted several doctors on my child- bearing prognosis and they ALL told me that UD is one congenital anomaly that does NOT require surgical correction. It does carry some pregnancy-related risks, particularly in the latter half of pregnancy due to the smaller size of each uterus. These include higher risk of premature labour and delivery, fetal malpresentation - ie. the baby being breech instead of head-down at term and various related labour issues. I just wanted to reassure you that I have had two full-term pregnancies, with relatively few complications and two completely healthy, perfect kids. I did not require any assistance to conceive, and although I had very close monitoring during my pregnancies, I didn't require any surgery or any " extraordinary " interventions to have my children. I am currently 36 weeks PG with my third baby. With uterine anomalies, there is a lot of individual variability in fertility and pregnancy outcomes. Through my research, I have " met " numerous women with UD, some of whom had uncomplicated pregnancies and didn't even know about their UD until after the fact, others had various issues/complications. There is a wide spectrum of individual cases. In my particular case, the outcomes have been really positive, without much medical intervention. I would urge you to continue to do research and go for a second, if not a third, opinion, plus more testing. Uterine surgery is a major step and one that I would not take lightly. Information is power, I hope you will find more answers here and elsewhere that will ease your concerns somewhat. Take care and feel free to ask anything you like. When I was first diagnosed, I found that the " personal " stories reassured me a lot more than medical textbooks, which generally focus on risks, not success stories. Best of luck, Lia UD, 36 wks PG with baby boy#3, EDD Jan 18, 02 - (middle name in debate) Kosic Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 2, 2002 Report Share Posted January 2, 2002 Thank you so much!! It is very comforting to finally find women who are going through what I am. I definatly will get other opinions. The last doctor I went to seemed too eager to look inside when I had already had sonograms that confirmed my diagnosis. I am not sure that he was really knowledgeable about this. I am so glad to hear about your children. I am hoping for happy and smooth pregnancies!! > Hi Amy, > > Welcome to this list!! There are several women here who also have > Uterus Didelphys, so you have found a good place for information and > support here. > > My name is Lia and I also have Uterus Didelphys (the acronym we > generally use for this is UD). > Some common acronyms are: > BU - bicornuate uterus > SU - septate uterus > UU - unicornate uterus > > As your doctor may have told you, UD generally means two completely > separate uterine cavities, two cervixes and a logitudinal vaginal > septum. There are some exceptions to this - for example, the two > uterine cavities can sometimes be fused, but usually this is what UD > is " defined " as. > > I am currently 34 and I was diagnosed with UD in my mid-twenties. I > have had various tests done to confirm the diagnosis, but I haven't > had laparoscopy. I had also consulted several doctors on my child- > bearing prognosis and they ALL told me that UD is one congenital > anomaly that does NOT require surgical correction. It does carry > some pregnancy-related risks, particularly in the latter half of > pregnancy due to the smaller size of each uterus. These include > higher risk of premature labour and delivery, fetal malpresentation - > ie. the baby being breech instead of head-down at term and various > related labour issues. > I just wanted to reassure you that I have had two full-term > pregnancies, with relatively few complications and two completely > healthy, perfect kids. I did not require any assistance to conceive, > and although I had very close monitoring during my pregnancies, I > didn't require any surgery or any " extraordinary " interventions to > have my children. I am currently 36 weeks PG with my third baby. > > With uterine anomalies, there is a lot of individual variability in > fertility and pregnancy outcomes. Through my research, I have " met " > numerous women with UD, some of whom had uncomplicated pregnancies > and didn't even know about their UD until after the fact, others had > various issues/complications. There is a wide spectrum of individual > cases. In my particular case, the outcomes have been really > positive, without much medical intervention. I would urge you to > continue to do research and go for a second, if not a third, opinion, > plus more testing. Uterine surgery is a major step and one that I > would not take lightly. Information is power, I hope you will find > more answers here and elsewhere that will ease your concerns somewhat. > Take care and feel free to ask anything you like. When I was first > diagnosed, I found that the " personal " stories reassured me a lot > more than medical textbooks, which generally focus on risks, not > success stories. Best of luck, > > Lia > UD, 36 wks PG with baby boy#3, EDD Jan 18, 02 - (middle name > in debate) Kosic Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 2, 2002 Report Share Posted January 2, 2002 Thank you so much!! It is very comforting to finally find women who are going through what I am. I definatly will get other opinions. The last doctor I went to seemed too eager to look inside when I had already had sonograms that confirmed my diagnosis. I am not sure that he was really knowledgeable about this. I am so glad to hear about your children. I am hoping for happy and smooth pregnancies!! > Hi Amy, > > Welcome to this list!! There are several women here who also have > Uterus Didelphys, so you have found a good place for information and > support here. > > My name is Lia and I also have Uterus Didelphys (the acronym we > generally use for this is UD). > Some common acronyms are: > BU - bicornuate uterus > SU - septate uterus > UU - unicornate uterus > > As your doctor may have told you, UD generally means two completely > separate uterine cavities, two cervixes and a logitudinal vaginal > septum. There are some exceptions to this - for example, the two > uterine cavities can sometimes be fused, but usually this is what UD > is " defined " as. > > I am currently 34 and I was diagnosed with UD in my mid-twenties. I > have had various tests done to confirm the diagnosis, but I haven't > had laparoscopy. I had also consulted several doctors on my child- > bearing prognosis and they ALL told me that UD is one congenital > anomaly that does NOT require surgical correction. It does carry > some pregnancy-related risks, particularly in the latter half of > pregnancy due to the smaller size of each uterus. These include > higher risk of premature labour and delivery, fetal malpresentation - > ie. the baby being breech instead of head-down at term and various > related labour issues. > I just wanted to reassure you that I have had two full-term > pregnancies, with relatively few complications and two completely > healthy, perfect kids. I did not require any assistance to conceive, > and although I had very close monitoring during my pregnancies, I > didn't require any surgery or any " extraordinary " interventions to > have my children. I am currently 36 weeks PG with my third baby. > > With uterine anomalies, there is a lot of individual variability in > fertility and pregnancy outcomes. Through my research, I have " met " > numerous women with UD, some of whom had uncomplicated pregnancies > and didn't even know about their UD until after the fact, others had > various issues/complications. There is a wide spectrum of individual > cases. In my particular case, the outcomes have been really > positive, without much medical intervention. I would urge you to > continue to do research and go for a second, if not a third, opinion, > plus more testing. Uterine surgery is a major step and one that I > would not take lightly. Information is power, I hope you will find > more answers here and elsewhere that will ease your concerns somewhat. > Take care and feel free to ask anything you like. When I was first > diagnosed, I found that the " personal " stories reassured me a lot > more than medical textbooks, which generally focus on risks, not > success stories. Best of luck, > > Lia > UD, 36 wks PG with baby boy#3, EDD Jan 18, 02 - (middle name > in debate) Kosic Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 2, 2002 Report Share Posted January 2, 2002 Thank you so much!! It is very comforting to finally find women who are going through what I am. I definatly will get other opinions. The last doctor I went to seemed too eager to look inside when I had already had sonograms that confirmed my diagnosis. I am not sure that he was really knowledgeable about this. I am so glad to hear about your children. I am hoping for happy and smooth pregnancies!! > Hi Amy, > > Welcome to this list!! There are several women here who also have > Uterus Didelphys, so you have found a good place for information and > support here. > > My name is Lia and I also have Uterus Didelphys (the acronym we > generally use for this is UD). > Some common acronyms are: > BU - bicornuate uterus > SU - septate uterus > UU - unicornate uterus > > As your doctor may have told you, UD generally means two completely > separate uterine cavities, two cervixes and a logitudinal vaginal > septum. There are some exceptions to this - for example, the two > uterine cavities can sometimes be fused, but usually this is what UD > is " defined " as. > > I am currently 34 and I was diagnosed with UD in my mid-twenties. I > have had various tests done to confirm the diagnosis, but I haven't > had laparoscopy. I had also consulted several doctors on my child- > bearing prognosis and they ALL told me that UD is one congenital > anomaly that does NOT require surgical correction. It does carry > some pregnancy-related risks, particularly in the latter half of > pregnancy due to the smaller size of each uterus. These include > higher risk of premature labour and delivery, fetal malpresentation - > ie. the baby being breech instead of head-down at term and various > related labour issues. > I just wanted to reassure you that I have had two full-term > pregnancies, with relatively few complications and two completely > healthy, perfect kids. I did not require any assistance to conceive, > and although I had very close monitoring during my pregnancies, I > didn't require any surgery or any " extraordinary " interventions to > have my children. I am currently 36 weeks PG with my third baby. > > With uterine anomalies, there is a lot of individual variability in > fertility and pregnancy outcomes. Through my research, I have " met " > numerous women with UD, some of whom had uncomplicated pregnancies > and didn't even know about their UD until after the fact, others had > various issues/complications. There is a wide spectrum of individual > cases. In my particular case, the outcomes have been really > positive, without much medical intervention. I would urge you to > continue to do research and go for a second, if not a third, opinion, > plus more testing. Uterine surgery is a major step and one that I > would not take lightly. Information is power, I hope you will find > more answers here and elsewhere that will ease your concerns somewhat. > Take care and feel free to ask anything you like. When I was first > diagnosed, I found that the " personal " stories reassured me a lot > more than medical textbooks, which generally focus on risks, not > success stories. Best of luck, > > Lia > UD, 36 wks PG with baby boy#3, EDD Jan 18, 02 - (middle name > in debate) Kosic Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 2, 2002 Report Share Posted January 2, 2002 What is a HSG?? I have seen may people talking about that being how they were diagnosed. Thanks! Amy > > Hi Amy, > > > > Welcome to this list!! There are several women here who also have > > Uterus Didelphys, so you have found a good place for information > and > > support here. > > > > My name is Lia and I also have Uterus Didelphys (the acronym we > > generally use for this is UD). > > Some common acronyms are: > > BU - bicornuate uterus > > SU - septate uterus > > UU - unicornate uterus > > > > As your doctor may have told you, UD generally means two completely > > separate uterine cavities, two cervixes and a logitudinal vaginal > > septum. There are some exceptions to this - for example, the two > > uterine cavities can sometimes be fused, but usually this is what > UD > > is " defined " as. > > > > I am currently 34 and I was diagnosed with UD in my mid- twenties. > I > > have had various tests done to confirm the diagnosis, but I haven't > > had laparoscopy. I had also consulted several doctors on my child- > > bearing prognosis and they ALL told me that UD is one congenital > > anomaly that does NOT require surgical correction. It does carry > > some pregnancy-related risks, particularly in the latter half of > > pregnancy due to the smaller size of each uterus. These include > > higher risk of premature labour and delivery, fetal > malpresentation - > > ie. the baby being breech instead of head-down at term and various > > related labour issues. > > I just wanted to reassure you that I have had two full-term > > pregnancies, with relatively few complications and two completely > > healthy, perfect kids. I did not require any assistance to > conceive, > > and although I had very close monitoring during my pregnancies, I > > didn't require any surgery or any " extraordinary " interventions to > > have my children. I am currently 36 weeks PG with my third baby. > > > > With uterine anomalies, there is a lot of individual variability in > > fertility and pregnancy outcomes. Through my research, I > have " met " > > numerous women with UD, some of whom had uncomplicated pregnancies > > and didn't even know about their UD until after the fact, others > had > > various issues/complications. There is a wide spectrum of > individual > > cases. In my particular case, the outcomes have been really > > positive, without much medical intervention. I would urge you to > > continue to do research and go for a second, if not a third, > opinion, > > plus more testing. Uterine surgery is a major step and one that I > > would not take lightly. Information is power, I hope you will find > > more answers here and elsewhere that will ease your concerns > somewhat. > > Take care and feel free to ask anything you like. When I was first > > diagnosed, I found that the " personal " stories reassured me a lot > > more than medical textbooks, which generally focus on risks, not > > success stories. Best of luck, > > > > Lia > > UD, 36 wks PG with baby boy#3, EDD Jan 18, 02 - (middle > name > > in debate) Kosic Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 2, 2002 Report Share Posted January 2, 2002 >Cansome of you who have has similar experiences share some insights >with me. I want to start trying to have children in about 1 1/2 >years. I am terrified and heartbroken. THanks! Hey Amy! I'm 27 w/UD and I'm really glad you found us! One thing I can guarentee is that everyone of us has had that terrified and heartbroken feeling. I'm sorry you ran into someone you didn't feel comfortable with; I'm sure others on the board have run into the same problem. As Lia mentioned, UD is not something you would correct. I think waaaaaayy back I read about this being done experimentally and then being scrapped b/c any incision to the womb can lead to future weakness or scar tissue and UD wombs, tho smaller, seem to do the job fine. I actually saw a reproductive endocrinologist who told me that unless I had other problems (which I do now - yuck) I wouldn't even be considered high risk! How cool! So take a deep breath and get to know the girls here. I don't know how I'd have managed without them :-) ~ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 2, 2002 Report Share Posted January 2, 2002 Thanks !! I can't tell you how thankful I am to have found you girls. Thanks for your support and I'll keep you posted on what is going on! Thanks, Amy > Hey Amy! > I'm 27 w/UD and I'm really glad you found us! One thing I can > guarentee is that everyone of us has had that terrified and > heartbroken feeling. I'm sorry you ran into someone you didn't feel > comfortable with; I'm sure others on the board have run into the same > problem. > > As Lia mentioned, UD is not something you would correct. I think > waaaaaayy back I read about this being done experimentally and then > being scrapped b/c any incision to the womb can lead to future > weakness or scar tissue and UD wombs, tho smaller, seem to do the job > fine. > > I actually saw a reproductive endocrinologist who told me that unless > I had other problems (which I do now - yuck) I wouldn't even be > considered high risk! How cool! So take a deep breath and get to know > the girls here. I don't know how I'd have managed without them :-) > ~ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 2, 2002 Report Share Posted January 2, 2002 Hi Amy, welcome to the group. I am writing in behalf of my 21 year old daughter who was also diagnosed as having the double vagina, double cervix. No further tests were done to see about the uterus's at that time. She found out like you at age 17 when in for her first pap test and was devistated. She is planning on having children in 2 years also. We found a new doctor for her and discussed options and complications when she wanted to have children. The Doctor suggested we have the septum in the vagina removed and do the laposcopy while that was being performed. She suggested that we also do a hystoscopy since we knew she would need surgery if she was to be able to conceive without alot of miscarraiges. Our doctor said that the way my insurance was set up if we did it before she tried to have children it could be billed as medical anomaly and comopletely covered.. If she had miscarriages first then if would have to be billed as a fertility measure and insurance wouldn't cover it.Check with your insurance carrier too. So we opted to get thing going now since she is still under our insurance while she is in college.\ She had the vaginal septum surgery the day before yesterday. Turns out that the septum went through the cervix which gave the illusion of being two and straight through the uterus. Much different that was originally thought. Your best bet is search out as much information as you can with the lap/hyst so you know for sure. She is feeling great after the procedure of removal of the vasginal septum and was home in a few hours. Good luck. If you need a second opinion just have a copy of your records sent. Most doctors only see a couple of cases of MA in their lifetime. Our first doctor suggested we leave things alone until we ran into problems also. Good Luck,. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 2, 2002 Report Share Posted January 2, 2002 Welcome Amy, I am sorry I don't have any answers for you questions, but I hope you get the answers you deserve. Good luck and I am looking forward to getting to know you. Hello from AMY Hi My name is Amy and I am 23. I was diagnosed with Uterus Didelphus at 17. I have a septum in my vagina, two cervix and two uterus. Until now I thought I would be able to have children fine. My doctors told me to try and then if I had problems we could look in to what was happening. Last month I went to a doctor who told me no, that I wouldn't be able to have children without surgery. He wants to do a laproscopy and see exactly what my uterus looks like and then he said I would have to have a major surgery to have the uterii combined. I don't know very much about this now and I'm not sure that my doctor was very up to date with new tecnology. I have been reading on websites trying to find some hope that I will be able to have children. Cansome of you who have has similar experiences share some insights with me. I want to start trying to have children in about 1 1/2 years. I am terrified and heartbroken. THanks! Also if you can help me with some of the Acronyms that you use that would be helpful!! I am having trouble understanding you!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 2, 2002 Report Share Posted January 2, 2002 Hi Amy!! I also have UD (like you I have the 2 uteri, 2 cervices, & a vaginal septum). I was also devastated, confused & uncertain when I first found out. This group was a gold mine of information for me. I definately agree with Lia & that surgery is rarely (if ever these days) recommended to correct UD. That is the first time I had ever heard a physician actually recommend fusing the uterus together surgically. The risks of the surgery on the strength of the uterus are too high. I have had a physician tell me that they will surgically remove the vaginal septum if it causes discomfort. I would definately get a second opinion (at the very least) before pursuing surgery. I am currently about 36 weeks pregnant with my first baby. I was diagnosed with UD at 30 years of age & was pregnant about 3 weeks after I was told I had UD. The only test I have had was an US (the pregnancy interrupted any further workup). But, when I asked my OB if I could have an alternate anomaly, his response was that I was definately UD. Although, we could look into other tests after the pregnancy if I wished. Looking at the US pictures, I think it was pretty obviously UD, so I don't think I am going to get any further workup. Lia & covered that topics of the risks pretty thoroughly. But, I just wanted to point out that there are some great articles in the Bookmarks section of the Mullerian Anomalies website (if you haven't read through them already) & here is a link to an abstract that looks at the reproductive outcomes of UD specifically: http://www.ncbi.nlm.nih.gov/PubMed/ & enter " implications didelphic uterus " into the search box. It should pull it right up). I agree with Lia that all the success stories are much more enlightening that the statistical facts. This is one article that I did save as it dealt specifically with UD. It helped me determine what issues that I felt I needed to press with my OB. Good luck to you & keep us updated. Tammy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 2, 2002 Report Share Posted January 2, 2002 Hi Amy!! I also have UD (like you I have the 2 uteri, 2 cervices, & a vaginal septum). I was also devastated, confused & uncertain when I first found out. This group was a gold mine of information for me. I definately agree with Lia & that surgery is rarely (if ever these days) recommended to correct UD. That is the first time I had ever heard a physician actually recommend fusing the uterus together surgically. The risks of the surgery on the strength of the uterus are too high. I have had a physician tell me that they will surgically remove the vaginal septum if it causes discomfort. I would definately get a second opinion (at the very least) before pursuing surgery. I am currently about 36 weeks pregnant with my first baby. I was diagnosed with UD at 30 years of age & was pregnant about 3 weeks after I was told I had UD. The only test I have had was an US (the pregnancy interrupted any further workup). But, when I asked my OB if I could have an alternate anomaly, his response was that I was definately UD. Although, we could look into other tests after the pregnancy if I wished. Looking at the US pictures, I think it was pretty obviously UD, so I don't think I am going to get any further workup. Lia & covered that topics of the risks pretty thoroughly. But, I just wanted to point out that there are some great articles in the Bookmarks section of the Mullerian Anomalies website (if you haven't read through them already) & here is a link to an abstract that looks at the reproductive outcomes of UD specifically: http://www.ncbi.nlm.nih.gov/PubMed/ & enter " implications didelphic uterus " into the search box. It should pull it right up). I agree with Lia that all the success stories are much more enlightening that the statistical facts. This is one article that I did save as it dealt specifically with UD. It helped me determine what issues that I felt I needed to press with my OB. Good luck to you & keep us updated. Tammy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 2, 2002 Report Share Posted January 2, 2002 Hi, Amy. Glad that the list is finally functioning for you. You stick to your guns! I also think that your doctor is behind the times or simply misinformed, because surgery to unite didelphys has never really been recommended. Sometimes it is done in the case of a bicornuate uterus, if there is reason to believe that it causes pregnancy loss. It is frequently done with spetate uterus. It could be that good testing or even a laparoscopy is in order, but don't take this guy's word for it, please. Keep up the good work in researching your options. Beth p.s. I hope the UD mothers on this list smooth your fears away. UD isn't such a bad thing to have. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 2, 2002 Report Share Posted January 2, 2002 > What is a HSG?? I have seen may people talking about that being how > they were diagnosed. Thanks! Amy http://groups.yahoo.com/group/MullerianAnomalies/files/terms.htm Amy, this list of commonly used terms also defines HSG: hysterosalpingogram. It's the dye test that shows the interior of the uterus and tubes. Beth Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 3, 2002 Report Share Posted January 3, 2002 I was wondering if you could tell me about the removal of the vaginal septum. Was that causing her pain in intercourse? I ask because my doctor recceomended that but I have no problems with intercourse and I worry that that would decrease sensitivity. Also I don't know if it will cause any problems with having children yet. Anyone else know anything about this?? Re: Hello from AMY Hi Amy, welcome to the group. I am writing in behalf of my 21 year old daughter who was also diagnosed as having the double vagina, double cervix. No further tests were done to see about the uterus's at that time. She found out like you at age 17 when in for her first pap test and was devistated. She is planning on having children in 2 years also. We found a new doctor for her and discussed options and complications when she wanted to have children. The Doctor suggested we have the septum in the vagina removed and do the laposcopy while that was being performed. She suggested that we also do a hystoscopy since we knew she would need surgery if she was to be able to conceive without alot of miscarraiges. Our doctor said that the way my insurance was set up if we did it before she tried to have children it could be billed as medical anomaly and comopletely covered.. If she had miscarriages first then if would have to be billed as a fertility measure and insurance wouldn't cover it.Check with your insurance carrier too. So we opted to get thing going now since she is still under our insurance while she is in college.\ She had the vaginal septum surgery the day before yesterday. Turns out that the septum went through the cervix which gave the illusion of being two and straight through the uterus. Much different that was originally thought. Your best bet is search out as much information as you can with the lap/hyst so you know for sure. She is feeling great after the procedure of removal of the vasginal septum and was home in a few hours. Good luck. If you need a second opinion just have a copy of your records sent. Most doctors only see a couple of cases of MA in their lifetime. Our first doctor suggested we leave things alone until we ran into problems also. Good Luck,. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 3, 2002 Report Share Posted January 3, 2002 > I was wondering if you could tell me about the removal of the vaginal septum. Was that causing her pain in intercourse? I ask because my doctor recceomended that but I have no problems with intercourse and I worry that that would decrease sensitivity Hi Amy, My doc has also recommended I have the septum removed. She's a great OB/GYN, but I don't think she seen many MA's. I told her I was not interested, but everytime I go she brings it up. I've had a ton of surgeries and repairs to a variety of body parts and I have a firm belief that if it ain't broke, don't fix it. I know for some women the septum divides the vagina completely in half and that can make intercourse painful, but I have one normal size vagina and one so tiny that they have trouble doing a pap with a pediatric speculum so I'm just going to leave it as is unless someone w/more experience in MA's says its got to go. Even then I think I'll get a second opinion. What about you guys? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 3, 2002 Report Share Posted January 3, 2002 > I was wondering if you could tell me about the removal of the vaginal septum. Was that causing her pain in intercourse? I ask because my doctor recceomended that but I have no problems with intercourse and I worry that that would decrease sensitivity Hi Amy, My doc has also recommended I have the septum removed. She's a great OB/GYN, but I don't think she seen many MA's. I told her I was not interested, but everytime I go she brings it up. I've had a ton of surgeries and repairs to a variety of body parts and I have a firm belief that if it ain't broke, don't fix it. I know for some women the septum divides the vagina completely in half and that can make intercourse painful, but I have one normal size vagina and one so tiny that they have trouble doing a pap with a pediatric speculum so I'm just going to leave it as is unless someone w/more experience in MA's says its got to go. Even then I think I'll get a second opinion. What about you guys? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 3, 2002 Report Share Posted January 3, 2002 That is kind of how I am. One is normal size and the other is smaller although I can use both sexually. I am afraid if I have the septum removed I will have too much room and I won't be as easily stimulated. I definatly want second opinions. Re: Hello from AMY > I was wondering if you could tell me about the removal of the vaginal septum. Was that causing her pain in intercourse? I ask because my doctor recceomended that but I have no problems with intercourse and I worry that that would decrease sensitivity Hi Amy, My doc has also recommended I have the septum removed. She's a great OB/GYN, but I don't think she seen many MA's. I told her I was not interested, but everytime I go she brings it up. I've had a ton of surgeries and repairs to a variety of body parts and I have a firm belief that if it ain't broke, don't fix it. I know for some women the septum divides the vagina completely in half and that can make intercourse painful, but I have one normal size vagina and one so tiny that they have trouble doing a pap with a pediatric speculum so I'm just going to leave it as is unless someone w/more experience in MA's says its got to go. Even then I think I'll get a second opinion. What about you guys? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 3, 2002 Report Share Posted January 3, 2002 > That is kind of how I am. One is normal size and the other is smaller although I can use both sexually. I am afraid if I have the septum removed I will have too much room and I won't be as easily stimulated. I definatly want second opinions. That's EXACTLY what I'm concerned about ... I just couldn't find the right phrasing <LOL> I'm sure there are at least a couple MD's in Boston who have experience w/MAs ... I just have to find them! Take care, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 3, 2002 Report Share Posted January 3, 2002 > That is kind of how I am. One is normal size and the other is smaller although I can use both sexually. I am afraid if I have the septum removed I will have too much room and I won't be as easily stimulated. I definatly want second opinions. That's EXACTLY what I'm concerned about ... I just couldn't find the right phrasing <LOL> I'm sure there are at least a couple MD's in Boston who have experience w/MAs ... I just have to find them! Take care, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 3, 2002 Report Share Posted January 3, 2002 Let me know what you find out and I will do the same!! > > That is kind of how I am. One is normal size and the other is > smaller although I can use both sexually. I am afraid if I have the > septum removed I will have too much room and I won't be as easily > stimulated. I definatly want second opinions. > > That's EXACTLY what I'm concerned about ... I just couldn't find the > right phrasing <LOL> I'm sure there are at least a couple MD's in > Boston who have experience w/MAs ... I just have to find them! > Take care, > Quote Link to comment Share on other sites More sharing options...
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