Guest guest Posted July 13, 2002 Report Share Posted July 13, 2002 I just had my fourth electro-cardioversion. I lasted about 12-14 hours in NSR before reverting to afib. I do have a pacemaker which helps but I still get fatigued much easier when in afib. I've failed on dronedarone and amiodarone. I've been in chronic afib for about a year. With my underlying cardiomyopathy, the only drug left to try is dofetilide (tikosyn). Is anyone else in the group in permanent afib that cannot be cardioverted? i'm looking for ideas on how to manage it if no drugs work at all. thanks Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 13, 2002 Report Share Posted July 13, 2002 to dadzilla50 I had five electrocardioversions, some lasted two days, the longest was two weeks and then I went back into Afib. I am sad to read that you have a pacemaker and still go into Afib. I had catheter ablation and then a pacemaker implanted about ten days. My EP assured me that the pacemaker would keep me from going into Afib again. I had lots of side effects from most of the heart meds, including atenolol, sotalol and especially ameordarone. Now am off all meds except coumadin. Irene Chronic/Permanent Afib I just had my fourth electro-cardioversion. I lasted about 12-14 hours in NSR before reverting to afib. I do have a pacemaker which helps but I still get fatigued much easier when in afib. I've failed on dronedarone and amiodarone. I've been in chronic afib for about a year. With my underlying cardiomyopathy, the only drug left to try is dofetilide (tikosyn). Is anyone else in the group in permanent afib that cannot be cardioverted? i'm looking for ideas on how to manage it if no drugs work at all. thanks Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 13, 2002 Report Share Posted July 13, 2002 > I just had my fourth electro-cardioversion. I lasted about 12-14 > hours in NSR before reverting to afib. I do have a pacemaker which > helps but I still get fatigued much easier when in afib. I've failed > on dronedarone and amiodarone. I've been in chronic afib for about a > year. With my underlying cardiomyopathy, the only drug left to try > is dofetilide (tikosyn). Hi, I think it's too soon to give up on drugs - Ellen was in much the same situation as you when Tikosyn worked for her. Also, there is the maze procedure, but I don't know if that is appropriate when there is cardiomyopathy. On the other hand, if your cardiomyopathy is the result of long term uncontrolled tachycardia when in afib, getting back to normal rhythm should eventually restore your heart, as I understand it. I wouldn't be depressed by the electrocardioversions failing. MY understanding is that it is unusual for them to result in long term periods in sinus for most people. They don;t address the basic problem. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 13, 2002 Report Share Posted July 13, 2002 Ladies: Thanks for the guidance. I am a little discouraged. My issue when in afib has always been that my ventricular rate dropped out the bottom (40 bpm or so). Of course, the pacemaker fixed that issue. I haven't found a lot of other afibbers with my set of circumstances (underlying cardiomyopathy, bradycardia corrected by pacemaker and chronic afib) I've been on amiodarone for about 40 days and I think we'll probably either stay on it another 30 days and try cardioversion again or try Tikosyn. I'd sure like to feel good again. We really don't know which came first, the cardiomyopathy or the afib, but I think the cardiomyopathy led to the afib. Dadzilla Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 14, 2002 Report Share Posted July 14, 2002 > Ladies: Thanks for the guidance. I am a little discouraged What kind of cardiomyopathy do you have? My Mom had hypertrophic (sp?) cardiomyopathy and afib, but she managed to achieve good control of the afib. Does your doc have any thoughts about which came first? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 14, 2002 Report Share Posted July 14, 2002 Dear Dadzilla: The way my husband's EP explained it to us, the A-Fib causes the cardiomyopathy. You're tachy for long periods of time (sometimes, as in my husband's case, without knowing it) and your heart damages itself trying to keep up. Then it poops out! My husband is on a combination of Altase, Digoxin, and Coreg for the cardiomyopathy, and the good news is, it's working!! He had a repeat echo on Monday, and the enlargement is resolved, PLUS his expulsion rate has improved from 35 to 60!!! He started on Rhythmol Tuesday, the EP is hoping that will put him into NSR. Good luck with your search for answers. I know it can be frustrating! Love, Diane. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 14, 2002 Report Share Posted July 14, 2002 > I have two friends, male, ages 55-61, who have > been in permanent afib > for 1-4 years. What's interesting is that they > are relatively > undisturbed by it, take their Coumadin and Beta > Blockers, and > continue on with normal lives. Some people are > lucky. I wait for > the next bout, although have been bout-free for > a year with meds. I > guess I'm lucky also. > Mac Coffey, 63 Dear Mac: Dave has been in chronic A-Fib for somewhere around a year. He never noticed it. He was dx'd when he went in to get abx for a respiratory infection... ===== Love, Diane. http://babiesonline.com/babies/e/evankyle __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 23, 2002 Report Share Posted July 23, 2002 Check out Focal Point Ablation to cure your A-Fib. I had A-Fib and was completely cured four years ago. I put together a Web site with a list of Doctors and Medical Facilities that perform this procedure---http://www.a-fib.com. It takes about two hours under local anesthetic. Most A-Fib comes from the left atrium pulmonary veins. The doctors simply zap those areas so they don't produce A-Fib signals. dadzilla50 wrote: > I just had my fourth electro-cardioversion. I lasted about 12-14 > hours in NSR before reverting to afib. I do have a pacemaker which > helps but I still get fatigued much easier when in afib. I've failed > on dronedarone and amiodarone. I've been in chronic afib for about a > year. With my underlying cardiomyopathy, the only drug left to try > is dofetilide (tikosyn). Is anyone else in the group in permanent > afib that cannot be cardioverted? i'm looking for ideas on how to > manage it if no drugs work at all. > > thanks > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 23, 2002 Report Share Posted July 23, 2002 Check out Focal Point Ablation to cure your A-Fib. I had A-Fib and was completely cured four years ago. I put together a Web site with a list of Doctors and Medical Facilities that perform this procedure---http://www.a-fib.com. It takes about two hours under local anesthetic. Most A-Fib comes from the left atrium pulmonary veins. The doctors simply zap those areas so they don't produce A-Fib signals. dadzilla50 wrote: > I just had my fourth electro-cardioversion. I lasted about 12-14 > hours in NSR before reverting to afib. I do have a pacemaker which > helps but I still get fatigued much easier when in afib. I've failed > on dronedarone and amiodarone. I've been in chronic afib for about a > year. With my underlying cardiomyopathy, the only drug left to try > is dofetilide (tikosyn). Is anyone else in the group in permanent > afib that cannot be cardioverted? i'm looking for ideas on how to > manage it if no drugs work at all. > > thanks > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 23, 2002 Report Share Posted July 23, 2002 Check out Focal Point Ablation to cure your A-Fib. I had A-Fib and was completely cured four years ago. I put together a Web site with a list of Doctors and Medical Facilities that perform this procedure---http://www.a-fib.com. It takes about two hours under local anesthetic. Most A-Fib comes from the left atrium pulmonary veins. The doctors simply zap those areas so they don't produce A-Fib signals. dadzilla50 wrote: > I just had my fourth electro-cardioversion. I lasted about 12-14 > hours in NSR before reverting to afib. I do have a pacemaker which > helps but I still get fatigued much easier when in afib. I've failed > on dronedarone and amiodarone. I've been in chronic afib for about a > year. With my underlying cardiomyopathy, the only drug left to try > is dofetilide (tikosyn). Is anyone else in the group in permanent > afib that cannot be cardioverted? i'm looking for ideas on how to > manage it if no drugs work at all. > > thanks > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 23, 2002 Report Share Posted July 23, 2002 I put together a Web site with a list > of Doctors and Medical Facilities that perform this > procedure---http://www.a-fib.com I tired to look at your site but for mosme reason the page cannot be displayed. Is there a problem with the address? Thanks Fran Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 23, 2002 Report Share Posted July 23, 2002 > Check out Focal Point Ablation to cure your A-Fib. Steve, I think pulmonary vein isolation is replacing zapping individual focal points... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 24, 2002 Report Share Posted July 24, 2002 Hi Fran I got through, and it is a really nice piece of work for the site, but it seems to center around only one person, and all the experiences are for that one person, and then it asks if you want to donate money to his site. Oh well, any information gained, makes a person better prepared. Take care, Walt in SC and still hot, but you really sent the rain, 3 days in a row, and we needed it. Hope that you got some sun. Re: Chronic/Permanent Afib > > I put together a Web site with a list > > of Doctors and Medical Facilities that perform this > > procedure---http://www.a-fib.com > > I tired to look at your site but for mosme reason the page cannot be > displayed. Is there a problem with the address? > > Thanks > > Fran > > > > Web Page - http://groups.yahoo.com/group/AFIBsupport > FAQ - http://groups.yahoo.com/group/AFIBsupport/files/Administrative/faq.htm > For more information: http://www.dialsolutions.com/af > Unsubscribe: AFIBsupport-unsubscribe > List owner: AFIBsupport-owner > For help on how to use the group, including how to drive it via email, > send a blank email to AFIBsupport-help > > Nothing in this message should be considered as medical advice, or should be acted upon without consultation with one's physician. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 24, 2002 Report Share Posted July 24, 2002 Yes I finally got through to the site. It was good layout and looked very professional, but as you say it only revolved around 1 persons experience. I didn't find anything new although I thought I had found a new bulletin board, but it was a link to Hans Larsens site. Perhaps Steve would like to link this site in to to give people a wider perspective. Glad you are appreciating the rain. We got the one day of sun and are back to overcast, but at least there is no rain. Take care Fran Re: Chronic/Permanent Afib > > > > > > I put together a Web site with a list > > > of Doctors and Medical Facilities that perform this > > > procedure---http://www.a-fib.com > > > > I tired to look at your site but for mosme reason the page cannot be > > displayed. Is there a problem with the address? > > > > Thanks > > > > Fran > > > > > > > > Web Page - http://groups.yahoo.com/group/AFIBsupport > > FAQ - > http://groups.yahoo.com/group/AFIBsupport/files/Administrative/faq.htm > > For more information: http://www.dialsolutions.com/af > > Unsubscribe: AFIBsupport-unsubscribe > > List owner: AFIBsupport-owner > > For help on how to use the group, including how to drive it via email, > > send a blank email to AFIBsupport-help > > > > Nothing in this message should be considered as medical advice, or should > be acted upon without consultation with one's physician. > > > > Quote Link to comment Share on other sites More sharing options...
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