New to the group

[Guest guest]

Steve, FYI, don't rule out brachytherapy. I had psa 5.5, gleason 3+3, tumor stage t1c. I opted for brachytherapy and had great results. No incontinence, mild ED corrected by Viagra. Had it done in Chicago last Sept. It may or may not be for you, but I think you ought to at least consider it. With your pca numbers, you would probably be considered a good candidate.

Ken

Re: New to the group

Steve Jordan,Yes, another Steve here. Is it a name curse or something? As for the Gleason score, I do not hear a lot of things well so I may have misunderstood his numbers and I forgot to ask. New at all of this. I think he said either 5 or 6 and 2+3 or 3+3. I know the PSA is NOT the deciding factor. However, my doctor subscribes to the age factor and number on the PSA and said that at my age he uses 2.5 as the borderline. My DRE was done well before the blood was drawn and I had a bit of trouble with ED, so I had no sex or ejaculation to cause the rise. I also am aware that blood in the urine is not a symptom of prostate trouble only, but when he scoped my urethra out, he said that there was evidence of a problem with the prostate. BTW, the DRE was normal. There was other evidence pointing to a problem and the symptoms were classic for pros trouble. I was on Levaquin for almost 4 weeks, which should have helped, but the PSA number rose instead.Thank you for your input. I am printing out the responses I get so my wife can read them as well. I will let everyone know what my decision is as soon as I decide. Thanks to all.Steve

[Guest guest]

Thanks Steve J. I am already working on a filing system. As many medical issues as I have had over the past 15 years, I am extremely cautious, and it is justifiable. I have had a few call me a certified nut because I ask a lot of questions. As I tell my students, "The only dumb question is the one you do not ask." I will get a copy of everything Friday when I talk to the radiation therapy clinic. My urologist is sending me all of their info as well. I am not totally sold on ANY procedure right now. We will make the best decision possible for us. Take care and God bless.Steve S. Re: New to the groupOn June 18, Steve.... Replied to me:

> Yes, another Steve here. Is it a name curse or something?

In other PCa support sites, there also seems to be an infestation of

Steves. One way to prevent confusion is to use first name + initial of

last. Thus: Steve J.

> As for the

> Gleason score, I do not hear a lot of things well so I may have

> misunderstood his numbers and I forgot to ask. New at all of this. I

> think he said either 5 or 6 and 2+3 or 3+3.

I cannot state too strongly that the Gleason score, authenticated by an

expert, is absolutely vital. Everything that is done from here on is

utterly dependent upon its accuracy.

I also strongly recommend setting up a PCa file, in which very test

result, notes, everything related to this is preserved. The patient has

a right to those records. In my case, I have copies of all tests sent

directly to me.

It has saved my rear several times, most recently when I had a biopsy of

a suspicious T-3 (third thoracic vertebra). When I reviewed my copy of

the pathology report, it referred to T-4, the *fourth* thoracic

vertebra. I nailed the medic about this, and he apologized and made sure

that the record was corrected. Take home lesson: If I had not made sure

that I see every test result, etc., I would never have known of that

error and my present RT would be directed at the wrong site. Just a tad

important, I think. I believe that we cannot rely upon others to have

our best interests uppermost in their attention. The medics and their

staffs are human and prone to error.

> I know the PSA is NOT the

> deciding factor. However, my doctor subscribes to the age factor and

> number on the PSA and said that at my age he uses 2.5 as the borderline.

Yes, 2.5 ng/mL (nanograms per milliliter) is the reference point, all

else being accounted for. A test result in excess of standard should be

considered suspicious for PCa until proven otherwise.

(snip)

Good hunting. The task of self-empowerment is daunting, but the reward

is priceless.

Regards,

Steve J

"As a physician, I am painfully aware that most of the decisions we make

with

regard to prostate cancer are made with inadequate data."

-- L. "Snuffy" Myers, MD

Medical oncologist. PCa survivor.

[Guest guest]

Thanks Steve J. I am already working on a filing system. As many medical issues as I have had over the past 15 years, I am extremely cautious, and it is justifiable. I have had a few call me a certified nut because I ask a lot of questions. As I tell my students, "The only dumb question is the one you do not ask." I will get a copy of everything Friday when I talk to the radiation therapy clinic. My urologist is sending me all of their info as well. I am not totally sold on ANY procedure right now. We will make the best decision possible for us. Take care and God bless.Steve S. Re: New to the groupOn June 18, Steve.... Replied to me:

> Yes, another Steve here. Is it a name curse or something?

In other PCa support sites, there also seems to be an infestation of

Steves. One way to prevent confusion is to use first name + initial of

last. Thus: Steve J.

> As for the

> Gleason score, I do not hear a lot of things well so I may have

> misunderstood his numbers and I forgot to ask. New at all of this. I

> think he said either 5 or 6 and 2+3 or 3+3.

I cannot state too strongly that the Gleason score, authenticated by an

expert, is absolutely vital. Everything that is done from here on is

utterly dependent upon its accuracy.

I also strongly recommend setting up a PCa file, in which very test

result, notes, everything related to this is preserved. The patient has

a right to those records. In my case, I have copies of all tests sent

directly to me.

It has saved my rear several times, most recently when I had a biopsy of

a suspicious T-3 (third thoracic vertebra). When I reviewed my copy of

the pathology report, it referred to T-4, the *fourth* thoracic

vertebra. I nailed the medic about this, and he apologized and made sure

that the record was corrected. Take home lesson: If I had not made sure

that I see every test result, etc., I would never have known of that

error and my present RT would be directed at the wrong site. Just a tad

important, I think. I believe that we cannot rely upon others to have

our best interests uppermost in their attention. The medics and their

staffs are human and prone to error.

> I know the PSA is NOT the

> deciding factor. However, my doctor subscribes to the age factor and

> number on the PSA and said that at my age he uses 2.5 as the borderline.

Yes, 2.5 ng/mL (nanograms per milliliter) is the reference point, all

else being accounted for. A test result in excess of standard should be

considered suspicious for PCa until proven otherwise.

(snip)

Good hunting. The task of self-empowerment is daunting, but the reward

is priceless.

Regards,

Steve J

"As a physician, I am painfully aware that most of the decisions we make

with

regard to prostate cancer are made with inadequate data."

-- L. "Snuffy" Myers, MD

Medical oncologist. PCa survivor.

[Guest guest]

Sheila,Thanks for the encouragement. What I am seeing here is great. It is what I needed to see and hear. Mine is not aggressive and my prostate was not enlarged. If I had not had the big jump in PSA and a family history, my PCP may have never given it a thought. I have a consultation set up for next week with a different doctor. As mine seems to be very localized, I am reminded that these scans and all do not always show the entire picture. I will keep an open mind, ready to do what needs to be done to maintain my life and lifestyle.Steve S.

[Guest guest]

Laurel,In 25 years as a preacher and almost 20 years pastoring churches, I have always had to deal with other people's issues. Many people do not understand that without faith, we could not even drive down the road (albeit a different kind). I plan to ask loaded questions Friday when I talk to the radiation therapist. I have had CT scans to check for the bladder cancer as well as kidney cancer (dye injection) and a bone scan. All is well and normal except the prostate. I understand the side effects of all of the procedures. One's health must be tended to or he or she will have no life at all. I want to spend time with my 6 grandchildren. I want to spend time with my wife of 37 years (since I am 56, that

gives you an idea how young I was when I got married). I want to enjoy helping other people (I used to moderate an Alzheimers Support Group for 6 years). When I had back surgery in December, my surgeon could not believe that I actually walked into his office 4 weeks after surgery without even a cane. True, I am permanently disabled, but he said that I should not have even been able to walk to start with. I reminded him that he was just an instrument in God's hands. He told me that he wished that he could bottle up a little of the faith and give it to other patients. A positive attitude works in recovery from any and all illnesses. We had a neighbor who started out with breast cancer. They removed 1 and then the other. The cancer then spread to her bones, liver, and pancreas as well as her lungs. She always had a smile on her face because she had faith and knew that she was in God's hands. She went out with a smile on her face and she had to be

in total pain because she refused any pain meds.I have learned a lot from the people on here. That is why I came to this group - to learn. We all can learn from the experiences of others. If we do not, we fail in our responsibility to ourselves and our families.Thank you for the enlightenment.Steve S.

[Guest guest]

Laurel,In 25 years as a preacher and almost 20 years pastoring churches, I have always had to deal with other people's issues. Many people do not understand that without faith, we could not even drive down the road (albeit a different kind). I plan to ask loaded questions Friday when I talk to the radiation therapist. I have had CT scans to check for the bladder cancer as well as kidney cancer (dye injection) and a bone scan. All is well and normal except the prostate. I understand the side effects of all of the procedures. One's health must be tended to or he or she will have no life at all. I want to spend time with my 6 grandchildren. I want to spend time with my wife of 37 years (since I am 56, that

gives you an idea how young I was when I got married). I want to enjoy helping other people (I used to moderate an Alzheimers Support Group for 6 years). When I had back surgery in December, my surgeon could not believe that I actually walked into his office 4 weeks after surgery without even a cane. True, I am permanently disabled, but he said that I should not have even been able to walk to start with. I reminded him that he was just an instrument in God's hands. He told me that he wished that he could bottle up a little of the faith and give it to other patients. A positive attitude works in recovery from any and all illnesses. We had a neighbor who started out with breast cancer. They removed 1 and then the other. The cancer then spread to her bones, liver, and pancreas as well as her lungs. She always had a smile on her face because she had faith and knew that she was in God's hands. She went out with a smile on her face and she had to be

in total pain because she refused any pain meds.I have learned a lot from the people on here. That is why I came to this group - to learn. We all can learn from the experiences of others. If we do not, we fail in our responsibility to ourselves and our families.Thank you for the enlightenment.Steve S.

[Guest guest]

G’day New Steve. Steve J posts

excellent advice for newly diagnosed men. What he suggests sounds daunting and

many men don’t follow his advice, but nevertheless, it is the way to go.

I saw from one of your posts that you were

interested to know what other men have done and although this should not be

your sole guide as to what you should do, it can help in whittling down the

multiplicity of choices. Others have found it helpful to read of these

experiences and you can find more than 450 stories indexed on my site at http://www.yananow.net/Experiences.html

The site also guides you through

definitions, suggests ways to improve survival, has links to information about

the various options nad has a resources page with links to useful information. Log

on at YANA – You Are Not Alone Now at http://www.yananow.net

Oh! And keep asking questions.

All the best

Terry Herbert

I have no medical

qualifications but I was diagnosed in ‘96: and have learned a bit since

then.

My sites are at www.yananow.net and www.prostatecancerwatchfulwaiting.co.za

Dr

“Snuffy” Myers : " As a physician, I am painfully aware that most of

the decisions we make with regard to prostate cancer are made with inadequate

data "

From: ProstateCancerSupport [mailto:ProstateCancerSupport ] On Behalf Of wonderwhat72

Sent: Wednesday, 18 June 2008

10:13 PM

To: ProstateCancerSupport

Subject:

New to the group

Hello everyone. I am Steve and have recently been

diagnosed with an

early stage cancer of the prostate. I am wanting to make a wise

decision on treatment. I talked with my urologist last week and will

be at the radiation therapy clinic Friday. After 7 major surgeries, I

did not want to go through another. I have PC on both sides of my

family - dad and 2 of his brothers and 2 of mom's brothers. I am

emphatic about getting the annual check-up. This year, the PSA went

from 1.3 in March '07 to 2.5 in Feb '08 and 3.8 in March (was passing

blood in the urine. Typical-right?). The Dr. stated that it was very

early in development and highly treatable. At 56, this is not hard to

accept. I have helped others deal with problems as I am a pastor and

have dealt with cancer, heart attack families, deaths of accident

victims, Alzheimers, and many other issues.

What I would like would be honest opinions on radiation, cryotherapy,

and surgery (cancer is highly localized). I am reading on-line

articles, researching through the library, and reading all brochures I

can get my hands on.

Thank you for your honesty.

Steve

[Guest guest]

G’day New Steve. Steve J posts

excellent advice for newly diagnosed men. What he suggests sounds daunting and

many men don’t follow his advice, but nevertheless, it is the way to go.

I saw from one of your posts that you were

interested to know what other men have done and although this should not be

your sole guide as to what you should do, it can help in whittling down the

multiplicity of choices. Others have found it helpful to read of these

experiences and you can find more than 450 stories indexed on my site at http://www.yananow.net/Experiences.html

The site also guides you through

definitions, suggests ways to improve survival, has links to information about

the various options nad has a resources page with links to useful information. Log

on at YANA – You Are Not Alone Now at http://www.yananow.net

Oh! And keep asking questions.

All the best

Terry Herbert

I have no medical

qualifications but I was diagnosed in ‘96: and have learned a bit since

then.

My sites are at www.yananow.net and www.prostatecancerwatchfulwaiting.co.za

Dr

“Snuffy” Myers : " As a physician, I am painfully aware that most of

the decisions we make with regard to prostate cancer are made with inadequate

data "

From: ProstateCancerSupport [mailto:ProstateCancerSupport ] On Behalf Of wonderwhat72

Sent: Wednesday, 18 June 2008

10:13 PM

To: ProstateCancerSupport

Subject:

New to the group

Hello everyone. I am Steve and have recently been

diagnosed with an

early stage cancer of the prostate. I am wanting to make a wise

decision on treatment. I talked with my urologist last week and will

be at the radiation therapy clinic Friday. After 7 major surgeries, I

did not want to go through another. I have PC on both sides of my

family - dad and 2 of his brothers and 2 of mom's brothers. I am

emphatic about getting the annual check-up. This year, the PSA went

from 1.3 in March '07 to 2.5 in Feb '08 and 3.8 in March (was passing

blood in the urine. Typical-right?). The Dr. stated that it was very

early in development and highly treatable. At 56, this is not hard to

accept. I have helped others deal with problems as I am a pastor and

have dealt with cancer, heart attack families, deaths of accident

victims, Alzheimers, and many other issues.

What I would like would be honest opinions on radiation, cryotherapy,

and surgery (cancer is highly localized). I am reading on-line

articles, researching through the library, and reading all brochures I

can get my hands on.

Thank you for your honesty.

Steve

[Guest guest]

Hello Steve,

You have already been given the usual wide range of opinions and comments and I'm sure you will get more. As you have indicated, it appears that your cancer is in the early stages. I'll join some others and urge you to take a more critical look at your staging before jumping to a decision on your treatment.

You need to pin down your Gleason score. There is a significant difference between a Gleason sum of 5 and 6. In this era most would call a Gleason 5, especially if 2+3, 'pre-cancer'. A Gleason 6 (3+3) and only 1 core positive, if less than 50% of the single core involved with cancer, and a PSA less than 10 fits what is called the Epstein criterion for low risk cancer. Pragmatically, what this means is that virtually all the treatment options have about an 80 to 90% chance of no remission in 10 years (assuming they are performed by a very experienced practitioner). Also, despite what you apparently have been told, if the apparent PSA increase can be checked (see below), current research suggests that doing proactive Active Surveillance (not the same as 'doing nothing'....) with your staging will present little risk of the cancer getting out of control in the next 3 to 7 years.

From what you present, the rapid increase in PSA in a relatively short time needs some followup. You should discuss with your urologist going on antibiotics (Cipro or Leviquin) for 2 to 3 weeks to eliminate prostatitis as a potential cause of the PSA rise.

While waiting for those results, get the Gleason score reviewed by one of the expert labs that have been suggested to you. Also, please do some reading on our disease, its staging, and treatment options. A good reference is A Primer on Prostate Cancer: The Empowered Patient's Guide (Paperback) by Strum and Pogliano, which is available at most bookstores and Amazon.com. No matter what your final decision is regarding treatment, you will be dealing with the results for the rest of your life, so make the investment now in a good reference.

So, unless the apparent PSA velocity is confirmed, from what you have presented thus far, your decision on how to proceed could reasonably focus on general health concerns and quality of life expectations for the next 5 to 10 years rather than fear of the cancer killing you if you make a quick 'wrong' decision. The vast majority of our prostate cancers in early stages are slow growing, so you have time to get more information on what you are dealing with and to better evaluate your options.

The Best to You and Yours!

Jon in Nevada

PS: Passing blood in the urine is not "typical" of early prostate cancer-- it is much more typical of severe urinary, bladder, or prostate infection or other non-carcinogenic insult.

>> Hello everyone. I am Steve and have recently been diagnosed with an> early stage cancer of the prostate. I am wanting to make a wise> decision on treatment. I talked with my urologist last week and will> be at the radiation therapy clinic Friday. After 7 major surgeries, I> did not want to go through another. I have PC on both sides of my> family - dad and 2 of his brothers and 2 of mom's brothers. I am> emphatic about getting the annual check-up. This year, the PSA went> from 1.3 in March '07 to 2.5 in Feb '08 and 3.8 in March (was passing> blood in the urine. Typical-right?). The Dr. stated that it was very> early in development and highly treatable. At 56, this is not hard to> accept. I have helped others deal with problems as I am a pastor and> have dealt with cancer, heart attack families, deaths of accident> victims, Alzheimers, and many other issues.> > What I would like would be honest opinions on radiation, cryotherapy,> and surgery (cancer is highly localized). I am reading on-line> articles, researching through the library, and reading all brochures I> can get my hands on.> > Thank you for your honesty.> Steve>

[Guest guest]

Hello Steve,

You have already been given the usual wide range of opinions and comments and I'm sure you will get more. As you have indicated, it appears that your cancer is in the early stages. I'll join some others and urge you to take a more critical look at your staging before jumping to a decision on your treatment.

You need to pin down your Gleason score. There is a significant difference between a Gleason sum of 5 and 6. In this era most would call a Gleason 5, especially if 2+3, 'pre-cancer'. A Gleason 6 (3+3) and only 1 core positive, if less than 50% of the single core involved with cancer, and a PSA less than 10 fits what is called the Epstein criterion for low risk cancer. Pragmatically, what this means is that virtually all the treatment options have about an 80 to 90% chance of no remission in 10 years (assuming they are performed by a very experienced practitioner). Also, despite what you apparently have been told, if the apparent PSA increase can be checked (see below), current research suggests that doing proactive Active Surveillance (not the same as 'doing nothing'....) with your staging will present little risk of the cancer getting out of control in the next 3 to 7 years.

From what you present, the rapid increase in PSA in a relatively short time needs some followup. You should discuss with your urologist going on antibiotics (Cipro or Leviquin) for 2 to 3 weeks to eliminate prostatitis as a potential cause of the PSA rise.

While waiting for those results, get the Gleason score reviewed by one of the expert labs that have been suggested to you. Also, please do some reading on our disease, its staging, and treatment options. A good reference is A Primer on Prostate Cancer: The Empowered Patient's Guide (Paperback) by Strum and Pogliano, which is available at most bookstores and Amazon.com. No matter what your final decision is regarding treatment, you will be dealing with the results for the rest of your life, so make the investment now in a good reference.

So, unless the apparent PSA velocity is confirmed, from what you have presented thus far, your decision on how to proceed could reasonably focus on general health concerns and quality of life expectations for the next 5 to 10 years rather than fear of the cancer killing you if you make a quick 'wrong' decision. The vast majority of our prostate cancers in early stages are slow growing, so you have time to get more information on what you are dealing with and to better evaluate your options.

The Best to You and Yours!

Jon in Nevada

PS: Passing blood in the urine is not "typical" of early prostate cancer-- it is much more typical of severe urinary, bladder, or prostate infection or other non-carcinogenic insult.

>> Hello everyone. I am Steve and have recently been diagnosed with an> early stage cancer of the prostate. I am wanting to make a wise> decision on treatment. I talked with my urologist last week and will> be at the radiation therapy clinic Friday. After 7 major surgeries, I> did not want to go through another. I have PC on both sides of my> family - dad and 2 of his brothers and 2 of mom's brothers. I am> emphatic about getting the annual check-up. This year, the PSA went> from 1.3 in March '07 to 2.5 in Feb '08 and 3.8 in March (was passing> blood in the urine. Typical-right?). The Dr. stated that it was very> early in development and highly treatable. At 56, this is not hard to> accept. I have helped others deal with problems as I am a pastor and> have dealt with cancer, heart attack families, deaths of accident> victims, Alzheimers, and many other issues.> > What I would like would be honest opinions on radiation, cryotherapy,> and surgery (cancer is highly localized). I am reading on-line> articles, researching through the library, and reading all brochures I> can get my hands on.> > Thank you for your honesty.> Steve>

[Guest guest]

Jon in Nevada,Thanks. I agree whole heartedly on looking into all options before treatment. I am a bit leery and weary at times because I have had so much surgery on the back and knees. I never have handled the anesthesia very well (another family curse, I suppose). I just got off the phone with the CARTI clinic and they assured me that there are a number of things they look at. I accept nothing at face value. My inquiring mind wants to be informed as well as possible. I learned that the day you do not learn something that you have not lived and you may as well pull the dirt in over you. BTW, the Gleason is 6 (3+3) and stage T1b(A2). I was on Levaquin for almost a month. My older brother has

prostatitis, so we compared notes. I guess in some ways it is similar to diabetes and hypoglycemia. Many of the same symptoms for a different disease. I will be very cautious as I proceed. They are planning to do another PSA tomorrow and see what it (the PSA) has done.Have a great day! Steve S in Arkansas_,_._,___

[Guest guest]

Jon in Nevada,Thanks. I agree whole heartedly on looking into all options before treatment. I am a bit leery and weary at times because I have had so much surgery on the back and knees. I never have handled the anesthesia very well (another family curse, I suppose). I just got off the phone with the CARTI clinic and they assured me that there are a number of things they look at. I accept nothing at face value. My inquiring mind wants to be informed as well as possible. I learned that the day you do not learn something that you have not lived and you may as well pull the dirt in over you. BTW, the Gleason is 6 (3+3) and stage T1b(A2). I was on Levaquin for almost a month. My older brother has

prostatitis, so we compared notes. I guess in some ways it is similar to diabetes and hypoglycemia. Many of the same symptoms for a different disease. I will be very cautious as I proceed. They are planning to do another PSA tomorrow and see what it (the PSA) has done.Have a great day! Steve S in Arkansas_,_._,___

[Guest guest]

Terry,I read about a dozen of the post on the site. Excellent info. I am looking forward to reading more as I get close to my decision on my treatment. Keep up the good work. I always tell people that I deal with at hospitals and nursing homes (a vital part of my ministry) to get second and third opinions and make well educated decisions. Other than getting married, health decisions are among the most important secular decisions to make. I appreciate everyone on this forum who have given good advice. I will weigh ALL of the options. Have asked that my urologist send all info including CT scans, biopsy results, TRUS info, PSA, and all to the radiation therapy clinic where we will discuss everything and look

at it all together. I am supposed to get my own copy of all of this as well. We always called it covering all your bases or CYA.Steve S in Arkansas RE: New to the groupG’day New

Steve. Steve J posts

excellent advice for newly diagnosed men. What he suggests sounds daunting and

many men don’t follow his advice, but nevertheless, it is the way to go. I saw from one of your posts that you were

interested to know what other men have done and although this should not be

your sole guide as to what you should do, it can help in whittling down the

multiplicity of choices. Others have found it helpful to read of these

experiences and you can find more than 450 stories indexed on my site at http://www.yananow. net/Experiences. html The site also guides you through

definitions, suggests ways to improve survival, has links to information about

the various options nad has a resources page with links to useful information. Log

on at YANA – You Are Not Alone Now at http://www.yananow. net Oh! And keep asking questions. All the

best Terry Herbert I have no medical

qualifications but I was diagnosed in ‘96: and have learned a bit since

then. My sites are at www.yananow. net and www.prostatecancerw atchfulwaiting. co.za Dr

“Snuffy” Myers: "As a physician, I am painfully aware that most of

the decisions we make with regard to prostate cancer are made with inadequate

data"

[Guest guest]

Dear Steve S.

I do not post on this forum too often any more, but your situation compels me to write.

You are correct to take the time to study all options, and it is my opinion that you are also correct to rule out surgery. The advice given by Terry Herbert, Steve J, Jon, and Laurel is the best that you will find here.

For keeping the records organized, I found that a three ring binder organized with dividers appropriately named, and keeping the records in date order worked quite well.

Take your time, and study all treatments, especially the potential side effects of each. When you do this you will find that proton beam therapy ranks high on the list of treatments to consider, but you must make up your own mind which treatment best fits your individual circumstance.

Should you want to learn more about proton therapy, please join our group at

http://health.groups.yahoo.com/group/protoninfo/

Best,

Fuller

Subject: Re: New to the groupTo: ProstateCancerSupport Date: Thursday, June 19, 2008, 8:59 AM

Terry,I read about a dozen of the post on the site. Excellent info. I am looking forward to reading more as I get close to my decision on my treatment. Keep up the good work. I always tell people that I deal with at hospitals and nursing homes (a vital part of my ministry) to get second and third opinions and make well educated decisions. Other than getting married, health decisions are among the most important secular decisions to make. I appreciate everyone on this forum who have given good advice. I will weigh ALL of the options. Have asked that my urologist send all info including CT scans, biopsy results, TRUS info, PSA, and all to the radiation therapy clinic where we will discuss everything and look at it all together. I am supposed to get my own copy of all of this as well. We always called it covering all your bases or CYA.Steve S in

Arkansas

RE: [ProstateCancerSupp ort] New to the group

G’day New Steve. Steve J posts excellent advice for newly diagnosed men. What he suggests sounds daunting and many men don’t follow his advice, but nevertheless, it is the way to go.

I saw from one of your posts that you were interested to know what other men have done and although this should not be your sole guide as to what you should do, it can help in whittling down the multiplicity of choices. Others have found it helpful to read of these experiences and you can find more than 450 stories indexed on my site at http://www.yananow. net/Experiences. html

The site also guides you through definitions, suggests ways to improve survival, has links to information about the various options nad has a resources page with links to useful information. Log on at YANA – You Are Not Alone Now at http://www.yananow. net

Oh! And keep asking questions.

All the best

Terry Herbert

I have no medical qualifications but I was diagnosed in ‘96: and have learned a bit since then.

My sites are at www.yananow. net and www.prostatecancerw atchfulwaiting. co.za

Dr “Snuffy” Myers: "As a physician, I am painfully aware that most of the decisions we make with regard to prostate cancer are made with inadequate data"

[Guest guest]

Fuller,Thank you for the info. I will be looking at the PBRT further and possibly join the group. I will be looking forward to chatting with others tomorrow when I go to Little Rock to the CARTI center. Just want the info to make the best decision for me. I do understand that everyone's needs are different and everybody is different. In raising kids, you treat them all as individuals and not a collective. What works on one will not work on another. Steve S in Arkansas RE: [ProstateCancerSupp ort] New to the group

G’day New Steve. Steve J posts excellent advice for newly diagnosed men. What he suggests sounds daunting and many men don’t follow his advice, but nevertheless, it is the way to go.

I saw from one of your posts that you were interested to know what other men have done and although this should not be your sole guide as to what you should do, it can help in whittling down the multiplicity of choices. Others have found it helpful to read of these experiences and you can find more than 450 stories indexed on my site at http://www.yananow. net/Experiences. html

The site also guides you through definitions, suggests ways to improve survival, has links to information about the various options nad has a resources page with links to useful information. Log on at YANA – You Are Not Alone Now at http://www.yananow. net

Oh! And keep asking questions.

All the best

Terry Herbert

I have no medical qualifications but I was diagnosed in ‘96: and have learned a bit since then.

My sites are at www.yananow. net and www.prostatecancerw atchfulwaiting. co.za

Dr “Snuffy” Myers: "As a physician, I am painfully aware that most of the decisions we make with regard to prostate cancer are made with inadequate data"

[Guest guest]

Hi my name is Santiago, I'm 24years old, I have MS and was diagnosed in

2007.  I was already hospitalized about 6 times due to MS flairs.  I've tried

Practically all crabs meds except Tasabri in which my mom convinced me to try

LDN.  She referred me to this group to try to learn from this group.  I would

like to know through peoples experience what should I expect when I start taking

LDN, what reactions did anybody here have so I could be familiar with, so when I

start taking it I could be familiar.  I'm actually on my way to see a Dr. in NYC

since my regular Dr. says that I was outta my mind if I wouldn't take Tasabri.

I have alot of lesions that has turned into plaque and am surprised that I'm

still walking today, and thank God everyday that I could.  So if anybody has any

encourgagement, and input on taking LDN and what it has done for them, by all

means please..... My email is

 

Santaigo606@...

Thanks.