Guest guest Posted March 14, 2002 Report Share Posted March 14, 2002 Hey, sorry for the diagnosis. Contact my gf at bettyex@... for some questions on that stuff if you like. We are trying everything...in fact the kitchen sink should be here any day. :-) I got my results > I got my results from my biopsy. It showed > inflammation. She says it is Vulvar Vestibulitis. > For treatment I was given apo-amitriptyline. Is there > anyone who has tried this? She said it should start > to work in about a month, if it is going to help at > all. I started having baths in sea salt, which seems > to help temporarily. I read that a low oxylate diet > helps the burning, has anyone had any experience with > this? > > have a great day > Crystal > > > ______________________________________________________________________ > Find, Connect, Date! http://personals.yahoo.ca > > > *****END OF MESSAGE***** > ------------------------------------------------- > To post message: VulvarDisorders > To Subscribe: VulvarDisorders-subscribe > Unsubscribe: VulvarDisorders-unsubscribe > List owner: VulvarDisorders-owner > > ***** Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 14, 2002 Report Share Posted March 14, 2002 Hey, sorry for the diagnosis. Contact my gf at bettyex@... for some questions on that stuff if you like. We are trying everything...in fact the kitchen sink should be here any day. :-) I got my results > I got my results from my biopsy. It showed > inflammation. She says it is Vulvar Vestibulitis. > For treatment I was given apo-amitriptyline. Is there > anyone who has tried this? She said it should start > to work in about a month, if it is going to help at > all. I started having baths in sea salt, which seems > to help temporarily. I read that a low oxylate diet > helps the burning, has anyone had any experience with > this? > > have a great day > Crystal > > > ______________________________________________________________________ > Find, Connect, Date! http://personals.yahoo.ca > > > *****END OF MESSAGE***** > ------------------------------------------------- > To post message: VulvarDisorders > To Subscribe: VulvarDisorders-subscribe > Unsubscribe: VulvarDisorders-unsubscribe > List owner: VulvarDisorders-owner > > ***** Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 14, 2002 Report Share Posted March 14, 2002 Crystal, I tried elavil (amit) and it didn't work. They will give elavil to anyone with any type of pain that the doctor can't fix. I was also on it 10 yrs ago for neuralgia and it didn't work either. I also tried low-ox and it didn't work and most of my favorite foods were cut out. But, anything is worth a try with vvs! I am sure these have helped others, because everybody's different and we all have different causes of vvs. Ruth > For treatment I was given apo-amitriptyline. I read that a low oxylate diet > helps the burning, has anyone had any experience with > this? > > have a great day > Crystal > > > ______________________________________________________________________ > Find, Connect, Date! http://personals.yahoo.ca Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 14, 2002 Report Share Posted March 14, 2002 Amytriptylene did not help me at all. I still burned. I gained 12 lbs and felt awful. I was lethargic, needed naps everyday and could not get out of bed in the morning. I felt it made me like a zombie. Then when I quit I had withdrawal symptoms. I agree with Ruth, that the docs give this drug when they dont konw what else to do. I have gotten better by estring, grapeseed extract and mostly avoiding foods that I am allergic too..dairy, corn, and I avoid wheat. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 15, 2002 Report Share Posted March 15, 2002 I don't doubt that in some instantances it helps to hide the pain, but I think it should only be used in conjunction with other treatments. I have not had vv all that long in comparison to alot of people(less than a year) and found a specialist right away, I am using estrace(estrogen cream), vagifem(estrogen suppositories) and after 10 weeks, was considerably better, then she added a steroid, which unfortunately I had a reaction too, but will be trying a much lower dose steroid(that is bio molecular, as is the estrace, which I believe makes it work the same way the steroids in your body do), and according to the doc, that should be all I need and I will be fine. I truly believe it too, because after just 10 weeks with the estrace, I noticed a considerable improvement. I will keep everybody updated. I would try finding a specialist now, and don't waste anytime, it usually is hard to find and hard to get an appt. Where do you live? blueeberri@... wrote: Amytriptylene did not help me at all. I still burned. I gained 12 lbs and felt awful. I was lethargic, needed naps everyday and could not get out of bed in the morning. I felt it made me like a zombie. Then when I quit I had withdrawal symptoms.I agree with Ruth, that the docs give this drug when they dont konw what else to do.I have gotten better by estring, grapeseed extract and mostly avoiding foods that I am allergic too..dairy, corn, and I avoid wheat. *****END OF MESSAGE*****-------------------------------------------------To post message: VulvarDisorders To Subscribe: VulvarDisorders-subscribe Unsubscribe: VulvarDisorders-unsubscribe List owner: VulvarDisorders-owner ***** Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 15, 2002 Report Share Posted March 15, 2002 I just want to make clear that amitriptyline doesn't simply " hide the pain " like a painkiller. Amitriptyline works on getting the affected nerve to " calm down " by mechanisms that aren't entirely understood. It acts to *interrupt* the pain signals sent along the spinal cord. Unlike pain killers, amitriptyline and other tri-cyclics *can* sometimes break the pain cycle permanently, so that a person who gets relief from them can slowly reduce the dosage and get off the medication completely, without a return of the neuropathic pain. Note that I said *can*. It doesn't always work so nicely, as many women on this list will attest. But that's the theory. In my case, my doctor wants me to have several months of feeling good before I attempt to get off amitriptyline. I did not begin (at my request) taking amitriptyline until I had gotten some good results with physical therapy and Estrace, because I wanted to see how far I could get my body to go without oral meds. I eventually had a stubborn spot of dysesthetic burning that resisted all other treatment, and that's when I turned to the amitriptyline, and it worked. Of course, I now wonder if I should have just started the amitriptyline in the first place, along with the Estrace and PT. But each of us is different and have different symptoms, and I don't know if we can always say amitriptyline necessarily always has to be taken in conjunction with other treatments. For more on the use of tri-cyclics in neuropathic pain, here's one website: http://www.themediweb.net/pharmacy/Antidepressants.htm Suzy [another list member wrote]: > > I don't doubt that in some instantances it helps to > hide the pain, but I think it should only be used in > conjunction with other treatments. __________________________________________________ Quote Link to comment Share on other sites More sharing options...
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