Re: a and the diet

[Guest guest]

,

Welcome to our list!! Glad to have you here. We recently tried the B6

therapy with my son, . We have seem some cognitive improvements.

From what I understand, the only risk is if you go WAY too high. I had a

neuro set 's dose & I'm gonna talk to his pediatrician this week

about increasing it (we are on 100mg per day, but many on this list are

on much higher doses). is 6 years old & is cognitively around 3 to

4 years, and speech closer to 2-3 yr. Since beginning the B6, we feel

understands more & his vocabulary has increased. It's not a NIGHT &

DAY change, but a definite progression.

Good luck in your research. BTW, in order to work effectively, you must

give magnesium with it.

Kathy in Tennessee

Mom to - 6 - Keto kid since 02/00, Med free, seizures 95% reduced

Mom to 'lil sis, a - 3

" Even to your old age and gray hairs I am He, I am He who will sustain

you. I have made you and I will carry you; I will sustain you and I will

rescue you. "

Isaiah 46:4

On Fri, 20 Jul 2001 14:35:40 -0400 " Onaindia "

writes:

> Hi everyone,

>

> I have a daughter named a that just turned 4 years old. She

> started having seizures at 3 1/2 months old. She has been on the

> Ketogenic diet for 2yrs. 11 mo. She was the smallest baby that

> Shands Hospital in Gainesville, FL, had put on the diet. She was

> 12lbs. when the diet was initiated and now is almost 28 lbs. Her

> seizures have improved greatly. She went from having them every day

> ( sometimes 20-30 tonic clonic seizures per day) to cluster

> breakthroughs every 2-3 weeks. We use Diastat to stop them and it

> seems to work well. When she started the diet she was on 3 seizure

> drugs at once. ( We had tried 10 different drugs). We have been

> able to wean her to only 1 drug, and we are hoping to get rid of

> that one also. My husband and I truly believe the diet helped save

> her life. a is a very involved child with a lot of medical

> problems. She is tube fed and receives her diet liquid form through

> her tube. We are currently trying to find something that might just

> help with her overall brain development. We want to try to help her

> be more attentive and communicative. Has anyone tried B6? Has it

> helped with this? I would love anyone's input on this. Please let

> me know if you have any ideas.

>

> Thank you,

>

> Onaindia

>

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[Guest guest]

-- I just started B6 last week. My daughter is 6 years old and weighs 38 pounds. I started at 50 mg. and will up to 100 mg. today. I posted last week that we were on a deep end. Since starting the B6, she has had only 1 seizure in the past week (as opposed to 1/day likely from withdrawl). May be a coincidence. . . I also raised her ratio and scaled back on some of the other changes I had made. We'll see if the increase of 50 mg. shows any more results. This week she has had very good days -- more relaxed and more interested in learning. . . lots of giggling, too! I had started her on a multi vitamin -- hypoallergenic (non-carb) Nu-Thera a few weeks ago. It contained P5P which is a more potent form of B6. It seemed to make her very hyper, so I stopped it. There's a yahoo group on B6, if you're interested. Their list serve isn't very active, so it's not much extra e-mail. You could also search their archives. There have been a couple amazing newspaper articles come out of this group in the past couple weeks. Good luck!--DeEtte

***

Has anyone tried B6? Has it helped with this? I would love anyone's input on this. Please let me know if you have any ideas.