Re: 1 year update of my child - long

[Guest guest]

Kym,

Thanks for your detailed, yet concise update of your experiences. I

was very interested in your experience with testing both urine and

stool metals at the same time on phase 2. I have always wondered why

the protocol calls for stool testing only on phase 2, if DMSA

excretes via the kidney, and ALA via the bowel. I assume this is

just for reasons of cost and efficiency, as I would expect there

would be output in both places. Interesting though that in your case

it was higher in the urine. Has anyone else done this experiment,

or have any comments?

>1/13/02 - Stage 2, cycle 21st

>

> Urine element (Day 3):

> Mercury 4.3 ( yellow zone / ref. <3)- I finally got a little

>smile

> Arsenic 60 ( green zone / ref. <100)

> Aluminum - <dl

>

> Fecal elements ( Day 3)

> Mercury 0.022 (green) not much increase compare to 3m ago.

> Arsenic 0.57 (yellow) slightly increase compare to 3m ago.

[Guest guest]

Dear friends,

Sorry for the cross posting. I just love my friends from both groups.

My son has been on Chelation for about a year now and I would like to do an

up-date on him. I will first give a background, than a timeline of the

chelation, follow by the progress I feel about him.

Besides from sharing the progress, I would like to get some input if anyone

is so kind to share your insight with me.

My son in now 5.5 years old. He is attending a reg. kindergarten with

part-time shadowing by a therapist. He has a great teacher who is very

willing to work with him. He is verbal and has some good academic skills.

However, he is still very into his own world lots of time and is still very

hard for him to interact verbally effectively. We started our food

restriction and chelation at the same time through a local immunologist who

is nice enough to give me everything I requested. He has some knowledge of

Dr. Holmes' protocols but I don't think he studies chelation in depth.

Timeline:

1/23/2001 - Hair elements/ Great Smokies

Mercury - 3.23 / Aluminum - 13 / Arsenic - 0.13

2/15/2001 - IgG - 36 foods

High with egg white, milk, egg yolk plus a slight mold issue

2/23/2001 - Started stage 1 with DMSA 30mg ( 1mg/kg each dose) every 4 hours

cycles.

Started diet restrictions and Creon 10.

5/28/2001 - Stage 1, cycle 10th

Urine elements (random) from DDI:

Almost everything within normal range.

Only some elevations like nickel and Arsenic (normal or close to

normal)

No aluminum seen

Mercury - 1 (ref. 1-3)

6/1/2001 - Last round of stage 1. Total of 11 cycles over 4 months time.

6/15/2001 - Started stage 2 with DMSA 30mg and ALA 15 mg every 3 hours.

7/29/2001 - 5 months into chelation.

Hair elements from DDI: level of toxic metals has dropped

greatly.

Mercury 1.0 (yellow zone /ref. < 0.4)

Arsenic 0.12 (yellow zone / ref. < 0.08)

Aluminum 5.5 (green zone / ref. < 8)

10/15/2001 - Stage 2 / cycle 13th

Fecal metals (Day 4):

Mercury 0.02 (green / ref. < 0.05)

Arsenic 0.42 (slightly into the yellow zone / ref. < 0.3)

10/31/01 - Repeated IgG - the same 36 foods

All negatives except for 2+ for egg white.

The doctor said the egg white was probably from the storage of

a few months ago. He said we could just give Creon 10 when having a bigger

meal.

12/31/2001 - 6 months into stage 2

We did the hair tests from both DDI and Great Smokies just to

compare.

Hair elements / DDI

Mercury 0.67 (green zone)

Arsenic 0.071 (green zone)

Aluminum 2.9 ( green zone)

Hair elements / Great Smokies

Mercury 0.58

Arsenic 0.066

Aluminum 2.4

I had been wondering if the pre-chelation hair elements with mercury at 3.25

was done accurately by Great Smokies. That's why I sent to both labs on

12/31/2001. It turned out that both results matched quite well. I was

hoping to see more mercury in the subsequent hair tests during chelation,

but it doesn't happen this way for my son. You know, people have suggested

hair tests every 4-6 months during chelation if stool is hard to collect,

right?

Since I did not get much mercury from both urine elements (5/28/01) and

fecal elements (10/15/01) I ran both tests in Jan/02. My son's stool

transition time is < 24 hours and I didn't catch any thing significant back

in October when we did it on Day 4. That's why I did it on Day 3 the second

time.

1/13/02 - Stage 2, cycle 21st

Urine element (Day 3):

Mercury 4.3 ( yellow zone / ref. <3)- I finally got a little

smile

Arsenic 60 ( green zone / ref. <100)

Aluminum - <dl

Fecal elements ( Day 3)

Mercury 0.022 (green) not much increase compare to 3m ago.

Arsenic 0.57 (yellow) slightly increase compare to 3m ago.

There's not much different in both fecal elements we have run for the

mercury level so far. However, I got some mercury from urine during stage 2.

Arsenic is the only one that was excreting a bit more in the 2nd fecal test.

Does it mean he doesn't excrete mercury through his bowel? If he had

diminished bile flow, would it interferes with ALA bring mercury down the

bowel? Or, does it mean the arsenic has to come out first before mercury? I

know about pressure treated wood and arsenic. Does wooden furniture or

wooden board from places like Home Depot contains arsenic too?

My feeling about my son's progress:

I see him having constant improvement but I don't feel he is making

remarkable process. Of course, like many of our kids, there have been really

bad days and really amazing days for us. The process in stage 2 has been

just really slow comparing to stage 1 while we were learning to bring his

IgG down.

We will be seeing Dr. Aguilar on 3/1, same date as Joanna Pau's family. Our

first appt. with Dr. Holmes will be end of July.

Recently, I keep thinking about if his slow in progress is related to gut

bugs. I have the kits with me for gut bugs but just feel kind of scare to

find out. I don't know how accurate they are and they do cost a lot of money

to run. I am thinking about running it 2 months before Dr. Holmes

appointment. At the same time I feel that it may be better for my son if I

choose to find out sooner. He does make better verbal exchanges when he

wants to talk. At the same time it's even harder than before to get his

attention when he is enjoying so much of his own things/interests. His

sleeping and bowel habits have been of no change. Stimming is up and down.

I also did a ATEC. As I said, he is doing something like he never did

before. However, I scored him 25 on 5/18/01 but 31 on 1/14/02 ( you know,

the lower the number the better). I wonder if I had scored him too loosely

back then on 5/18/01 and too harsh on 1/14/02.

Any feedback is greatly appreciated.

Kym

[Guest guest]

Kym,

I have also been chelating my 5 yr old for a year. Same type of

feeling. Constant improvement but no miracles. My sons langauge is

very limited due to apraxia. His chelation always bring motor

planning improvement so I believe he is mercury blocked there. Gut

bugs are also an issue here. I recently stopped juice, just water

and his stools look great and he is more focused.

As far as desire to interact, I have seen the most improvement in

that department when dealing w/ viruses. My son is on acyclovir 4xs

a day. This made his start gestural communication again. I recently

started monolaurin and the desire to be around other children

improved even more. He now cries when people leave the house. The

monolaurin also kills yeast. He had some die-off in the beginning.

I hope this information helps. I waited a while before I tried each

drug and I wish I had not.

Regards,

nne

> Dear friends,

>

> Sorry for the cross posting. I just love my friends from both

groups.

>

> My son has been on Chelation for about a year now and I would like

to do an

> up-date on him. I will first give a background, than a timeline of

the

> chelation, follow by the progress I feel about him.

>

> Besides from sharing the progress, I would like to get some input

if anyone

> is so kind to share your insight with me.

>

> My son in now 5.5 years old. He is attending a reg. kindergarten

with

> part-time shadowing by a therapist. He has a great teacher who is

very

> willing to work with him. He is verbal and has some good academic

skills.

> However, he is still very into his own world lots of time and is

still very

> hard for him to interact verbally effectively. We started our food

> restriction and chelation at the same time through a local

immunologist who

> is nice enough to give me everything I requested. He has some

knowledge of

> Dr. Holmes' protocols but I don't think he studies chelation in

depth.

>

> Timeline:

> 1/23/2001 - Hair elements/ Great Smokies

> Mercury - 3.23 / Aluminum - 13 / Arsenic - 0.13

>

> 2/15/2001 - IgG - 36 foods

> High with egg white, milk, egg yolk plus a slight mold

issue

>

> 2/23/2001 - Started stage 1 with DMSA 30mg ( 1mg/kg each dose)

every 4 hours

> cycles.

> Started diet restrictions and Creon 10.

>

> 5/28/2001 - Stage 1, cycle 10th

> Urine elements (random) from DDI:

> Almost everything within normal range.

> Only some elevations like nickel and Arsenic (normal or

close to

> normal)

> No aluminum seen

> Mercury - 1 (ref. 1-3)

>

> 6/1/2001 - Last round of stage 1. Total of 11 cycles over 4 months

time.

>

>

> 6/15/2001 - Started stage 2 with DMSA 30mg and ALA 15 mg every 3

hours.

>

> 7/29/2001 - 5 months into chelation.

> Hair elements from DDI: level of toxic metals has

dropped

> greatly.

> Mercury 1.0 (yellow zone /ref. < 0.4)

> Arsenic 0.12 (yellow zone / ref. < 0.08)

> Aluminum 5.5 (green zone / ref. < 8)

>

> 10/15/2001 - Stage 2 / cycle 13th

> Fecal metals (Day 4):

> Mercury 0.02 (green / ref. < 0.05)

> Arsenic 0.42 (slightly into the yellow zone / ref. <

0.3)

>

> 10/31/01 - Repeated IgG - the same 36 foods

> All negatives except for 2+ for egg white.

> The doctor said the egg white was probably from the

storage of

> a few months ago. He said we could just give Creon 10 when having a

bigger

> meal.

>

> 12/31/2001 - 6 months into stage 2

> We did the hair tests from both DDI and Great Smokies

just to

> compare.

>

> Hair elements / DDI

> Mercury 0.67 (green zone)

> Arsenic 0.071 (green zone)

> Aluminum 2.9 ( green zone)

>

> Hair elements / Great Smokies

> Mercury 0.58

> Arsenic 0.066

> Aluminum 2.4

>

>

> I had been wondering if the pre-chelation hair elements with

mercury at 3.25

> was done accurately by Great Smokies. That's why I sent to both

labs on

> 12/31/2001. It turned out that both results matched quite well. I

was

> hoping to see more mercury in the subsequent hair tests during

chelation,

> but it doesn't happen this way for my son. You know, people have

suggested

> hair tests every 4-6 months during chelation if stool is hard to

collect,

> right?

>

> Since I did not get much mercury from both urine elements (5/28/01)

and

> fecal elements (10/15/01) I ran both tests in Jan/02. My son's

stool

> transition time is < 24 hours and I didn't catch any thing

significant back

> in October when we did it on Day 4. That's why I did it on Day 3

the second

> time.

>

> 1/13/02 - Stage 2, cycle 21st

>

> Urine element (Day 3):

> Mercury 4.3 ( yellow zone / ref. <3)- I finally got a

little

> smile

> Arsenic 60 ( green zone / ref. <100)

> Aluminum - <dl

>

> Fecal elements ( Day 3)

> Mercury 0.022 (green) not much increase compare to 3m

ago.

> Arsenic 0.57 (yellow) slightly increase compare to 3m

ago.

>

> There's not much different in both fecal elements we have run for

the

> mercury level so far. However, I got some mercury from urine during

stage 2.

> Arsenic is the only one that was excreting a bit more in the 2nd

fecal test.

> Does it mean he doesn't excrete mercury through his bowel? If he

had

> diminished bile flow, would it interferes with ALA bring mercury

down the

> bowel? Or, does it mean the arsenic has to come out first before

mercury? I

> know about pressure treated wood and arsenic. Does wooden furniture

or

> wooden board from places like Home Depot contains arsenic too?

>

> My feeling about my son's progress:

>

> I see him having constant improvement but I don't feel he is making

> remarkable process. Of course, like many of our kids, there have

been really

> bad days and really amazing days for us. The process in stage 2 has

been

> just really slow comparing to stage 1 while we were learning to

bring his

> IgG down.

>

> We will be seeing Dr. Aguilar on 3/1, same date as Joanna Pau's

family. Our

> first appt. with Dr. Holmes will be end of July.

>

> Recently, I keep thinking about if his slow in progress is related

to gut

> bugs. I have the kits with me for gut bugs but just feel kind of

scare to

> find out. I don't know how accurate they are and they do cost a lot

of money

> to run. I am thinking about running it 2 months before Dr. Holmes

> appointment. At the same time I feel that it may be better for my

son if I

> choose to find out sooner. He does make better verbal exchanges

when he

> wants to talk. At the same time it's even harder than before to get

his

> attention when he is enjoying so much of his own things/interests.

His

> sleeping and bowel habits have been of no change. Stimming is up

and down.

>

> I also did a ATEC. As I said, he is doing something like he never

did

> before. However, I scored him 25 on 5/18/01 but 31 on 1/14/02 ( you

know,

> the lower the number the better). I wonder if I had scored him too

loosely

> back then on 5/18/01 and too harsh on 1/14/02.

>

> Any feedback is greatly appreciated.

>

> Kym