Guest guest Posted April 5, 2002 Report Share Posted April 5, 2002 I don't want to be mean, but that doc sounds like a *!#*?!!! Sorry that you had to experience that. Good news is - you have found out the solution to your problem - yeast!! That is great news. Now you may not even need any doctor! I think it is normal for us to worry about what we have and side effects - a lot of us - our conditions started after medicine. The nerve of her to say that!! > > Well, This probably won't be a surprise to Pam, but this morning I got a call from Dr. on, saying that she talked to Dr. Epperson(my ob/gyn) and that there is nothing more she can do for me, because I have weird side effects and I worry too much about everything. > > Are you kidding me? She won't even refill my prescription for ketoconozole and I only have two pills left. I think I am finally getting to the bottom of my problem. I really think that it is yeast. I Started the keto again for three days and now I have almost no white stuff attached to me. It has gotten less and less every day that I have been taking it, but according to them, I don' tneed it, because their tests came back negative. So, how would you explain the white stuff coming off after I start the stuff. > > Am I supposed to lie to them and not tell them when I have side effects? I can't believe this. When I went there, they were so positive. We can help you, she will figure out what is wrong with you. Of course I called my regular doctor and am having trouble getting her to call me back. She is really nice, but the office staff is like, we will have a nurse call you. I said, she has to speak with the doctor before she calls me, she can't refill my prescription. The doctor is onlly there til noon today, I am so angry and upset, I am finally getting this yeast infection to go away(which was caused by the steroid from Dr. on) I suppose that was one of my weird reactions. > > If it doesn't go by their book of the way it should go, then, they give up? I honestly don't believe this. She says, Dr. Epperson will have lots of other doctors she can refer you to. I said well, that is funny, I got two referals to you, and I know there are people that travel from Minn. to see you, so there must not be that many doctors. > > I am just venting here, but really, if any of you think of seeing her, don't waste your time and your $2300 dollars. > > Tracey > > > > --------------------------------- > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 5, 2002 Report Share Posted April 5, 2002 I don't want to be mean, but that doc sounds like a *!#*?!!! Sorry that you had to experience that. Good news is - you have found out the solution to your problem - yeast!! That is great news. Now you may not even need any doctor! I think it is normal for us to worry about what we have and side effects - a lot of us - our conditions started after medicine. The nerve of her to say that!! > > Well, This probably won't be a surprise to Pam, but this morning I got a call from Dr. on, saying that she talked to Dr. Epperson(my ob/gyn) and that there is nothing more she can do for me, because I have weird side effects and I worry too much about everything. > > Are you kidding me? She won't even refill my prescription for ketoconozole and I only have two pills left. I think I am finally getting to the bottom of my problem. I really think that it is yeast. I Started the keto again for three days and now I have almost no white stuff attached to me. It has gotten less and less every day that I have been taking it, but according to them, I don' tneed it, because their tests came back negative. So, how would you explain the white stuff coming off after I start the stuff. > > Am I supposed to lie to them and not tell them when I have side effects? I can't believe this. When I went there, they were so positive. We can help you, she will figure out what is wrong with you. Of course I called my regular doctor and am having trouble getting her to call me back. She is really nice, but the office staff is like, we will have a nurse call you. I said, she has to speak with the doctor before she calls me, she can't refill my prescription. The doctor is onlly there til noon today, I am so angry and upset, I am finally getting this yeast infection to go away(which was caused by the steroid from Dr. on) I suppose that was one of my weird reactions. > > If it doesn't go by their book of the way it should go, then, they give up? I honestly don't believe this. She says, Dr. Epperson will have lots of other doctors she can refer you to. I said well, that is funny, I got two referals to you, and I know there are people that travel from Minn. to see you, so there must not be that many doctors. > > I am just venting here, but really, if any of you think of seeing her, don't waste your time and your $2300 dollars. > > Tracey > > > > --------------------------------- > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 6, 2002 Report Share Posted April 6, 2002 Tracey, Boy can I relate! relate! relate! I totally understand your frustration and discouragement. I know Dr. on has helped women on this site and as far as LS or classic vulvodynia goes but then there are us that don't respond to her treatment plan or have reactions to the meds that she prescribes. When I first called her office I was told the same as you, that I would get better. Dr. on told me personally that she could treat me and get my pain under control and would not give up on me, so it was very discouraging when I recieved the letter in the mail saying that there was no more she could do for me and that she planned on only seeing me for one more visit. I am not trying to bash Dr. on because I know she has helped a lot of women but for those of us that don't respond to the different treatments PLEASE don't give up on us, It's very depressing ecspecially when we are still in pain. Tracey, If you ever want to e-mail me privately please do. I truly understand. Keeping you in my prayers, Pam Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 7, 2002 Report Share Posted April 7, 2002 Tracey, Did Dr. on just refuse to fill your ketoconizole prescription? Or did she say that since she can no longer help you that she would prefer your regular doctor handle your meds? I cant understand why she wouldnt fill your med for you one last time at least. Dr. T can get in a mood sometimes. If your problem is a chronic yeast thing and not a skin disorder or some type of vulvodynia, Dr. on probably does not know what else to do for you. I know that she has had some experience with bacterial vaginosis, but mostly she deals with vulvodynia and vulvar dermatosis. But I dont understand why she would not have refered you to another doctor then. Maby she does not know any specialists for that. I hope that other people on this list understand that not every doctor is right for everyone. Dr. on did great things for me. That is why I think so highly of her, but she has her specialty that she works in just like many of the other vulvar specialists out there. I still think she is worth seeing because most of us are desperate for answers and she is one more chance at getting them. I still recomend her as the doctor that saved my marraige. Bunny /| |\ . . ( ! ) _________________________________________________________________ MSN Photos is the easiest way to share and print your photos: http://photos.msn.com/support/worldwide.aspx Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 7, 2002 Report Share Posted April 7, 2002 Just a thought... While we are on the subject. I am not all that fond of doctors making unrealistic promises, but I have seen them do this quite a bit in my time of hopping from one doctor to the next. They do this to inspire confidence, and also may genuinely belive they are capeable of helping you. A confident patient recovers better much in the way patients have recovered quicker in studys where they have tested the power of prayer in hospitals. I want you to understand that I am not necessarily defending Dr. on for promising not to give up on Pam and then sending that letter. That would have been just as crushing to me. Just thought I would put it in perspective a little. Also, you have to respect a doctor for admitting that they can no longer help you, rather then having you continue to come out and spend your money on treatments that will do no good. I have seen more then my share of doctors where I finally just had to quite seeing them when I realized that the treatments were going nowear rather then the doctor telling me that he/she had reached a point were they could do no more for me. Just a thought... Bunny /| |\ . . ( ! ) _________________________________________________________________ MSN Photos is the easiest way to share and print your photos: http://photos.msn.com/support/worldwide.aspx Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 7, 2002 Report Share Posted April 7, 2002 Tracey, If you think it is yeast, you could get a book on Systemic Yeast Infections (Candida Albicans). I am reading one right now called Complete Candida Yeast Guidebook by Jeanne Marie . I don't know if this is the best one out there, but it seems like a good one so far. Apparently, Yeast is perfectly normal in the body, but abnormally high amounts can grow when you have been under lots of stress, used antibiotics, steriods, have diabetes, or poor digestion or immunity. Then, they turn to icky " mycotoxins " which poison the body. And like somebody mentioned, you may not NEED a doc to get rid of this for you. It is a total body thing, that you have a lot of control over. Hope this helps. And sorry about the doc being a poop! Good luck. Hugs, Meg Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 8, 2002 Report Share Posted April 8, 2002 Pam, I've been away from the list for a while b/c of my crazy schedule with work and all that. When did this occur about Dr. on letting you go? Go ahead and e-mail me off the list if you like b/c I don't check the list as often as I once did since I'm on no-mail b/c of work and my just not feeling all that well for the most part. Tracey, that goes for you too. I'm sorry that it didn't work out for either of you. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 8, 2002 Report Share Posted April 8, 2002 My regulary ob/gyn said that she didn't know what else to do for me and then sent me to Dr. thomason. I do respect her for that. Difference between them being that had I not been able to get into dr. t earlier than expected she said that she would keep trying. She tried anything and listened to what I said and thought could be the problem. Dr. thomason, refused to fill the prescription, and said that she couldn't help me anymore because I had weird side effects and I worry too much.(those were her words) She was so concerned that I don't get a yeast infection while during this treatement, that would be the worst thing that could happen right now is what they said. Now, I have one, and she won't refill a prescription for me. I don't think they should make promises, they should be positive, but they should also listen to you and what you think the problem may be, even if the scientific answers say, no yeast, look again, look for a different kind. I never asked her if she could explain why the yeast culture came back negative, but after two days on ketoconozole I could scrape all the white patches off my skin. Just my two cents. She has made me very leary to trust any doctor that says they can help. Bunny wrote: Just a thought...While we are on the subject. I am not all that fond of doctors making unrealistic promises, but I have seen them do this quite a bit in my time of hopping from one doctor to the next. They do this to inspire confidence, and also may genuinely belive they are capeable of helping you. A confident patient recovers better much in the way patients have recovered quicker in studys where they have tested the power of prayer in hospitals. I want you to understand that I am not necessarily defending Dr. on for promising not to give up on Pam and then sending that letter. That would have been just as crushing to me. Just thought I would put it in perspective a little.Also, you have to respect a doctor for admitting that they can no longer help you, rather then having you continue to come out and spend your money on treatments that will do no good. I have seen more then my share of doctors where I finally just had to quite seeing them when I realized that the treatments were going nowear rather then the doctor telling me that he/she had reached a point were they could do no more for me.Just a thought... Bunny /| |\ . . ( ! )_________________________________________________________________MSN Photos is the easiest way to share and print your photos: http://photos.msn.com/support/worldwide.aspx*****END OF MESSAGE*****-------------------------------------------------To post message: VulvarDisorders To Subscribe: VulvarDisorders-subscribe Unsubscribe: VulvarDisorders-unsubscribe List owner: VulvarDisorders-owner ***** Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 8, 2002 Report Share Posted April 8, 2002 My regulary ob/gyn said that she didn't know what else to do for me and then sent me to Dr. thomason. I do respect her for that. Difference between them being that had I not been able to get into dr. t earlier than expected she said that she would keep trying. She tried anything and listened to what I said and thought could be the problem. Dr. thomason, refused to fill the prescription, and said that she couldn't help me anymore because I had weird side effects and I worry too much.(those were her words) She was so concerned that I don't get a yeast infection while during this treatement, that would be the worst thing that could happen right now is what they said. Now, I have one, and she won't refill a prescription for me. I don't think they should make promises, they should be positive, but they should also listen to you and what you think the problem may be, even if the scientific answers say, no yeast, look again, look for a different kind. I never asked her if she could explain why the yeast culture came back negative, but after two days on ketoconozole I could scrape all the white patches off my skin. Just my two cents. She has made me very leary to trust any doctor that says they can help. Bunny wrote: Just a thought...While we are on the subject. I am not all that fond of doctors making unrealistic promises, but I have seen them do this quite a bit in my time of hopping from one doctor to the next. They do this to inspire confidence, and also may genuinely belive they are capeable of helping you. A confident patient recovers better much in the way patients have recovered quicker in studys where they have tested the power of prayer in hospitals. I want you to understand that I am not necessarily defending Dr. on for promising not to give up on Pam and then sending that letter. That would have been just as crushing to me. Just thought I would put it in perspective a little.Also, you have to respect a doctor for admitting that they can no longer help you, rather then having you continue to come out and spend your money on treatments that will do no good. I have seen more then my share of doctors where I finally just had to quite seeing them when I realized that the treatments were going nowear rather then the doctor telling me that he/she had reached a point were they could do no more for me.Just a thought... Bunny /| |\ . . ( ! )_________________________________________________________________MSN Photos is the easiest way to share and print your photos: http://photos.msn.com/support/worldwide.aspx*****END OF MESSAGE*****-------------------------------------------------To post message: VulvarDisorders To Subscribe: VulvarDisorders-subscribe Unsubscribe: VulvarDisorders-unsubscribe List owner: VulvarDisorders-owner ***** Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 8, 2002 Report Share Posted April 8, 2002 If it wasn't yeast, why would I have been able to scrape if off two days after starting the antifungal? I couldn't scrape it off before. What do you mean by pale? Sort of grey? That didn't start until the last two days or so for me and this has been going on for weeks. I really think it is yeast, under the skin as well as in the vagina. I think maybe it is more than one kind, and that is why I can't completely get rid of it. I read an interesting article, I will try to attach it later. daphne parsons wrote: , i had those white patches also last month, My DO said no yeast that she thought this was mucus stuck to my skin not yeast or any other skin changes. I have noticed more of them when my skin seem to get dry and gets pale looking. It very well could be something other than yeast! Sort of like when the inside of your mouth gets a pale build up of dead cells or something! They need to listen more, my DO is awsome about that she lets me try whatever I want so long as she doesn't think it will hurt me...... But on the other hand if you don't have yeast you don't want to keep treating it! That I feel is part of the reason I got here in the first place! YOu need to be working together not butting heads.or no body wins! An as for being paranoid....... Why shouldn't we be? My biggest fear is going back to the 3 months where I couldn't even tolerate walking let alone sex. At least now I have good weeks that go with the bad ones! Take care, Daphne Re: Horrible Doctors. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 8, 2002 Report Share Posted April 8, 2002 , i had those white patches also last month, My DO said no yeast that she thought this was mucus stuck to my skin not yeast or any other skin changes. I have noticed more of them when my skin seem to get dry and gets pale looking. It very well could be something other than yeast! Sort of like when the inside of your mouth gets a pale build up of dead cells or something! They need to listen more, my DO is awsome about that she lets me try whatever I want so long as she doesn't think it will hurt me...... But on the other hand if you don't have yeast you don't want to keep treating it! That I feel is part of the reason I got here in the first place! YOu need to be working together not butting heads.or no body wins! An as for being paranoid....... Why shouldn't we be? My biggest fear is going back to the 3 months where I couldn't even tolerate walking let alone sex. At least now I have good weeks that go with the bad ones! Take care, Daphne Re: Horrible Doctors. My regulary ob/gyn said that she didn't know what else to do for me and then sent me to Dr. thomason. I do respect her for that. Difference between them being that had I not been able to get into dr. t earlier than expected she said that she would keep trying. She tried anything and listened to what I said and thought could be the problem. Dr. thomason, refused to fill the prescription, and said that she couldn't help me anymore because I had weird side effects and I worry too much.(those were her words) She was so concerned that I don't get a yeast infection while during this treatement, that would be the worst thing that could happen right now is what they said. Now, I have one, and she won't refill a prescription for me. I don't think they should make promises, they should be positive, but they should also listen to you and what you think the problem may be, even if the scientific answers say, no yeast, look again, look for a different kind. I never asked her if she could explain why the yeast culture came back negative, but after two days on ketoconozole I could scrape all the white patches off my skin. Just my two cents. She has made me very leary to trust any doctor that says they can help. Bunny wrote: Just a thought...While we are on the subject. I am not all that fond of doctors making unrealistic promises, but I have seen them do this quite a bit in my time of hopping from one doctor to the next. They do this to inspire confidence, and also may genuinely belive they are capeable of helping you. A confident patient recovers better much in the way patients have recovered quicker in studys where they have tested the power of prayer in hospitals. I want you to understand that I am not necessarily defending Dr. on for promising not to give up on Pam and then sending that letter. That would have been just as crushing to me. Just thought I would put it in perspective a little.Also, you have to respect a doctor for admitting that they can no longer help you, rather then having you continue to come out and spend your money on treatments that will do no good. I have seen more then my share of doctors where I finally just had to quite seeing them when I realized that the treatments were going nowear rather then the doctor telling me that he/she had reached a point were they could do no more for me.Just a thought... Bunny /| |\ . . ( ! )_________________________________________________________________MSN Photos is the easiest way to share and print your photos: http://photos.msn.com/support/worldwide.aspx*****END OF MESSAGE*****-------------------------------------------------To post message: VulvarDisorders To Subscribe: VulvarDisorders-subscribe Unsubscribe: VulvarDisorders-unsubscribe List owner: VulvarDisorders-owner ***** Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 8, 2002 Report Share Posted April 8, 2002 , i had those white patches also last month, My DO said no yeast that she thought this was mucus stuck to my skin not yeast or any other skin changes. I have noticed more of them when my skin seem to get dry and gets pale looking. It very well could be something other than yeast! Sort of like when the inside of your mouth gets a pale build up of dead cells or something! They need to listen more, my DO is awsome about that she lets me try whatever I want so long as she doesn't think it will hurt me...... But on the other hand if you don't have yeast you don't want to keep treating it! That I feel is part of the reason I got here in the first place! YOu need to be working together not butting heads.or no body wins! An as for being paranoid....... Why shouldn't we be? My biggest fear is going back to the 3 months where I couldn't even tolerate walking let alone sex. At least now I have good weeks that go with the bad ones! Take care, Daphne Re: Horrible Doctors. My regulary ob/gyn said that she didn't know what else to do for me and then sent me to Dr. thomason. I do respect her for that. Difference between them being that had I not been able to get into dr. t earlier than expected she said that she would keep trying. She tried anything and listened to what I said and thought could be the problem. Dr. thomason, refused to fill the prescription, and said that she couldn't help me anymore because I had weird side effects and I worry too much.(those were her words) She was so concerned that I don't get a yeast infection while during this treatement, that would be the worst thing that could happen right now is what they said. Now, I have one, and she won't refill a prescription for me. I don't think they should make promises, they should be positive, but they should also listen to you and what you think the problem may be, even if the scientific answers say, no yeast, look again, look for a different kind. I never asked her if she could explain why the yeast culture came back negative, but after two days on ketoconozole I could scrape all the white patches off my skin. Just my two cents. She has made me very leary to trust any doctor that says they can help. Bunny wrote: Just a thought...While we are on the subject. I am not all that fond of doctors making unrealistic promises, but I have seen them do this quite a bit in my time of hopping from one doctor to the next. They do this to inspire confidence, and also may genuinely belive they are capeable of helping you. A confident patient recovers better much in the way patients have recovered quicker in studys where they have tested the power of prayer in hospitals. I want you to understand that I am not necessarily defending Dr. on for promising not to give up on Pam and then sending that letter. That would have been just as crushing to me. Just thought I would put it in perspective a little.Also, you have to respect a doctor for admitting that they can no longer help you, rather then having you continue to come out and spend your money on treatments that will do no good. I have seen more then my share of doctors where I finally just had to quite seeing them when I realized that the treatments were going nowear rather then the doctor telling me that he/she had reached a point were they could do no more for me.Just a thought... Bunny /| |\ . . ( ! )_________________________________________________________________MSN Photos is the easiest way to share and print your photos: http://photos.msn.com/support/worldwide.aspx*****END OF MESSAGE*****-------------------------------------------------To post message: VulvarDisorders To Subscribe: VulvarDisorders-subscribe Unsubscribe: VulvarDisorders-unsubscribe List owner: VulvarDisorders-owner ***** Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 8, 2002 Report Share Posted April 8, 2002 Tracey, I thought it interesting about what you were saying about yeast under the skin which leads me to a question. When you say yeast under the skin are you talking about the clitoral hood? E-mail me off the list if you like b/c I would like to find out more about this article b/c I think I have yeast in my clitoral hood but I don't dare treat it myself b/c I can't get the medicine that I use for my yeast up there and I want my dr to check it out b/c I'm thinking that it may be something other than yeast. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 8, 2002 Report Share Posted April 8, 2002 well I couldn't scrape mine off at first either then I could with out yeast meds,I was referring to my own vulva when I said Pale. I seem to turn very pale pink almost white not grey, in between turning very red. Today I am swelled up for no apparent reason, and I have constant discharge. All this stuff is so confussing and frustrating. i thought mine was yeast fo ra long time cuz I couldn't find any other explaination. Can you get someone to do a type specific yeast culture?? I have had 2 both negitive! Ask your Dr. to have this done or see if you can get here to do the great smokies test. I am going to see if mine will do that also. Re: Horrible Doctors. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 8, 2002 Report Share Posted April 8, 2002 Tracey, I agree with you that I dont think that doctors should make promises. It just gets our hopes up too far when things dont work out. I was just explaining why doctors do that is all. I dont agree with it. However, Dr. on does have an abrasive personality and it can definatly rub someone the wrong way. Telling you that she cant help you because you worry too much was definatly not productive. Did you get your regular doctor to prescribe you the ketoconizole for you? I hope you are beginning to feel better. Dr. on is verry hesitant to prescribe any medications that she dosent feel will help. She is not a specialist in yeast, so if her cultures came back saying you dont have yeast, then she probably honestly belives that you dont have yeast and does not want to over prescribe any antifungles. Dr. T can be very stubbron and wont give in when she belives she is right, and I have to respect her for that because if she just let us take whatever meds WE think are best for us, then she cant effectively treat us. She is very conservative about medicines this way. She even makes sure that my GP writes out my scripts for my BC Pill since she is the one keeping an eye on it. I know that there have been a couple of times that I wasnt sure of her judgement on a couple of things but I trusted her and went with her advice and things worked out. This does not necessarily apply to you, just so you know that. There was one time I tested possitive for yeast and I absolutly refused to treat it with Gyne Lotrimine because I didnt want to burn the new tissue after the surgery I had gone through. She humored me for a couple of visits and prescribed about 3 months of Difflucan before she told me that I still had yeast and would have to use the Gyne lotrimine if I wanted to get rid of it. She finaly told me that I dont have to do as she says, and asked if I trusted her. I decided that as long as I was paying her to treat me for this, it wouldnt make sense for me not too, especially after I trusted her with the surgery. So I took the Gyne Lotrinine suppositorys, and two weeks latter I was better. I know how hard it is to trust doctors after all we have been through. It is something that I struggle with as well. Dont give up though, unless we decide to self treat, at some point we have to put our trust in a doctor, or else seeing them is pointless. I really hope you find some relief soon, you are in my prayers. Bunny /| |\ . . ( ! ) _________________________________________________________________ Send and receive Hotmail on your mobile device: http://mobile.msn.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 8, 2002 Report Share Posted April 8, 2002 , I think you are exacly right. I don't think she thinks it is yeast, and I know it is, just from past experience. The problem for me is figuring out what kind of yeast and getting it cleared up. The think I hate is the side effects I get from the keto. Right now I am taking Diflucan, and it is not cleared up yet, but I am not surprised, I figure this is going to take a while. Last time it took a week to feel better., but then it came back, so that is where we need to work on some kind of plan. What kind of yeast does the gyno lotramine kill? What is a suppository exactly, is it just a sort of pill you put in the vagina? I really don't want to use creams down there anymore, kind of hesitant. I did trust her, and I used the clob and had a horrible reaction and had to do a lot of soul searching to decide what I thought was best for me. I don't want to be on antifungal meds for 6 months, we want to have a baby, but if that is the only choice, then that is it. Why didn't the sporax work for you? Does that treat all different kinds of yeast too? I am somewhat confused about what kind of yeasts there are and what treats different ones. Why do you think the gyno lotramine worked for you? Thanks for your input. Bunny wrote: Tracey,I agree with you that I dont think that doctors should make promises. It just gets our hopes up too far when things dont work out. I was just explaining why doctors do that is all. I dont agree with it.However, Dr. on does have an abrasive personality and it can definatly rub someone the wrong way. Telling you that she cant help you because you worry too much was definatly not productive.Did you get your regular doctor to prescribe you the ketoconizole for you? I hope you are beginning to feel better.Dr. on is verry hesitant to prescribe any medications that she dosent feel will help. She is not a specialist in yeast, so if her cultures came back saying you dont have yeast, then she probably honestly belives that you dont have yeast and does not want to over prescribe any antifungles. Dr. T can be very stubbron and wont give in when she belives she is right, and I have to respect her for that because if she just let us take whatever meds WE think are best for us, then she cant effectively treat us. She is very conservative about medicines this way. She even makes sure that my GP writes out my scripts for my BC Pill since she is the one keeping an eye on it.I know that there have been a couple of times that I wasnt sure of her judgement on a couple of things but I trusted her and went with her advice and things worked out. This does not necessarily apply to you, just so you know that. There was one time I tested possitive for yeast and I absolutly refused to treat it with Gyne Lotrimine because I didnt want to burn the new tissue after the surgery I had gone through. She humored me for a couple of visits and prescribed about 3 months of Difflucan before she told me that I still had yeast and would have to use the Gyne lotrimine if I wanted to get rid of it. She finaly told me that I dont have to do as she says, and asked if I trusted her. I decided that as long as I was paying her to treat me for this, it wouldnt make sense for me not too, especially after I trusted her with the surgery. So I took the Gyne Lotrinine suppositorys, and two weeks latter I was better.I know how hard it is to trust doctors after all we have been through. It is something that I struggle with as well. Dont give up though, unless we decide to self treat, at some point we have to put our trust in a doctor, or else seeing them is pointless.I really hope you find some relief soon, you are in my prayers. Bunny /| |\ . . ( ! )_________________________________________________________________Send and receive Hotmail on your mobile device: http://mobile.msn.com*****END OF MESSAGE*****-------------------------------------------------To post message: VulvarDisorders To Subscribe: VulvarDisorders-subscribe Unsubscribe: VulvarDisorders-unsubscribe List owner: VulvarDisorders-owner ***** Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 8, 2002 Report Share Posted April 8, 2002 Hi Tracey, The Gyne-Lotrimine suppositorys come in a pack of 3 (suppose to be 3 day treatment but I use it for 21 days) and they are a pill that you insert into the vagina. It still will discharge out in the morning thru the day, but it dose not irritate my tissue anywhere near as much as any of the cream antifungles or antibiotics have. I am not really sure why it works. I know that the yeast I have been getting is not albicanis. Its not Gabralta either. It has been one of the other two (cant remember there names but I saw the names mentioned in the article on recurant vulvovaginal candidais that someone was cool enough to post just recently) for the past 3 times I have had it. I often use the Gyne-Lotrimine and Difflucan at the same time for the same durration. Dr. ons theory on why the orals are not working anymore is that my GERD medicine is preventing my stomach from absorbing the medication properly (I take Nexium it is like Prilosec, a proton pump inhibitor). My general practitioner thinks my yeast is just resistant too them now for taking them all so much. Either way keto, sporonox, and difflucan dont work any more. I have a bout of yeast right now that I am dealing with, I got it after I wore mini pads for a week when I was expecting a period that never came. If the Gyne-Lotrimine dosent take care of it this time, my nurse practitioner wants to paint me purple down there with that Ginsen Violet. I dont really think that is such a good idea, and I wont do it unless Dr. on says it wont injure my tissue. I am pretty sure she wouldnt want me to do it though. This yeast thing sucks! I think that those of us who have vulvar vestibulitis, even after the surgery will always be suceptible to it. My last bout of yeast lasted 4 months! It wouldnt hurt to give the Gyne-Lotrimine a try. I am suprised that Dr. on didnt have you use it in the past. Maby it was because the keto always worked before. I hope you find something that works soon, belive me I know how miserable this is. Bunny /| |\ . . ( ! ) _________________________________________________________________ Get your FREE download of MSN Explorer at http://explorer.msn.com/intl.asp. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 9, 2002 Report Share Posted April 9, 2002 As my future fiancee is on this list-serve, and suffers from a form of vulvodynia termed Vulvarvestibular syndrome, I have joined to listen to what many others have experienced with similar conditions. It concerns me your mistrust of your physicians. That is not to say that is unwarranted, but to state the treatment of vulvodynias are complex, and not easily resolved. I wish that they were, as my fiance and I have been experiencing and working with different specialists for almost two years, but we both have come to the realization that it takes time and patience. The key is a good patient doctor relationship. It sounds in your case that you were referred from a general gynecologist to a specialist, and now you are having difficulties with this specialist. It was wise for your gyn to refer you since the treatment of vulvodynias really it outside the scope of their care. As far as the yeast infection, and the failure to prescribe the medication for it, I didnt completey understand the situation. The diagnosis of a yeast infection can be both clinical from the patient's history and presence of a thick white mucous discharge or from a laboratory study. Invariably laboratory studies such as fungal/bacterial cultures are not 100% reliable. Too many independent variables involved. But a negative fungal culture doesnt rule out a yeast infection, but more obviously a positive fungal culture confirms the presence of a yeast infection. But back to my original statement, please continue to work with your specialist. It takes time. Thanks for your time WhiteGet your FREE download of MSN Explorer at http://explorer.msn.com. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 9, 2002 Report Share Posted April 9, 2002 Hey, Is it a prescription? When you used it for 21 days and the diflucan too, that was enough? It got rid of it completely? So, does this stuff work on all yeasts? I took my second diflucan yesterday, the first on Saturday , and tuesday thru friday was keto. I keep looking down there, and it is like the white is in my skin, not really on it, it is right at the entrance to the vagina, and around the urethra. Was your always just inside? I am the cool one that posted that article. I guess if I have to do 6 months of meds to get rid of it, whatever, I just can't think of not sleeping for that long. So, far both keto and diflucan have given me trouble sleeping, plus weird dreams, Guess I don't have many other options though. Thanks. Bunny wrote: *****END OF MESSAGE*****-------------------------------------------------To post message: VulvarDisorders To Subscribe: VulvarDisorders-subscribe Unsubscribe: VulvarDisorders-unsubscribe List owner: VulvarDisorders-owner ***** Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 9, 2002 Report Share Posted April 9, 2002 I want to jump in here for a moment and say that terasol cream is the only cream that kills all yeast forms or so I have been told and the sporonox also kills all yeast forms. Let me tell you that since I have been on sporonox I have felt so much better down there, no pain at all. I had constant reoccurring vaginal yeast infections and could not get any doc to treat me long term for it, but I got this stupid nail fungus and got the sporonox easily. but I wanted to tell you something's you might want to try, first boric acid suppositories, you make them yourself and they are very cheap, I read on a VV site that you need to use the for several weeks or months. but what you do is you go buy medicinal boric acid, which is very cheap if you live in the us you can get it at any Wal-Mart or drug store sometimes grocery store for a few bucks and you buy capsules from the health food store and you fill them up and insert them vaginally. Also you can buy tea tree oil from the same places for about 5 dollars and get some OB tampons and soak them with the tea tree oil and insert them for a few weeks and this is suppose to get rid of yeast to, and the tea tree oil has this soothing feeling when you insert them. So these are things you might want to try too. if you would like the links I could send them to you. there is also nystatin that comes in a pill form or a swish and swallow form if you could get your doc to give it to you but if you are like me I could not get them to do it . The boric acid and tea tree oil suppositories are suppose to work on all strains of yeast. Traci : VulvarDisorders To Subscribe: VulvarDisorders-subscribe Unsubscribe: VulvarDisorders-unsubscribe List owner: VulvarDisorders-owner ***** Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 9, 2002 Report Share Posted April 9, 2002 You must have misread or misunderstood my email, I did not give up on my doctor, she called me after I had made a few calls and spoke with the nurse a few times. She told me that she could no longer help me and that she was refering me back to my ob/gyn, and that I had wierd side effects and that I worry too much. I had nothing to do the break off of this relationship. White wrote: As my future fiancee is on this list-serve, and suffers from a form of vulvodynia termed Vulvarvestibular syndrome, I have joined to listen to what many others have experienced with similar conditions. It concerns me your mistrust of your physicians. That is not to say that is unwarranted, but to state the treatment of vulvodynias are complex, and not easily resolved. I wish that they were, as my fiance and I have been experiencing and working with different specialists for almost two years, but we both have come to the realization that it takes time and patience. The key is a good patient doctor relationship. It sounds in your case that you were referred from a general gynecologist to a specialist, and now you are having difficulties with this specialist. It was wise for your gyn to refer you since the treatment of vulvodynias really it outside the scope of their care. As far as the yeast infection, and the failure to prescribe the medication for it, I didnt completey understand the situation. The diagnosis of a yeast infection can be both clinical from the patient's history and presence of a thick white mucous discharge or from a laboratory study. Invariably laboratory studies such as fungal/bacterial cultures are not 100% reliable. Too many independent variables involved. But a negative fungal culture doesnt rule out a yeast infection, but more obviously a positive fungal culture confirms the presence of a yeast infection. But back to my original statement, please continue to work with your specialist. It takes time. Thanks for your time White Get your FREE download of MSN Explorer at http://explorer.msn.com.*****END OF MESSAGE*****-------------------------------------------------To post message: VulvarDisorders To Subscribe: VulvarDisorders-subscribe Unsubscribe: VulvarDisorders-unsubscribe List owner: VulvarDisorders-owner ***** Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 10, 2002 Report Share Posted April 10, 2002 Tracey, No, unfortunatly it is not a prescription. Since it is over the counter, insurance wouldnt pay for it anyways. So, yes thats me going into walgreens looking like a geek buying 7 boxes of Gyne-Lotrimine 3 day suppository pills. But it works. I cant tell if actually using the Difflucan along with it works or not. I just keep doing it. I guess I am pretty paranoid of getting that yeast infection that just wont go away with anything. When I get a yeast infection I almost always get it on the labia majora on the outside as well. I also get that yummy smegma all inside my clitoral hood, but I just do a good job of keeping that cleaned out and its usually not a problem. I dont get that whiteness under the skin you are describing, just the pasty stuff that rubs right off. My tissue usually looks bright red underneath the white discharge. Thats wierd about the Difflucan and Keto causing problems sleeping. I've never had that problem. That just shows how each of us reacts to a medication diffrently. I went in to see my NP yesterday and it turns out the yeast is gone, unfortunatly in the 2 weeks I had to go without my estring (so that it didnt reinfect me with yeast) my estrogen declined and atrophy began to return to the area. So my ph raised and all my lacto died off and beta strep grew in its place. I switched to vagifem tablets so that I wouldnt have to worry about reinfecting, and so we could get the estrogen back up there and get my lacto to come back. This is just so frustrating. This NP wanted to give me antibiotics for my Beta strep which never did anything but give me a yeast infection from hell. I told her that the strep would go back down to normal once the estrogen levels go back, but she was still worried, so I told her to call Dr. on and talk to her and have one of them call me back and let me know what I should do to treat. I already know that Dr. T wont want me to treat with antibiotics. You know...I dont really mind haveing to take the estrogen for the rest of my life or anything, I just would like it if I could take a 9 month vecation from it and have a kid. There is really no way to have kids while I am on thease hormones. I'll have to ask Dr. on about it at my next appointment. Anyways...If you dont like the keto or Difflucan, you could try 21 days of Gyne-Lotrimine and see if that works. Its something to consider if you are cirtain it is yeast. I know that there are some doctors around that deal specificly with the yeast theory like Dr. does in AR. Thease doctors would be able to search more thoroughly for all types of yeast, and would have more treatment options available to you. Bunny /| |\ . . ( ! ) _________________________________________________________________ Chat with friends online, try MSN Messenger: http://messenger.msn.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 10, 2002 Report Share Posted April 10, 2002 Tracey, No, unfortunatly it is not a prescription. Since it is over the counter, insurance wouldnt pay for it anyways. So, yes thats me going into walgreens looking like a geek buying 7 boxes of Gyne-Lotrimine 3 day suppository pills. But it works. I cant tell if actually using the Difflucan along with it works or not. I just keep doing it. I guess I am pretty paranoid of getting that yeast infection that just wont go away with anything. When I get a yeast infection I almost always get it on the labia majora on the outside as well. I also get that yummy smegma all inside my clitoral hood, but I just do a good job of keeping that cleaned out and its usually not a problem. I dont get that whiteness under the skin you are describing, just the pasty stuff that rubs right off. My tissue usually looks bright red underneath the white discharge. Thats wierd about the Difflucan and Keto causing problems sleeping. I've never had that problem. That just shows how each of us reacts to a medication diffrently. I went in to see my NP yesterday and it turns out the yeast is gone, unfortunatly in the 2 weeks I had to go without my estring (so that it didnt reinfect me with yeast) my estrogen declined and atrophy began to return to the area. So my ph raised and all my lacto died off and beta strep grew in its place. I switched to vagifem tablets so that I wouldnt have to worry about reinfecting, and so we could get the estrogen back up there and get my lacto to come back. This is just so frustrating. This NP wanted to give me antibiotics for my Beta strep which never did anything but give me a yeast infection from hell. I told her that the strep would go back down to normal once the estrogen levels go back, but she was still worried, so I told her to call Dr. on and talk to her and have one of them call me back and let me know what I should do to treat. I already know that Dr. T wont want me to treat with antibiotics. You know...I dont really mind haveing to take the estrogen for the rest of my life or anything, I just would like it if I could take a 9 month vecation from it and have a kid. There is really no way to have kids while I am on thease hormones. I'll have to ask Dr. on about it at my next appointment. Anyways...If you dont like the keto or Difflucan, you could try 21 days of Gyne-Lotrimine and see if that works. Its something to consider if you are cirtain it is yeast. I know that there are some doctors around that deal specificly with the yeast theory like Dr. does in AR. Thease doctors would be able to search more thoroughly for all types of yeast, and would have more treatment options available to you. Bunny /| |\ . . ( ! ) _________________________________________________________________ Chat with friends online, try MSN Messenger: http://messenger.msn.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 11, 2002 Report Share Posted April 11, 2002 Traci: Have you had problems with yeast that comes from taking long courses of yeast-killing antibiotics? I'm nervous about going on a course of antibiotics because I think it will make the yeast worse! Do you have any suggestions? Thanks! > , just wondering why the doctor will not give you any systemic yeast medications? They would not do it for me either, until I got this stupid finger nail fungus. Also does the doctor think that you got the beta strep growing because you were using the Lotromin to kill the yeast and that the bacteria just took off and grew more rampant? This is what usually happens and it becomes a vicious cycle of going back and forth. Also do you think that this estrogen will help keep the yeast and bacteria away? Traci > ----- Original Message ----- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 11, 2002 Report Share Posted April 11, 2002 , just wondering why the doctor will not give you any systemic yeast medications? They would not do it for me either, until I got this stupid finger nail fungus. Also does the doctor think that you got the beta strep growing because you were using the Lotromin to kill the yeast and that the bacteria just took off and grew more rampant? This is what usually happens and it becomes a vicious cycle of going back and forth. Also do you think that this estrogen will help keep the yeast and bacteria away? Traci ----- Original Message ----- Quote Link to comment Share on other sites More sharing options...
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