neuro etc

[Guest guest]

Sandi you are far from nuts. You are the bravest person I have ever met. I

have had many experiences where I threw away huge amounts of money on

medical professionals and tests and cures which didn't do anything. If I

were in your place (which I kind of am) I would spend the $1200. Save it,

borrow it, or a combination of the two. What if this one is the one?

Last year when I was in despair my husband said " when things look the

darkest is when you have to fight the hardest. " I know how hard it is to

keep fighting while enduring constant defeat. Maybe you can retreat for a

short time but you can't give up.

Love,

Hi Everyone,

I am so frustrated. I really thought I was getting somewhere with this

neurological connection for my vulvar pain. My first neuro told me that I

have a neuropathy and the next step is a 2 inch incision to remove an ankle

nerve for biopsy. So I went for a second opinion to a neuropathic expert in

NYC. He repeated the EMG, mentioned the IV therapy, and then said to come

back today for a small fiber nerve test. He didn't tell me it would be

$1200

and insurance won't cover it.

I can not afford this. I have already spent over 20K on finding my cure.

So

I know the test won't go away. I'll wait to see how the physical therapy

and

guai help.

I know I must look like I am nuts to all of you for trying so many things

and

going to so many doctors, but I burn like crazy 24/7 and nothing has helped.

In a funny way I know I am a little nuts about this. I feel as long as I am

actively pursuing this then there is hope. But it looks like with this

neurological problem I have reached a dead end.

Perhaps I'd be better off if I just stopped the pursuit of a cure and

focused

on the physical therapy, exercise, and guai protocol. I think I need

confidence in my body's own ability to heal because right now I have none.

I

think my problem boils down to that I need pain management so I am not so

desperately trying to find a cure and focus more on steady healing.

Anyway, hope you all are having a good day.

Love,

Sandi