Re: For Keri's mom (oil and tube)

[Guest guest]

Thank you very much for the information. I know I

have to get past the " she has a feeding tube " part but

it is really hard. I think maybe it just makes her

disablility a little more real and maybe I don't want

to know that. Understand?? Thanks again and I will

let you know what happens.

--- Janice Singer wrote:

> Hi,

>

> I deleted my message, so don't know your name.

> Anyhow, my son Nicolas - I am just uploading a

> picture

> of him on the page - has been on the keto diet for

> 1.5

> years. He got the g-tube before we started because

> we

> knew we couldn't do it without.

>

> Personally, I don't know how you other parents do it

> without the tube. We give him almost all of his

> fats

> and liquids through the tube. The way we do it is

> like this. I calculate the meals with carbs and

> protein and fat. Then I add a bit of fat to his

> oral

> portion to make it tasty and the rest (always oil)

> goes through his tube.

>

> I have a few complete meals, like peanut butter and

> custard, that we can take when it's inconvenient to

> tube him oil (like when we're at the mall for

> lunch).

>

>

> It works really well, and the food is much more

> palatable to Nicolas because it isn't so fat-laden.

>

> Actually, I love the tube. But Nicolas is pretty

> severely disabled, so I don't have issues with him

> pulling on it.

>

> Although, the other day, I sat my 9 month old next

> to

> Nicolas and the 9 month old pulled the button out!

> Yikes!

>

> Anyhow, if you have questions, let me know. I'm a

> reader, but only post infrequently.

>

> Janice

>

> =====

> Janice Singer, Chair

> PACE Ontario, Ottawa Chapter

>

> Working towards improved functionality and

> self-confidence with Conductive Education

>

>

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>