Guest guest Posted July 29, 2001 Report Share Posted July 29, 2001 Kim, I think I've seen increase in sz when increasing proteins. We are not on a slant, but I have tried to increase slightly twice and given up. I don't know whether there could have been other reasons. My son is on 1g/kilo body wt now. Re the nocturnal sz was Grant weaned of Depakote recently? Saro....Rohan's mum Kbtnr@... wrote: Hello everyone, I know protein amounts vary with each child and that some places go with 1 g of protein per kilogram of body weight. Has anyone had a problem with too much of a protein slant and once you reduced it you saw better results?? Grant is on 1.2 g protein per kilo and I think it is too much. He continues to have multiple nocturnal seizures. Any advice on protein numbers would be helpful. Thank you kim "The Ketogenic Diet....a realistic treatment option, NOT just a last resort!" List is for parent to parent support only. It is important to get medical advice from a professional keto team! Subscribe: ketogenic-subscribe Unsubscribe: ketogenic-unsubscribe Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 31, 2001 Report Share Posted July 31, 2001 Saro: Yes, we took his Depakote down approx. 20%. We're unsure if his daytime seizures that have reoccurred recently are withdrawal related or that he needs to have a higher level of Depakote from where he's at currently to eliminate " awake " episodes. Tonight we reduced his protein to 1.1g/Kg per the dieticians ok to adjust. Kim Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 1, 2001 Report Share Posted August 1, 2001 Hi SAro, sorry it has taken me so long to write back but thankyou for your protien slant theory with Rohan. I brought Grant down to 1.1g/kg of body weight as of this mrning so maybe I will see some changes for the good. I am convinced I am my own worst enemy as I am very quick to change the ratio if I do not see results fast enough. Last month there were many changes from calorie adjustments to ratio drops as there have been for the last few months as I have panicked. Yes a 20% depakote drop due to liver problems and I got rid of zonisamide 10 days ago so alot has happened to his little body recently. Faye gave me great advice and that was to stay put and see how things play out. Have a great day and thanks for the support. kim Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 1, 2001 Report Share Posted August 1, 2001 Hi SAro, sorry it has taken me so long to write back but thankyou for your protien slant theory with Rohan. I brought Grant down to 1.1g/kg of body weight as of this mrning so maybe I will see some changes for the good. I am convinced I am my own worst enemy as I am very quick to change the ratio if I do not see results fast enough. Last month there were many changes from calorie adjustments to ratio drops as there have been for the last few months as I have panicked. Yes a 20% depakote drop due to liver problems and I got rid of zonisamide 10 days ago so alot has happened to his little body recently. Faye gave me great advice and that was to stay put and see how things play out. Have a great day and thanks for the support. kim Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 1, 2001 Report Share Posted August 1, 2001 Kim, We also had daytime sz from withdrawing Depakote mainly on the 3-4 and 10th day after a drop in dose. Towards the latter part of the wean, the withdrawals were mainly at night. Once we finished with the dep, Rohan's sz became daytime ones. Then after four months he started nights sz again. I still think there is some dep still hanging around after all this time. These night sz were tailing off, but his dr. insisted on trying 10mg of Frisium to get rid of them and a few 1-2 sec sz he has during the day, so now things are not so clear. Could you perhaps not reduce any more meds and hang on to see if things settle down. We reduced the dose every two weeks but sometimes waited longer between drops. Once we put back the amount reduced and waited for the sz to stop before going on. It was frustrating and hard. Dropping the ratio helped us. Some have had withdrawals eased by using flax oil. If the sz stop after a few days they are withdrawals. Hope this is the case for you. Saro Kbtnr@... wrote: Saro: Yes, we took his Depakote down approx. 20%. We're unsure if his daytime seizures that have reoccurred recently are withdrawal related or that he needs to have a higher level of Depakote from where he's at currently to eliminate "awake" episodes. Tonight we reduced his protein to 1.1g/Kg per the dieticians ok to adjust. Kim "The Ketogenic Diet....a realistic treatment option, NOT just a last resort!" List is for parent to parent support only. It is important to get medical advice from a professional keto team! Subscribe: ketogenic-subscribe Unsubscribe: ketogenic-unsubscribe Quote Link to comment Share on other sites More sharing options...
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