Dr. needed!

April 11, 2000

Greetings!

I just signed on and wondered if some of you could help me. I live in

Ft. Worth, Tx. and am looking for an EXPERIENCED (in ACM) Neurosurgeon

and Neurologist to go to. I was diagnosed with ACM in March of 92. I

have seen a Dr. on the east coast, but now we live in Tx.

If anyone knows of an outstanding Dr.(s) in this area, please email me

privately. Also, who are the " big names " (neurosurgeons) around the

U.S. for Chiari malformations? We are willing to travel if it would be

beneficial. It seems so important to find someone with lots of surgical

experience and not just surgeons who have " studied " the problem.What all

do you believe is most important in choosing a doctor for this complex

problem?

In addition to the ACM, I also have had cervical instability which

required a C1-C2 fusion. (This could also really complicate surgery, if

needed now.) According to my surgical report, there was no mention of

ACM at that time. (Nov. '85)

I thought that I read somewhere that ACM " could " occur after having a

cervical fusion. Do any of you know if this is true? I am wondering

because it seems strange to me that the neurosurgeon could pass wires in

the spinal column and not " notice " the tonsil down in there? Some

symptoms started the day my halo came off - 2mo. after my fusion in '85.

I can not say for sure that this is the reason, but it seems possible.

For the past 15 yrs. I have went from Dr. to Dr. trying to find the

cause of my symptoms. I'm sure most of you have had a similiar

experience.

Anyway, if any of you would have Dr. recommendations or remarks

concerning my fusion, please email me privately. We need to find

someone asap due to the increase in symptoms. Thank you for your help.

God Bless you all,

Bobbi Jo Cassidy

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