Re: Vulvodynia - I think:

[Guest guest]

Hi everyone,

I am new to the group. I started having problems in October of 2,000.

First if was bladder infections than yeast , it repeating itself. Then I

started having bladder retention. That was awful. Then on Christmas day

of 2001 I hit bottom. I had horrible pain in my urethra and vulva.

Stabbing pain, slacks bother me etc. I have been to the gyn 3 times and

he says everything is okay, then I visit two urologists. The second one

said I had urethritis. I am to o stay on a low grade of Tempex for 3

months. Nothing is getting better. Now I cannot even function to go and

do things during the day. I just and feel miserable. It hurts to much to

sit so I lay.

Any help or suggestions would be appreciated. I have been reading

" Screaming to be heard " and now I am more confused on what to do about

the estrogen. I had everything taken out several years ago so I am on

Estertest. I don't know if that is good or bad.

Thanks for listening,

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[Guest guest]

> Hi everyone,

> I am new to the group. I started having problems in October of

2,000.

> First if was bladder infections than yeast , it repeating itself.

Then I

> started having bladder retention. That was awful. Then on

Christmas day

> of 2001 I hit bottom. I had horrible pain in my urethra and vulva.

> Stabbing pain, slacks bother me etc. I have been to the gyn 3 times

and

> he says everything is okay, then I visit two urologists. The second

one

> said I had urethritis. I am to o stay on a low grade of Tempex for

3

> months. Nothing is getting better. Now I cannot even function to

go and

> do things during the day. I just and feel miserable. It hurts to

much to

> sit so I lay.

> Any help or suggestions would be appreciated. I have been reading

> " Screaming to be heard " and now I am more confused on what to do

about

> the estrogen. I had everything taken out several years ago so I am

on

> Estertest. I don't know if that is good or bad.

>

> Thanks for listening,

>

>

A couple of thoughts:

From what I read about female urethritis....it may be a mild form of

Interstitial Cystitis (IC). Having IC can make the vulva hurt as

well. Do a search on Interstitial Cystitis and see if the symptoms

are similar to yours. http://forum.asiaco.com/cgi-

bin/forum/forum.cgi?c=forum & fid=ichope & n=1

[Guest guest]

> Maddy,

> Have you tried taking capsules of Marshmallow? I bought some

because I am having a heck of a time with pain after urinating right

now, I see the urologist again thursday?? I was just wondering if

the capsules would work or if it has to be the tea. The capsules

smell and taste gross does the tea smell that bad??

> Daphne

They say the tea works better....you can open a capsule or two and

make the tea.

I think the tea tastes like dirt.....but I haven't added any milk or

sweetener to it. I just drink it and try to ignore the taste.

My urologist called yesterday....he thinks it is urethritis but doing

some research....that could just mean I have a milder form of

interstitial cystitis. He didn't offer any help.

Hope your appt goes better...

Lynn

[Guest guest]

> not occording to my urologist, but I have something!!

> >

> do you have interstitial cystitis

Daphne,

You sound like me...according to 3 urologists, I don't have IC but I

have something. The last doctor said Urethritis yet....it has no

cure and no cause AND many doctors think it is mild IC.

I also do NOT have frequency or urgency. After I pee....I get up and

start to walk away..my urethra aches. Sometimes...I have bladder

pressure or the feeling that I have to go even when I just did but

that usually happens after a reat UTI and eventually clears up. I

just seem to feel my urethra all day long so I am focused on the

area. I go about 6-8 times a day and not at night unless I drink a

glass of water before bed.

I did ask him on the phone about mycoplasmas/ureaplasmas and he said

that he may treat me for that in a month if I am no better. I am

still putting my faith into the natural herbs because it has been 2

years and nothing has helped other than the herbs.

Lynn