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Re: Clayton Update - LONG

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In a message dated 5/14/99 2:34:18 AM Eastern Daylight Time,

joelinda@... writes:

<< Sharon, about Clayton's low cholesterol levels, that is also in my family

and they always say oh, it's OK. But I have read several things saying it is

not OK. Please share whatever you find out with us. >>

CLayton's LDL - the apparently bad cholesterol is low - more than 40 points

below normal and this is not good - especially since my family has a genetic

predisposition to HIGH Cholesterol. Dr, Kelley said that ldl helps control

the hormones and also is associated with austic like/pdd behaviors that he

sees in a syndrome called -Lemi opitz - nwhich CLaYTON does not have but

his cholesterol levels are as low as those kids and he finds that giving htem

cholesterol helps to curb or even get rid of these behaviors. So once CLayton

has adjusted to the mito cocktail they will start him on supplemetnal

cholesterol.

Love,

Sharon

mommy to Jake (6)(ADHD - awaiting glasses) and fraternal twins (3/30/97) -

Cole -(nda and cute as a button) and Clayton (mitochondrial disorder,

eosinophilic gastroenteritis, food allergies (milk, soy, eggs, wheat),

g-tube, Nissen, latex allergy, DD, sensory integration disorder, tremors,

etc.........)

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