Hypoparathyroidism & Dairy -

[Guest guest]

, I can only encourage you to work with your doctors so that

together you learn how to manage your hypoparathyroidism. It is

a fairly rare condition and not all doctors are up to speed on how

to treat long-term cases. It may take some time, but if your GP is

willing to learn, work with her.

My doctors didn't know that those with permanent hypoparathyroidism

should avoid dairy either. In fact they both were encouraging me

to eat more dairy - even though I'm sensitive to lactose. After I

read Dr. Ain's post I told my doctors that I was going back to my

normal diet (very little dairy) and they arranged additional bloodwork.

Within two weeks of cutting out the dairy, my calcium level was

right in the middle of the normal range - the highest it has been

in the 20 months since my tt. My daily calcium supplement was reduced

by 500 mg and I found out this morning that my calcium level continues

to be in the normal range.

It is a worthwhile investment to work with your doctors to cultivate

the skills necessary to monitor and manage your hypoparathyroidism.

Just because your GP doesn't know now, doesn't mean that she can't

learn.

Which of your doctors takes your hypoparathyroidism seriously enough

to be willing to carefully monitor your condition thru regular

blood work?

dx pap-hurthle cell variant, tt 9/99, RAI 100 mCi 12/99