Guest guest Posted April 27, 2000 Report Share Posted April 27, 2000 Anyone with experiences at Kaiser or other HMOs please pass along any tips or info in dealing with this system. I have had the right side of my thyroid removed due to a benign nodule that made it non-functioning. They said I didn't need medicine anymore. That was almost 13 years ago. I still had no energy. Then 3 1/2 years ago after saying I woke up everyday feeling like I'd been hit by a truck, I was told I had FM. I also have a strange numbness in my jaw and lips, difficulty swallowing etc so I think it's Chiari but the MRI is negative. I don't think they are reading it right. HMOs offer Doctors bonuses for keeping costs down....why not this? Am I paranoid? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 30, 2000 Report Share Posted April 30, 2000 > Anyone with experiences at Kaiser or other HMOs please pass along any tips or > info in dealing with this system. > Hi Marcy, I was basically swept under the rug by Kaiser Permanette hospitals regarding my Chiari Malformation. My best advice is go with a Hmo that will reffer you to one of the ACM docs either on the Wacma list or one that is willing to reffer you to a neurosurgeon who is familar with chiari malformations. Kaiser's Radiologist and Neurosurgeon basically disagreed that my mri films showed ACM, when another teaching facility radiologist said I did in fact have it. I saw a neurologist at Kaiser who half way through my appt. when after he said their was nothing wrong with me, but except for my brain ectopia= Chiari said this was okay because we are just born this way!! Well, changed my hmo and three months after changing has my decompression. You have to not give up and fight your docs in getting refferred to a neurosurgeon who knows ACM. You are not parnoid...I am not a doctor but I think usually when someone has their thyroid removed even partially they need replacement Sythroid hormone. I have Hypothyroidism and take replacement hormones. If lacking these hormone you will get dry hair, dry skin, puffy face, aching joints and fatigue. Hope all this information helps. Take Care, Anneliese Reitz Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 30, 2000 Report Share Posted April 30, 2000 > Anyone with experiences at Kaiser or other HMOs please pass along any tips or > info in dealing with this system. > Hi Marcy, I was basically swept under the rug by Kaiser Permanette hospitals regarding my Chiari Malformation. My best advice is go with a Hmo that will reffer you to one of the ACM docs either on the Wacma list or one that is willing to reffer you to a neurosurgeon who is familar with chiari malformations. Kaiser's Radiologist and Neurosurgeon basically disagreed that my mri films showed ACM, when another teaching facility radiologist said I did in fact have it. I saw a neurologist at Kaiser who half way through my appt. when after he said their was nothing wrong with me, but except for my brain ectopia= Chiari said this was okay because we are just born this way!! Well, changed my hmo and three months after changing has my decompression. You have to not give up and fight your docs in getting refferred to a neurosurgeon who knows ACM. You are not parnoid...I am not a doctor but I think usually when someone has their thyroid removed even partially they need replacement Sythroid hormone. I have Hypothyroidism and take replacement hormones. If lacking these hormone you will get dry hair, dry skin, puffy face, aching joints and fatigue. Hope all this information helps. Take Care, Anneliese Reitz Quote Link to comment Share on other sites More sharing options...
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