“Treat the Children” Update Survey

[Guest guest]

Global AIDS Alliance " Treat the Children " Update Survey

The aggregate results of this survey will be published in the update

to the " Treat the Children " progress report. The report, to be

released on December 1, 2005, will document the current situation of

the treatment of children under 15 with HIV/AIDS. Please use the

most recent data available or use projections for the end of 2005.

We understand that some data may not be available and any data we do

receive is useful.

Please send the completed survey by November 18th to:

Vince DeGennaro

vdegennaro@...

1413 K Street, NW, 4th Floor

Washington, DC 20005

Tel: 202-789-0432

Fax: 202-789-0715

Definitions

Treatment with ARVs: patients receiving one or more antiretroviral

drugs for the treatment of HIV/AIDS

Medical care: prophylaxis or treatment for opportunistic infections

or AIDS-related Diseases. Examples are cotrimoxazole, tuberculosis

treatment, or Fluconazole.

WHO recommended regimen: Multi-drug regimens recommended by WHO for

the treatment of children. An example is zidovudine or stavudine +

lamivudine + nevirapine or efavirenz.

PMTCT: Prevention of mother to child transmission. PMTCT programs

attempt to decrease the intra and post-partum transmission of HIV

from an HIV-positive mother to her child by the administration of

antiretroviral drugs to both the mother and the infant.

PMTCT-plus: PMTCT programs that include the testing, care and

treatment of infants born to mothers in the PMTCT program

HIV-exposed infant: a child born to an HIV-positive mother

Confirmed HIV-positive infant: child with one or more positive DNA

PCR or RNA PCR tests if younger than 18 months, or one or more

positive antibody tests if older than 18 months and not breast

feeding for six weeks

Treatment

1. How many people are receiving ARVs through your programs

this year?

2. How many of these are children under 15? _______Infants

under 2?_______

3. How many HIV-positive people are receiving medical care?

_________

4. How many of these patients in medical care are children

under 15?_______ Infants under 2?_________

5. Are the children on ARV treatment on WHO recommended multi-

drug regimens or only one or two drugs?

___1 drug

___2 drugs

___WHO-recommended regimen

PMTCT

6. How many HIV-positive expectant mothers do you have enrolled

in PMTCT programs this year?__________________

7. How many HIV-positive expectant mothers do you have enrolled

in PMTCT-plus programs this year?__________________

8. What is the approximate rate of vertical transmission in

your PMTCT programs?

9. What services do you provide to HIV-positive mothers after

the birth?

___Education

___Counseling

___Family Planning

___ARV Treatment

10. What level of medical care is offered for HIV-exposed

infants in your PMTCT or PMTCT-plus programs? (Please indicate all

that apply)

¬¬¬¬___Antibody HIV testing

___DNA or RNA PCR HIV testing

___HIV testing and/or medical care for siblings born to the same

mother

___Cotrimoxazole prophylaxis

___Tuberculosis treatment

___Single dose ARV prophylaxis

___Long term ARV prophylaxis (more than one dose)

___ARV treatment

___Vitamin A supplementation

___Nutritional supplements

___Potable water and infant formula

___Regular visits with healthcare provider

11. What level of medical care is offered for confirmed HIV-

positive infants in your PMTCT or PMTCT-plus programs? (Please

indicate all that apply)

___Antibody HIV testing

___DNA or RNA PCR HIV testing

___HIV testing and/or medical care for siblings born to the same

mother

___Cotrimoxazole prophylaxis

___Tuberculosis treatment

___ARV treatment

___Vitamin A supplementation

___Nutritional supplements

___Potable water and infant formula

___Regular visits with healthcare provider

___Psychosocial counseling

Diagnostics

12. Approximately how many tests on HIV-exposed infants did

you perform this year?____________________________________

13. Of those tested, how many received antibody tests and how

many received DNA or RNA PCR tests?

14. What DNA or RNA PCR test do you use most often?

___Roche Amplicor DNA HIV-1 Monitor

___Roche TaqMan HIV-1 Monitor

___Abbott LcX HIV RNA Quantitative

___Bayer Versant HIV-1 RNA 3.0 Assay

___bioMerieux NucliSens EasyQ HIV-1

___Primagen Retina Rainbow

Policy

15. Do you disaggregate patient data by age groups?

___Yes

___No

If not, why not?

________________________________________________________________

6. If the prices on pediatric formulations of ARVs decreased to

levels approximately equivalent with adult formulations, would you

have the infrastructure and personnel to treat children in numbers

commensurate with pediatric infection rates?

___Yes

___No

17. Are you directly advocating to drug manufacturers for lower

prices on pediatric drugs?

___Yes

___No

18. Are you directly advocating to diagnostic manufacturers for

lower prices on diagnostics?

___Yes

___No

19. Are you directly advocating to country governments and

Ministers of Health to include children in their treatment programs?

___Yes

___No

20. What do you see as the largest obstacle to the scale up of

treatment of children for your organization?

___Lack of pediatric formulations

___Cost of pediatric formulations

___Cost of PCR diagnostic tests

___Lack of infrastructure

___Lack of pediatric-trained personnel

___Lack of funding

___Lack of political will