Guest guest Posted April 25, 2000 Report Share Posted April 25, 2000 Dear Listmates: Last week was a roller coaster week for us. Dr. Burchiel has decided to do the surgery for , and we learned some interesting new information in the process that might prove helpful to someone. Her MRI showed a definite herniation of 7-9 mm, and her symptoms were classic Chiari symptoms. However, the CINE MRI showed no flow obstruction. Dr. Burchiel believed that unless there was pressure buildup around the brain from blocked spinal fluid, surgery would not help. He decided to consult with a colleague and get back to us. Much to his credit, Dr. Burchiel had an extensive conversation with Dr. Carmel in New Jersey and learned that the fluid blockage and resulting buildup of pressure often happens in an UPRIGHT position, not lying down as MRIs must currently be done. Until it becomes possible to do a verticle MRI, certain symptoms point to the blockage of CSF when the patient is standing and moving around. These seem to be: a dry cough or a cough headache a throbbing headache brought on by exercise a feeling of pressure or pain when bending over dizziness and balance problems when standing blacking out while standing Based on these symptoms, 's other MRI results, and her history, surgery is being scheduled. These are specific to , and may or may not indicate the same things in someone else, and of course there may be other such symptoms that she does not have. This is also one doctor's opinion. I just thought it interesting enough to share with the group. Many blessings to all! Diane Mom to Chiari 1, 7-9mm surgery in June Quote Link to comment Share on other sites More sharing options...
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