Re: Sharon with Clayton

[Guest guest]

Sharon,

How did you get the IQ testing on Jake? I keep getting told several of my

grandsons are too young for that type of testing.

Also, the fine motor skills is so much a part of the ADD problem. We have

horrible handwriting-some so bad it's about illegible even as adults.

Kody at age 7 still has trouble tieing his shoes yet he is definitely one of

the more brilliant minds (we make Einstien jokes about him, but it is

frustrating for him and us). It's just so hard for him to use his hands on

little things-but he loves the mechanical things and uses his tools all the

time (poor us-I told him NO car repairs without supervision-work on your

bike!) I also told him NO electrical work buddy when he started at the

bathroom light switch at age 5.

So how do people get to get their kids into OT and these IQ tests for more

help and/or opportunities?

S.

Re: Sharon with Clayton

>From: SDidinsky@...

>

>In a message dated 7/16/99 1:44:01 PM Eastern Daylight Time,

>joelinda@... writes:

>

><< I've gotten a bit confused, but have a question. Does Clayton have

Optiz?

>I noticed this morning your old post (May 6) wherein you said he was being

>followed by Dr. at Kennedy Kreiger and it hit me-wait a

minute,

>he is the one who wrote the 19 pg article on Opitz I copied out and yet he

is

>working with Clayton on the mito diagnosis and then I thought you said

later

>Jake had ADHD or autism or something??

> Could you clarify all this for me? >>

>

>NO CLAYTON DOES NOT HAVE OPITZ - He mas a mitochonrail disoder diagnosed by

>Dr. RIchard Kelley - he does a lot of work on Opitz but also lots of work

on

>mito - it just so happened that Clayton's cholesterol levels were low

(about

>those of Opitz kids - but he had no other symptoms of Opitz). He diagnosed

>CLayton with mito. Clayton also is not autistic BUT does have many autisitc

>behaviors including hating social situations unless he knows the people or

it

>is his house, hitting, biting, and head banging.

>

>Jake is ADHD and also of superior intelligence (over 140 IQ). Jake also has

a

>delay in fine motor skills - he is 6 and starts OT on Monday mainly for

>handwriting but also to work on tying shoes, buttons, etc.

>

>Love,

>Sharon

>mommy to Jake (6)(ADHD and too smart for his own good) and fraternal twins

>(3/30/97) - Cole -(nda and cute as a button) and Clayton (mitochondrial

>disorder (presumed to be complex I), eosinophilic gastroenteritis, food

>allergies (milk, soy, eggs, wheat), g-tube, Nissen, latex allergy, DD,

>sensory integration disorder, tremors, etc........., and the world's best

>smile - AND WHO IS NOW STARTING TO LOOK CHUBBY!!!!!!!!!!!!!!)

>

>---------------------------