facial sensation, eyelid drooping, coneal keraitis, etc

[Guest guest]

Dear Crew,

For people have trigeminal schwannoma, in addition to bilateral acoustic

neuroma, surgical removal or Gamma knife treatment, the trigeminal nerves

may get hurt. This will cause facial sensation loss, eyelid drooping, eye

movement difficulty. It may also cause corneal keratitis due to facial nerve

weakness after treatments.

I am facing a decision for my 7 year old daughter's surgery. Most physicians

advised watchful waiting since it is a very difficult operation. However, it

may not be operable when it gets larger. I wish to hear from patient point

of view regarding the impact of these complications on their lives and how

to deal with it.

If you prefer, my private e-mail is jyang@....

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