Re: GT ScandiShake

[Guest guest]

Dear Tara:

I just got home and read your post about Scandic Shake. We tried it with

Calley. She did not like it orally, nor did she tolerate it in her g-tube.

You can order Scandi Shake from your DME company or directly from Scandi

Shake at 1-800-4-Scandi or the web-site http:/www.scandipharm.com. They sent

us some recipes and information when we contacted them.

We have Calley on Shaklee Meal Replacement Shakes, which have done wonders

for her!! She has gained weight and is taking some of the shake orally, not

just by the g-tube. The volume is much less, tastes good and has both

calories and vitamins packed in. Her insurance and Medicaid are covering

Shaklee since her doctor wrote a letter and script for them. (I included a

copy of the doctors letter here at the end of the post.)

(If you're interested in Shaklee, I have the brochures and info on that as

well. I know of one patient who lived on this only through his g-tube for

eight years and did very well.)

We did a lot of comparison between Pediasure, Carnation instant breakfast,

Scandi Shake and Shaklee. If you or anyone else on the list is interested in

the information/comparison of all four please E-mail me and I'll mail it out

to you.

We have Vanilla Scandi Shake left over that we may be able send to you, as

well as a sample of the Shaklee, just in case, if you'd like.

Calley gained one pound in three weeks and grew and inch and a quarter. Her

neurologist and nutritionist were very pleased!

I've attached the meal schedule for Calley, for you to see what we are

presently doing.

Just send us your address!

Best Wishes!

Shirley

Pediatric nurse to CALLEY

A beautiful two year old little girl with:

DIAGNOSIS: Cytochrome Oxidase Type C - Benign

AKA: COX Deficiency Type IV

CHALLENGES:

1. Decreased muscle Tone

2. Muscle Weakness

3. Scoliosis - 70% Curvature of spine

4. Reflux

5. Decreased motility of the Esophagus

6. Delayed Swallow

7. Tracheostomy - Shiley 'oo'

8. Gastrostomy - Mickey 14 french/2.0

P.S. SORRY FOR CROSS POSTING