Thank you

[Guest guest]

To all of you outside the US, thank you so much for your prayers and well

wishes. This has been a devastating event for our country. Our hearts

all ache. You all are so kind.

Kathy in Tennessee

Mom to - 6 - Keto kid since 02/00, Med free, seizures 95% reduced

Mom to 'lil sis, a - 3

" Even to your old age and gray hairs I am He, I am He who will sustain

you. I have made you and I will carry you; I will sustain you and I will

rescue you. "

Isaiah 46:4

On Wed, 12 Sep 2001 18:34:26 +1200 " Charlotte and Dirk "

writes:

> Hello to you all in America, We are here in New Zealand and simply

> blown away by what has happened,our thoughts and best wishes are

> with you all,Our country is in shock at what has

> happened,Speechless.

> Good Luck and may God Bless all of you.

> Love Charlotte and Dirk

> Re: Introduction

>

>

> Hi Pamela and welcome to the group. Our third child has

> uncontrolled seizures since birth, due to a brain malformation. She

> is 4.5yrs old and has tried 6 drugs w/o obtaining reasonable control

> of seizures. The keto diet gave her much better control than any of

> the drugs, and although I expect she will need some drugs(s) for her

> entire life I do hope to minimise them because of the diet. We

> weaned her off Lamictal about 8-10 months ago, and she still takes

> clonazepam and topamax. Every few months I drop her daily clonazepam

> by 0.1mg, and wait till all is settled until we do another drop.

> Topamax is said to be a no-no with the diet due to its possible side

> effect of kidney stones, which the diet can also contribute to, but

> we had a kidney ultrasound recently which showed the kidneys are

> fine, even after 14 months of the diet plus topamax.

>

> Recently seizure control was lost and she began to have tonic

> clonic seizures again, daily and multiple, but after altering her

> diet a little we have brought them almost totally under control

> again. Hannah is totally tube fed so the diet is easy for us to

> administer, but the beauty of the diet is that you can fine tune it

> to suit your child, once you figure out what works for them and what

> doesn't.

>

> I hope all goes well for and look forward to hearing more

> from you.

>

> - from Melbourne, Australia; mum to Hannah, (4yo;

> polymicrogyria, complex partial epilepsy, ketogenic diet since 6/00

> which has reduced seizures, spastic quad.CP and orthopedic issues

> that go with it, non-mobile, cortical vision impairment, possible

> conductive hearing loss, swallowing and respiratory issues,

> non-verbal, global dev. delays, 100% gtube fed by Bard button and a

> brilliant smile

>

>