Re: Any suggestions from someone in Texas

[Guest guest]

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Kalii..

There are supposed to be excellent ped neuros in Houston...I believe

at Texas Childrens. I've heard one of them is VERY pro keto even

wrote the chapter in many of the med books about it. I'll see if I can

find a name for you. Nan

[Guest guest]

Hi Kalii,

My 3 year old daughter, McKenlee, sees Dr. Wheless in Houston.

He is the Director of the Texas Comprehensive Epilepsy Program for

the UT Health Science Center and Head, Clinical Neurophysiology at

Memorial Hermann Hospital and Memorial Hermann Children's Hospital.

We have been extremely pleased with Dr. Wheless and his team. There

is a short bio on Dr. Wheless at

http://www.neurologychannel.com/txepilepsyctr/ He has great

experience with the Ketogenic Diet and his dietician, Caroline, has

been very helpful to us.

Unfortunately, the diet has not been successul in controlling my

daughter's seizures and we are talking with Dr. Wheless about the

possibility of temporal lobe surgery. (We have an appt. with him on

Sept. 18 to make this decision.)

The phone number for Dr. Wheless' appointment line is .

His nurse, , is at .

I hope this helps you some. I know how hard it is to find a good

neurologist. This is McKenlee's third in the last year and we are so

pleased to have finally found someone who is intelligent when it

comes to Epilepsy.

Good luck,

Cecilee, Mom to McKenlee (age 3) with daily Complex Partial and

Absence seizures, KGD since March 12, 2001.

> I am having a difficult time finding a Ped Neurologist around the

San

> area. I would be willing to drive the 4 1/2 hours to

Houston

> if necessary. I have basically fired the old Neuro doctor. I need

> to find someone soon...after having a bad night I realize we may

need

> someone sooner than expected. Logan's ketones are large but he had

6

> grand mal seizures throughout the night. Not sure what brought

them

> on. He didn't have much of a nap and was a little over tired but

it

> hasn't brought on that many seizures before. The Mayo docs still

say

> we may need to put him on Felbatol just to get him through the

> initial period to help slow down the seizures and let the diet work

> like it should. If anyone knows about this med let me know. I was

> given some info on it but I was wondering if anyone has tried it.

It

> is one of the last resort drugs. We have been through all the

others

> and have had no success. I am not giving up.

>

> Thank-you

>

> Kalii

> mom to Logan 3 (ketokid since 07/01) and big brother Cody 8.