Guest guest Posted August 3, 1999 Report Share Posted August 3, 1999 Ruth, has had the same problem with pooping up to 15 times a day too, Once I took him off the Polycose ( sugar added to formula to increase cals) and the Vit C which can increase BMs he is doing much better. I have also had the same problem ----when changing his diaper and using a wipe that the poop keeps coming out. I guess all it takes is just a little stimulation and it triggers the reflex. I am " assuming " here that the sphincter is a muscle so it could be effected by the Mito like any other muscle right? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 3, 1999 Report Share Posted August 3, 1999 Ruth- I have a similar type of problem when my dysmotility is bad. Once I can get my system working better and get cleaned out, then the problem goes away. In fact I have had to have surgery to release the tightness of the sphincter muscle. It might be a case of her intestines being full of stool, so the sphincter can't close. Is her stool quite firm. If so, getting it softer might be the answer. Laurie > Okay, I have a real doozy of a question. Hope no one is easily grossed out. > My daughter (Lexi, 16 months) has recently (like this past week) started > pooping 10-15 times a day. Each time it's just a little bit at a time, never > like a full diaper. So I didn't know what to think, just passed it off as > some weird baby phase, but then.... > > just now I noticed that as I was changing her for the 14th time today, when I > wiped her little bum there was still poop coming out. So I tried cleaning > her better, only to realize that the problem is her anus sphincter muscle > does not seem to be closing all the way. Any idea if this could be related > to the mito issues? She has had some mild hypotonia, but nothing like this. > Also, her Dr told me that her mito problems affected her respiratory > transport chain. I am really a little freaked out right now. Any thoughts > on this stinker of a problem????? > > ruth > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 3, 1999 Report Share Posted August 3, 1999 Laurie, I hadn't thought of trying to soften up her stools, because usually it's so mushy from the carnitine; but now that you mention it, I think she has had a change in her stools. Hmmmmmm....... It's worth a try. So far I've used 28 diapers in 2 days. :{ ruth (aka the Diaper Queen) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 3, 1999 Report Share Posted August 3, 1999 Chrissy, Thanks for the input. It's so nice to know Lexi is not some abnormal whacked-out baby (although she does have her moments) and that someone else has gone through this too. I've put in a call to her pediatrician and am going to ask him about all of this. Maybe a change in diet or med regimen is in order. Any port in a storm at this point..........:} ruth Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 3, 1999 Report Share Posted August 3, 1999 Hi!Perhaps you could ask your doctor on the safest way for your daughter to bind up her stools alittle.If it doesn't help and she gets very uncomfortable there are acouple of options.One is not a very nice one but she could have her sphincter tightened or perhaps a barium bowel follow through xray.Some kids can stool like this however and I donn't think it would have anything to do with her mito issues.Is her hypotonia severe or worsening as it sounds like this stool problem is a new thing for her?Talk to your doc, he may not be concerned unless she is losing fluids or calories but it is always better safe than sorry with our mito kids right?Take care and I hope it works out! >From: Hilandgang@... >Reply-To: Mitoonelist >To: Mitoonelist >Subject: The scoop on poop?? >Date: Mon, 2 Aug 1999 22:20:28 EDT > >From: Hilandgang@... > >Hi All >Okay, I have a real doozy of a question. Hope no one is easily grossed >out. >My daughter (Lexi, 16 months) has recently (like this past week) started >pooping 10-15 times a day. Each time it's just a little bit at a time, >never >like a full diaper. So I didn't know what to think, just passed it off as >some weird baby phase, but then.... > >just now I noticed that as I was changing her for the 14th time today, when >I >wiped her little bum there was still poop coming out. So I tried cleaning >her better, only to realize that the problem is her anus sphincter muscle >does not seem to be closing all the way. Any idea if this could be related >to the mito issues? She has had some mild hypotonia, but nothing like >this. >Also, her Dr told me that her mito problems affected her respiratory >transport chain. I am really a little freaked out right now. Any thoughts >on this stinker of a problem????? > >ruth > >--------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 4, 1999 Report Share Posted August 4, 1999 In a message dated 99-08-02 22:27:53 EDT, you write: << just now I noticed that as I was changing her for the 14th time today, when I wiped her little bum there was still poop coming out. So I tried cleaning her better, only to realize that the problem is her anus sphincter muscle does not seem to be closing all the way. Any idea if this could be related to the mito issues? She has had some mild hypotonia, but nothing like this. Also, her Dr told me that her mito problems affected her respiratory transport chain. I am really a little freaked out right now. Any thoughts on this stinker of a problem????? ruth >> Dear Ruth: Amy, 22 years old has problems with that muscle not closing all the way. We have to have her change her underware twice a day. She also has problems with incontinence. Her overall tone is poor. Lynnie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 4, 1999 Report Share Posted August 4, 1999 In a message dated 99-08-02 22:27:53 EDT, you write: << just now I noticed that as I was changing her for the 14th time today, when I wiped her little bum there was still poop coming out. So I tried cleaning her better, only to realize that the problem is her anus sphincter muscle does not seem to be closing all the way. Any idea if this could be related to the mito issues? She has had some mild hypotonia, but nothing like this. Also, her Dr told me that her mito problems affected her respiratory transport chain. I am really a little freaked out right now. Any thoughts on this stinker of a problem????? ruth >> Dear Ruth: Amy, 22 years old has problems with that muscle not closing all the way. We have to have her change her underware twice a day. She also has problems with incontinence. Her overall tone is poor. Lynnie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 4, 1999 Report Share Posted August 4, 1999 In a message dated 99-08-02 22:27:53 EDT, you write: << just now I noticed that as I was changing her for the 14th time today, when I wiped her little bum there was still poop coming out. So I tried cleaning her better, only to realize that the problem is her anus sphincter muscle does not seem to be closing all the way. Any idea if this could be related to the mito issues? She has had some mild hypotonia, but nothing like this. Also, her Dr told me that her mito problems affected her respiratory transport chain. I am really a little freaked out right now. Any thoughts on this stinker of a problem????? ruth >> Dear Ruth: Amy, 22 years old has problems with that muscle not closing all the way. We have to have her change her underware twice a day. She also has problems with incontinence. Her overall tone is poor. Lynnie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 4, 1999 Report Share Posted August 4, 1999 Hi , I am definately calling her ped today, since we are still in mega-diaper mode. I'm not sure if she's loosing calories but what a scary thought THAT is since she hardly takes in anything anyway. I'm kind of in the same mind-set about maybe doing a barium study to follow up, and will ket you know what transpires. Thanks again! ruth Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 4, 1999 Report Share Posted August 4, 1999 Hi , I am definately calling her ped today, since we are still in mega-diaper mode. I'm not sure if she's loosing calories but what a scary thought THAT is since she hardly takes in anything anyway. I'm kind of in the same mind-set about maybe doing a barium study to follow up, and will ket you know what transpires. Thanks again! ruth Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 4, 1999 Report Share Posted August 4, 1999 Hi , I am definately calling her ped today, since we are still in mega-diaper mode. I'm not sure if she's loosing calories but what a scary thought THAT is since she hardly takes in anything anyway. I'm kind of in the same mind-set about maybe doing a barium study to follow up, and will ket you know what transpires. Thanks again! ruth Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 8, 1999 Report Share Posted August 8, 1999 Dear , Thanks for the encouragement. I am surely in need of it right now, as things have been a bit tough lately. Lexi's diet has NOT changed, which is what is puzzling both her doc and me. But we are trying to manage this by playing around with her medication dosages and just watching how she responds. He's being really cool about not putting us back in (knows how much I *hate* to be stuck there), but we are still trying to get things under control. Better today (Sun), as she's only had 3 so far and it's lunch time now. One diaper at a time, y'know!! :} ruth Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 8, 1999 Report Share Posted August 8, 1999 Ruth, My daughter poops about 10 times a day when she has soy products...has Lexi's diet changed? It is hard to change messy diapers all day-- I'm thinking of you! , Mom to Adelaine -- The 's Ann Arbor, MI j-cooper@... http://www.mich.com/~jaj Quote Link to comment Share on other sites More sharing options...
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